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Mi historia

Thank you for reading Talia's story.  



On November 5th 2008 we received the the horrible news that our beautiful baby two year old girl was diagnosed with a malignant brain tumor....

Talia never had any big symptoms or signs of illness. A week before the diagnoses she threw up in her crib a couple times but we thought maybe she just had a flu bug. Then Halloween weekend we started to notice that her left eye was starting to deviate to the middle. So, my wife Nicole took her to the doctor and the doctor said not to worry it was just a weak muscle or something and get a appt to the eye doctor. We got the soonest appointment which was 3 weeks away. The next day, my wife had a feeling she shouldn't wait. So she called another doctor and got in right away. He dilated her eye, found pressure in her head, then sent Talia and Nicole to the ER. At the hospital they did a CT scan.

By the time I had got to the hospital from work the results were in.......I walked into the ER room, went back to where they were and Nicole was holding Tali in her arms and told me she had a brain tumor. The world just stopped, changed direction and will never be the same.

Then they did a MRI and the news got worse. We were told it had spread to her little spine. They checked her in to intesive care unit where we met her neuro surgeon Dr. David Shafron and by the end of the day she had her first brain surgery. They had to drain the fluid out of her head that was causing the pressure in her head and symptoms. Next, on Friday November 7th she had a second surgery to remove the tumor from her brain. We have never prayed so much in our lives. Thank you God, they were able to get almost all of that tumor in he head.The tumors that spread to her spine are inoperable so they will be addressed with chemotherapy and prayer.

So we ask you to pass this on to all the people you know and to have them pray for my daughter. She needs to be strong, recover from surgery so she can fight her next battle in the war of cancer which will be the chemotherapy. She will be strong and God will heal her. Please pray, thank you so much.....

Treatment:
Head Start 3 protocol, Talia completed the chemotherapy/stem cell rescue portion from 12/2/08 to 6/22/09. 
Proton Radiation 7/12/09 to 8/28/09 @ MD Anderson in TX

First scan post treatment 10/1/09: NED. clear spinal fluid.
1/22/10: NED. Clear spinal fluid.  
4/23/10: NED
7/23/10: NED
11/4/10: NED
2/10/11: NED

5/2011: NED

11/2011: NED

3/23/2012: NED

8/2012: NED




life is good. 

 

Fuente

Nicole Linnan Kovac posted a new journal entry, "Has it really been that long?".

I can't believe it's been almost over a year since I've last updated. I apologize for the lack of updates. Talia is doing amazing. She had her last MRI in August 2012 and ... Lea más

Nicole Linnan Kovac posted a new journal entry, "Has it really been that long?".

I can't believe it's been almost over a year since I've last updated. I apologize for the lack of updates. Talia is doing amazing. She had her last MRI in August 2012 and ... Lea más

Nicole Linnan Kovac posted a new journal entry, "It's that time again...".

First off I want to apologize for the lack of updates, as most of you all know there has been alot of changes in our lives and that's derailed me from writing. Talia is ... Lea más

Nicole Linnan Kovac posted a new journal entry, "giving back...".

I am choosing to give back to the very same organizations who helped me and my family while Talia was in treatment....Please go to my fundraising page ... Lea más

Nicole Linnan Kovac posted a new journal entry, "The millionth clinic visit.....".

Yesterday Talia had her millionth clinic visit, no not really but at times it seems that way. In the morning for reasons that will never quite be clear to me, I found ... Lea más

Nicole Linnan Kovac posted a new journal entry, "Results are in.....".

MRI shows NO EVIDENCE OF DISEASE!!!!!! All clear!!!!!!!!!!!!!!!!!Praise God!!The entire process was uneventful and Talia handled it like a pro. She is resting now ... Lea más

Nicole Linnan Kovac posted a new journal entry, "Upcoming MRI day...".

It seems just like yesterday I was anticipating MRI day and here we are once again. MRI day is right around the corner. Anxiety set in today and will most likely continue ... Lea más

Nicole Linnan Kovac posted a new journal entry.

Scans are clear! I'm so incredibly happy and relieved. Since hearing of others relapsing I was quite worried for this scan. We got to eat breakfast in the new hospital ... Lea más

Nicole Linnan Kovac posted a new journal entry.

It's been awhile since I've updated. Talia continues to do amazing. She is really into playing tea party with her stuffed animals, so adorable. Wanted to let everyone know ... Lea más

Nicole Linnan Kovac posted a new journal entry.

“We must let go of the life we have planned, so as to accept the one that is waiting for us.”I had big plans for last week. But God had his own plan and it included ... Lea más

Nicole Linnan Kovac posted a new journal entry.

Is it really almost Christmas? The kids are so excited! We put our tree up and yesterday we did some homemade cookie baking. Today we plan on decorating all the cookies ... Lea más

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