Ready for spring!
Mar 2, 2014 5:12pm
Upon the arrival of March I find myself anxiously awaiting all the soul soothing blessings of spring! The birds are busy singing and spring flowers are starting to peek out of hibernation. It won't be long until we are blessed with early "Aaron" sunrises followed by later sunsets! I have always been a “noticer” of God's creations, but more so now than ever! I enjoy receiving messages from you as you take in the beauty of nature letting me know you are thinking of us and our Aaron!
I have received numerous inquiries regarding the status of Steven's acquiring the Bioness arm system. Thank you for asking and for wanting to know how you can help this become a reality for Steven. It means so much to know we have much needed ongoing support. At this point the prescription has been submitted to Bioness. I'm waiting on a return phone call from our rep to provide an update and will pass along. If Anthem declines we will take you up on your offers of helping with fundraisers, donations,etc. Our prayer is that Anthem approves the system. An approval of the system for Steven would also mean one step closer for other survivors to be afforded the same opportunity of receiving the benefit of these systems. I'm doing in-depth research on the benefits and gathering information on which other insurance companies have approved the system. I refuse to give up!
I must confess that when I received a voice mail last week from Driverside Rehab I felt relieved that I missed the call! I know it's normal to feel anxious about Steven driving, but I also know I have to be strong and supportive of this big step. Reminder to self: I can do this! One step at a time! I will return the call this week! Thanks in advance for your prayers.
You know by now that we don't take anything for granted! Recently after a challenging week of both vehicles experiencing mechanical issues we celebrated the timing of a couple of unexpected blessings! I mentioned awhile back about attending the upcoming Annual Brain Injury Conference in Richmond. One of our blessings was a phone call letting me know that Steven's application for a scholarship to attend was approved! The scholarship will cover his conference fee, hotel accommodations and reimbursement of gas! We also received word that there might be funds available through the Brain Injury Services of SWVA to cover the expense of the driving program! It is awesome for Steven to witness these blessings! We're always reminding him about how our community of supporters took such good care of us from day one! As we look back we continue to be in awe of the tremendous needs we had that were always immediately met by you! God put the right people in our path then and now for very specific reasons and we are forever thankful! Happy dance!
We are making it a priority to get out on the weekends together to enjoy & appreciate nature. Whether it's enjoying a drive, a walk or hike together we always feel the closest to Aaron when we are out in his realm. Recently after a weekend drive and a walk in a park we ended the weekend with a visit to see Ethan Aaron. As I watched Daniel with Ethan I experienced so many mixed emotions! We're so proud of the young man Daniel has become! A dad; wow! It's obvious Ethan is crazy about Daniel. As I watched them together I had to hold back the tears knowing Aaron would have been the same way as a Dad. He was so wonderful with children! We're so thankful the Palmer's share their precious gift from God with us! When we hold Ethan, we can feel Aaron's beautiful smile!
March is Brain Injury Awareness Month! As I think back to our Shepherd days, I remember more reality hitting me as I was browsing in the gift shop and saw TBI Awareness jewelry. I immediately thought I want no part of this and really green is not even my color :) Amazing how I feel now vs then! I want to educate others and do everything possible to help raise awareness! Yes, even wear green! I also need to know that we're doing everything possible as parents to ensure Steven is afforded the best medical care during this critical window of recovery. Yes, our lives are changed forever, but with Steven's miraculous recovery & determination to do whatever it takes to not let his TBI stop him from living life to the fullest it's very evident he is here for a reason! Our life at times is an emotional roller coaster, living with double grief is more heart wrenching than I can explain, but we must never give up. We will keep our faith & continue to trust God! I read this recently and couldn't have said it better myself: The grief journey is a roller coaster from hell. It's about going forward ten steps and fifty back. You think you have a handle on your feelings when suddenly you have an outburst. The grief journey is not easily controlled. You can't force it into a linear process - it's a twisty-turn type of path that doesn't allow you to see beyond the fog. Grief commands your attention, and being proactive in the journey is best. Do the work of grieving so you can live again –really live with joy, passion, love, and laughter. Do it because you deserve to be happy. I remind myself and my guys daily that God and Aaron wants us to be happy! They want us to love, laugh and to feel genuine joy! And above all to never give up!
As always thank you so much for remaining faithful to us. Hearing from you is an encouragement! And yes sweet Chelsea, I'm looking into blogging! I have so much on my heart on a daily basis about parenting, grief, accepting life as it is...just for starters. CaringBridge is wonderful, but I do feel like it is for updating you on Steven's journey. It would be therapy for me to have one location to share with you not only about Steven's amazing progress, but also more about our awesome son Aaron!
As the snow falls, keep your eye on the prize of spring arriving in 16 days! Steven's spring break is this week. While I didn't give him a pass for missing therapy at least his schedule will be lighter without school and other appointments. We plan to make the most of our downtime!
Thanks for taking time to catch up with us! As you begin a new week, take time to count your many blessings. Remember to hug a little longer, say I love you often, laugh out loud and forgive easily!
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