It has been a crazy last nine days in central North Carolina with SIX snow days and each morning trying to figure out what to do with 3 stir crazy kids, work, and whether nurses can get to our house. As always, God finds a way to make everything happen and a plan lays itself out just in the nick of time. I'm feeling like my office should add on a daycare in the conference room and my kids should have their honorary doctorate. The snow has been fun to sled and play in, but I think we are all ready for Spring. I can't imagine what it has been like up North.
Steve has had another rough weekend (fought off the flu last weekend), but once again he has bounced back at home. He had an unreal amount of myoclonus and dystonia from Sunday through Monday for no apparent reason, almost to the point of needing to go to the ER on Sunday. It really hasn't been this bad since he first came home from the hospital. He was literally having episodes every 5 minutes even at rest and briefly was on oxygen. However, with some extra valium, fluids, and time, he seems to have gotten back to his baseline. Praise God!
As far as insurance and nursing coverage goes, I know for sure that I'm switching on March 1st back to BCBS which is great news. However, we have to go through the authorization process all over again and I have been told that this could take some time. Please pray, I mean really, really pray, for our 24 hour nursing coverage to be restored. These last 2 months fighting for coverage have been utterly exhausting. I am praying for those who review his case to have complete understanding of the situation and how important these nurses are to keep Steve out of the hospital and for me to be able to work, sleep, and raise our girls.
Thank you so much for all of your support in so many ways! Peace to all! Stay warm and safe!