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Steve’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Steve's status. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



On Friday, May 27 at 4:30am Steve had a seizure and went into cardiac arrest.  Lisa administered CPR and called 911.  EMS was able to restore Steve's pulse and transported him to UNC Hospitals.  In the ED he was put on an induced hypothermia protocol, which is used to improve neurological outcomes following cardiac events, and he was admitted to the Cardiac ICU.

We don't know why he had the seizure and arrest, as Steve has been completely healthy and has no vices.  This was bizarre and completely unexpected.

Latest Journal Update

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It has been a crazy last nine days in central North Carolina with SIX snow days and each morning trying to figure out what to do with 3 stir crazy kids, work, and whether nurses can get to our house. As always, God finds a way to make everything happen and a plan lays itself out just in the nick of time. I'm feeling like my office should add on a daycare in the conference room and my kids should have their honorary doctorate. The snow has been fun to sled and play in, but I think we are all ready for Spring. I can't imagine what it has been like up North.

Steve has had another rough weekend (fought off the flu last weekend), but once again he has bounced back at home. He had an unreal amount of myoclonus and dystonia from Sunday through Monday for no apparent reason, almost to the point of needing to go to the ER on Sunday. It really hasn't been this bad since he first came home from the hospital. He was literally having episodes every 5 minutes even at rest and briefly was on oxygen. However, with some extra valium, fluids, and time, he seems to have gotten back to his baseline. Praise God!

As far as insurance and nursing coverage goes, I know for sure that I'm switching on March 1st back to BCBS which is great news.  However, we have to go through the authorization process all over again and I have been told that this could take some time. Please pray, I mean really, really pray, for our 24 hour nursing coverage to be restored. These last 2 months fighting for coverage have been utterly exhausting. I am praying for those who review his case to have complete understanding of the situation and how important these nurses are to keep Steve out of the hospital and for me to be able to work, sleep, and raise our girls.

Thank you so much for all of your support in so many ways! Peace to all! Stay warm and safe!

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Comments

6 Comments

Patsy Meacham
By
Prayers continue for all of you and for this insurance business to go through. I know the strain you have been under mentally and emotionally these past few months have been unbearable at times. My positive thoughts and prayers are always with you. Keep on keeping on. God is with you always. Patsy
Pat Horton
By Pat Horton
Shemaiah Group is braving the roads today and you know y'all are on the list! You probably know this already because of your great care team, but I saw it on PBS last week in relation to keeping loved ones cared for in the home for long term. It included all sorts of help and resource that is out there--Family Caregiver Alliance.PAXPLH
Sharon Guyer
By Sharon Guyer
Dear Lisa, I'm sure you ARE exhausted and the weather has been difficult. Yes, we will continue to pray for the 24-hour nursing to be restored and for your whole family to stay well! Love, Sharon
Stephanie Rolfsen
By Stephanie Fort-Rolfsen
Praying for you and your family daily, Lisa!! I certainly hope this works out for you.
Veronica Frost
By Veronica
Breathe in, breathe out....
God only wants what's best.
It will work out the way it's supposed to be.
And, yes, it was eighteen below this morning....
June (Wilson) Fordyce
By June Fordyce
Prayers coming your way from snowy Indiana - but not a whole lot

God's Blessings for all of you!