My Story

Conner had a Bone Marrow Transplant for NEMO deficiency on August 17, 2007.  His triplet brothers are Hayden and Evan, their sister is Kelsey.  All four kids have varying degrees of immune deficiency.  CLICK HERE for Conner's original site.

Journal

Monday, June 8, 2009 1:17 PM, CDT


I wanted to let everyone know that you can get on the bone marrow registry for free right now. Order a swab kit June 8-22 and there is no cost. 70% of people never find a match...  www.marrow.org


When you join the Be The Match Registry, you become part of every patient's search for a bone marrow donor. You could be the one to save a life.

And now, during the Be The Match Marrowthon, you can join online for free June 8 - 22, while funding remains. Our Marrowthon goal is to add 46,000 new members to the registry. Be one of them!

When you join, you can also choose to make a financial contribution. It costs about $100 to add a donor to the registry. Your tax-deductible gift in any amount creates the opportunity for more donors to join.

It's easy to join the Be The Match Registry:

  1.Confirm you meet basic registry guidelines.  2.

Complete the online form and order your registration kit. This step will take about 30 minutes.

The cost to add you to the registry has been covered, but funding is limited. To join for free, you must complete the online registration step before June 22 AND before funding limits are met. After that, you may be asked to pay the tax-deductible $52 tissue-typing cost.

  3.Follow the instructions in your kit to collect a swab of cheek cells and return the kit.



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