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Our story begins and will never end...
On May 14, 2009, Sydney was scheduled for a re-check appointment due to a recent case of Strep. A few days earlier, my mother had noticed Sydney complaining of her eyes and saying she could "see two of Grammy". Since the re-check appointment was already scheduled just two days later, we didn't see the urgency of making another appointment and still having to go for her re-check. While waiting the next two days for the appt., I along with several other people noticed a "wandering eye".
When we arrived at the pediatrician, her re-check test came back positive...we were very surprised and shocked...I almost even forgot to mention her eye. The doctor did a quick look over and said that it was probably just what we would call a lazy eye. We stayed put and he had a nurse get on the phone to get us a referral with an opthomalogist...by the way, happened to be the one that my parents use. While waiting for our appt. time to see the eye doctor, our nurse quickly blurted out that he had a cancellation come up for the very next morning. I took it.
The next morning my mother drove us to the eye appt. Jamie couldn't come because he had just finished, that day, his work project in Louisiana that he has been working on for about a year. He was traveling home for good. Once we had the eye exam, the doctor recommended that we have an MRI done because she had some paralysis in her left eye. I was a bit worried and the doctor kindly told me that I did have a right to be worried.
Throughout the day we spoke to our pediatrician, Dr. Denny from Cornerstone Pediatrics in Madison. He assured us that we would have the MRI and see a Pediatric Neurologist that day. I was obviously upset and didn't have a clue about what they were looking for.
We were rushed quickly into an MRI (after the Women and Children's Center in Huntsville rearranged schedules to get us in)...it seemed that everywhere we went, they were waiting on us! During the MRI, we had to sign consent papers to have a CT scan done. By this time, Jamie had made it in along with my father. After the scans, we were given the news by the radiologist, Dr. Coleman. Basically, our two choices were to travel to Children's Hospital in Birmingham or St. Jude. When they said St. Jude, we knew instantly what was wrong with Sydney. He told us that she had a mass behind her sinus cavity and appeared to be aggressive. That is what was causing the paralysis in her left eye.
We left on Saturday morning to meet with Dr. Howard, an Oncologist/Hemotologist. He has been with us thus far and told us that he "couldn't get us around this, but could get us through this". He related it to a trip to Grandma's house...Sometimes the trip is bumpy, sometimes it is smooth, and sometimes there is a big, bad wolf waiting for us...I like his analogies, they are comforting.
We received our diagnosis on May 21, 2009. Sydney has Rhabdomyosarcoma. We will continue this story as long as it takes to get our cure. So, this is TO BE CONTINUED...