My Story

Welcome to Sophia's website. We are trying to use this to communicate updates and changes to what's occurring with our little girl. Hopefully this will give everyone who loves her a chance to get up to date.  Thanks to all of you for the endless support and love!



We noticed that Sophia's breathing was different on Sunday November 21st, and felt uneasy about having her on the island in case of an emergency.  We got on the ferry to go home and thought we would stop by the Skagit ER on the way home, just for a piece of mind, both knowing that we wouldn't be able to sleep that night.  From there it was determined that she was having trouble breathing due to an enlarged heart and they rushed her via ambulance to Seattle Childrens Hospital. She has been there ever since. Lot's of tests have been performed, she was in isolation for 3 days, and is gradually getting better. At this time the docs think that she may have a congenital heart condition, but they are still performing tests so we will know more as time progresses. It is possible she may grow out of the condition, need corrective surgery, or the remote possibility exists of the need for a heart transplant. We just don't know at this time.

We will update this site as often as possible to let everyone know what's going on with our little girl. Please keep her in your prayers! 

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Lacen Potter posted a new journal entry, "Celebrate Caitlyn".

To all interested, please help celebrate this beautiful girl! Sophia received her heart from a little girl named Caitlyn. Caitlyn's family will be celebrating her 3rd ... Read more

Korinne Megard signed Sophia Grace's Guestbook.

Happy Birthday Caitlin...you will always have a place in "all" of our hearts each time we look at Sophia we are reminded of You.  We will remember this day ... Read more

Lacen Potter posted a new journal entry, "Celebrate Caitlyn".

To all interested, please help celebrate this beautiful girl! Sophia received her heart from a little girl named Caitlyn. Caitlyn's family will be celebrating her 3rd ... Read more

Elaine Teel signed Sophia Grace's Guestbook.

Oh I am so pleased with Sophia's progress.  What a smart and precious little girl you have.  Keep the updates coming.  Elaine Read more

Krispi Staude signed Sophia Grace's Guestbook.

Love hearing these updates!  She is an awesome kid!  I am sure you are aware of your blessings everyday!    Love to your family! Read more

Lacen Potter posted a new journal entry, "TWO!!!!".

Well our sweet little kiddo is two!  How this happened so fast, I don't know!  Sophia is amazing and is such a shining light in our lives.  She is a complete chatter ... Read more

Debbie Sandwith signed Sophia Grace's Guestbook.

Tears of gratitude & love flowing easily as I read your entry ~ what a beautiful miracle Sophia is to us, her family & to the donor family, who loved enough to ... Read more

Elaine Teel signed Sophia Grace's Guestbook.

I am so glad you e-mailed me to tell me about darling Sopha,  Would love to see her when Claire is in towns again.  Love and cheers , Elaine Read more

bev champlin signed Sophia Grace's Guestbook.

Thank-you so much for the update.  I do not have Facebook so I miss the postings.  I think of Sophia often and miss the photos.  She is so beautiful and healthy looking ... Read more

Lacen Potter posted a new journal entry.

As we approach Sophia's second birthday in three weeks (crazy, I know!), I have spent a lot of time reflecting on her past years.  A few nights ago I sat down and read ... Read more

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