Steve Friend's Journal
Written May 4, 2010 5:49am
We had some bad news last week, Steve's counts (platelets) dropped and he had a bone marrow at the Cleveland Clinic. He relapsed and now we are looking at going back to Cleveland for the full stem cell transplant. This was unhappy news for us, since he had been doing so well. The last few weeks he has been having a slight temp off and on, in the 99 range.
Dr. Sobecks wants to do the myeoblative, which would mean he would be in the Cleveland Clinic 4-6 weeks, then to Hope Lodge, we're hoping, once he is able to be discharged from the hospital. Unfortunately, I have used my FMLA, and would have to take a personal leave, so we are working out those details, which means I may only be able to go on the weekends to see him. But, our 2 daughters will be off for the summer, they both work part time but can get some time off I'm sure. We are also arranging for family/friends to stay with Steve at the Hope Lodge, along with myself and our 2 daughters. We have appreciated all the support from family and friends and will keep Steve's progress updated. We are encouraged by knowing God is with us and that we are never alone, no matter what the circumstances. Thanks all for continuing to keep Steve and his family in your thoughts and prayers.
Written Apr 1, 2010 7:23am
Happy April Fools Day to all ;)
We are doing well and keeping busy. The weather here is starting to warm up and Steve really has the bug to go out and do stuff, ie yard work, trimming, fixing gutters, etc. He knows he has to wait to get the o.k. from our transplant doctor, but what a blessing he feels well enough right now to want to tackle some of the above.
May all of you have a blessed Easter.
Written Mar 13, 2010 12:06pm
Good afternoon, All! I thought I'd drop you a line on this rainy afternoon.
About a week ago (Monday, March 8th) we made our monthly trip to the Cleveland Clinic. This was a routine visit, with the obligatory chest x-ray and bloodwork, followed by an appointment with Dr. Sobecks.
My blood counts continue to look great. He has taken me off of four medications, including the potassium supplement, an antibiotic, an antifungal, and last but not least, the Prograf, which is the anti-rejection med. He wants the donor cells to have free reign to engraft in my marrow and build up my immune system. So far there's been no sign of graft vs. host disease, and he wants to cut things loose. He is very pleased with my progress, as am I.
There's no doubt that there is a higher power at work in my life, and I am extremely grateful to have been a recipient of God's grace.
My challenge is to keep from getting bored out of my gourd around the house. I can clean but I'm not allowed to sweep or dust. I'm getting a real bad case of "spring fever," especially when the temperature hit 60 degrees for a few days earlier this week. I've sorted my sock drawer about a dozen times.
Kris wants me to cook more meals, but I think we're getting tired of beanies, weenies, and yellow jello!
Both girls were on spring break this week, and went to Chicago with another girl friend for a couple of days. I redeemed some Hilton Honors points at the Embassy Suites on State Street in downtown Chi-town, close to the "Magnificent Mile" and other shops.
They found out quickly just how expensive things are in the big city. But the hotel was nice, and they had a good time.
With spring just around the corner, there are many outdoor activities that I'd like to do here and up at the farm. So far they've not released me to do any outside work, like digging in the dirt or running a chainsaw - drats!
At least I'm allowed to go out in public, as long as I'm careful about exposure to other folks. I go to the store, church, and eat out occasionally as long as it's not during peak times.
I'll close for now. I hope all of you are doing well, and will enjoy the weekend.