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My Story

This story is about Sophie, a little warrior who began her fight to survive at the tender age of four.  Sophie is determined to never give up this fight until every diseased cell in her body is gone. We are eternally grateful for all the prayers and support.

Sophie’s cancer was discovered by the grace of GOD when she went in for her 4 year wellness checkup and immunizations on November 23rd 2009.  Instead of the usual quick few questions about general health conditions and then the shots, her pediatrician actually performed a physical exam.  The exam revealed an enlarged liver.  Sophie was sent for an abdominal ultrasound.  The results showed a large mass on her right kidney that was pushing up on her liver.  Sophie was admitted in the hospital and a complete diagnostic work up was done.  The results were not what we wanted to hear.  Sophie’s cancer had spread from her right kidney to a lymph node adjacent to the kidney and to multiple locations in both lungs.  Surgery was done to remove the kidney and the lymph node.  The lung lesions were left in hopes they would respond to chemo.  Sophie then started chemo and had radiation to the site where the kidney and lymph node were removed.  Even though she was diagnosed with Stage IV Wilms Tumor things were looking good.  The lung tumors seemed to respond to the chemo.  Unfortunately her first CT scan after her last scheduled round of chemo showed three tumors; two in the left and one in the right lung had popped up.  Sophie started back on a different regiment of chemo.  After one round a CT scan showed a no to slow response.  Sophie went back under the knife to remove the three tumors.  After surgery she started yet another regiment of chemo.  We were brought to our knees again one month later as the CT scan showed three more tumors in the lungs.  We started a different regiment of heavy chemo therapy in January 2011.  This chemo really takes a toll on her blood counts.  Sophie’s days now consist of heavy chemo with all the side effects for four straight days with 24 hour a day IV hydration, hospital admission for a week to ten days with fever and no white blood cells, then a week or two to recover before starting all over again.  Sophie’s last scheduled chemo with this regiment should be in December 2011.  Through all of this, Sophie’s wishes are simple: wanting to go to school to be around other children, being able to go to the grocery store, and being able to play with frogs again.  Things most children unknowingly take for granted.  Sophie’s spirit is unshakable and her determination to live is unbreakable.  Sophie is truly an inspiration to so many people that know her.


Kendall Koch signed Sophie's Guestbook.

I wanted you to know we still think of Sophie very often and continue to lift your family up in prayer. When I first heard her story, I could see how others lit up when ... Read more

Christy Griffith signed Sophie's Guestbook.

Hi, I was wondering if you would be interested in having a dedication made for Sophie during Pablove Across America in a few days.  If you would, please email me at ... Read more

Faith Meyer signed Sophie's Guestbook.

We are to remember and gain insight from those who truly guide us as Sophie did.  She is a permanent fixture in our hearts and one that we pass on to others the stature ... Read more

Lauri Harris Odie's Mom signed Sophie's Guestbook.

the same day you are doing sophie's walk to honor your baby girl and her birthday, i am also hosting a benefit to honor my son odie and his birthday. calling it 'odie time ... Read more

Sandra Franck signed Sophie's Guestbook.

Shannon you inspired Sophie to embrace her faith the way she did. You were so much more to her than you realize. Godmothers are there to make sure the godchildren know the ... Read more

Linda Willis signed Sophie's Guestbook.

I still think of Sophie everyday and say a prayer for her and the family - I know she is in Heaven with God and at peace there.  I will definitely be at the run to ... Read more

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