My Story

Simon was diagosed on December 26, 2006 with a Diffuse Intrinsic Pontine Glioma. Shortly afterwards he began a clinical trial at Duke for treatment using radiation and Zarnesta. He bravely fought this brain cancer for 10 months, living and loving with great enthusiasm. He passed away peacefully on October 13, 2007. Simon greatly impacted everyone he met.

Journal

Sunday, February 22, 2009 10:11 PM, CST


Hello everyone. We spent today especially thinking about and celebrating the life of our Simon. It was six years ago that he entered the world, all 8 pounds, 12 ounces. On that day, we certainly did not know how amazingly special he was, or the journey we had in store.

We remember Simon's gentle and loving spirit, who always had a kind word for his friends (which was everyone). He had such enthusiasm for whatever he was doing, and he was always busy doing something. We think of Simon's sweet and knowing smile; a sign of some mischief to come. We especially remember the sound of Ethan and Simon's laughter throughout the house.

We are so thankful for our son. He was amazingly courageous, funny, and loving; an incredible combination. Today we celebrate his entry into our family, something we will always be eternally grateful for.

So of course we had spaghetti and meatballs, followed by cake. We released 6 balloons, one of which contained a note to Simon from his family- mostly a message from Ethan- telling him how much we love him. Thank you again for your friendship and support.


Guestbook

Guestbook signed 0 times today.


We cherish your messages. Take a moment to write a note in our guestbook or read entries from other visitors.

16434 VISITS FROM FAMILY AND FRIENDS

HELP SOMEONE ELSE WHEN THEY NEED IT MOST

Tell a Friend about CaringBridge.

Help CaringBridge provide this free service to others who need similar support.

TRIBUTE DONATIONS TO CARINGBRIDGE

Read the caring tributes in honor of Simon.

Make a Donation in tribute to Simon to provide CaringBridge to all families who need it.