Simon Aliotta
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Simon was diagosed on December 26, 2006 with a Diffuse Intrinsic Pontine Glioma. Shortly afterwards he began a clinical trial at Duke for treatment using radiation and Zarnesta. He bravely fought this brain cancer for 10 months, living and loving with great enthusiasm. He passed away peacefully on October 13, 2007. Simon greatly impacted everyone he met.

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  SUNDAY, OCTOBER 12, 2008 10:19 PM, CDT
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Hello everyone. As many of you are aware, tomorrow marks the first anniversary of Simon's death. It is a good time to reflect on the past year and the legacy that Simon has left.

I recently found this poem (author unknown) and it says things far more eloquently than I certainly can.

A Death Has Occurred

A death has occurred and everything has changed. We are painfully aware that life can never be the same again, that yesterday is over, that relationships once rich have ended. But there is another way to look upon this truth. If life now went on the same, without the presence of the one who has died, we could only conclude that the life we remember made no contribution, filled no space, meant nothing. The fact that this person left behind a place that cannot be filled is a high tribute to this individual. Life can be the same after a trinket has been lost, but never after the loss of a treasure.

Our lives have certainly changed without Simon, for he truly was a treasure. He was a sweet and kind boy, who loved his family and friends with great enthusiasm. One of my favorite art projects by Simon is a Mother's Day card where his teacher had started the writing on the card with "I love my mother because..." and the 4 year olds were to dictate the reason why. Simon had her finish it with because "I love her!!!" He did not need a reason to love someone, he simply loved. He truly personified the loving spirit.

Simon's spirit still lives on in our family. We work on keeping his memory alive for Ethan. As the twins get older, we will share stories of their funny and courageous older who loved them. Charlie and Sophia look at pictures of Simon and are very curious. They love the large poster size picture of Ethan and Simon laughing that we had made for Simon's services.

I want to thank everyone for their love and support during this journey. Please know that we greatly appreciate it and are so thankful to have you in our lives.

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EMAIL AUTHOR
susannaaliotta@yahoo.com