My Story

HI My Name is Shelly Wallace and In October of 2005 I was diagnosed with an awful disease called Krabbes. Since then Ive had a bonemarrow transplant. Im now 6 years old and still working hard everyday to fight the affects of my disease and I still find a way to keep the beautiful smile on my face.

Journal

Thursday, December 4, 2008 7:26 PM, CST


Hello everyone sorry I know its been a very long time since i updated but i didnt have internet but anyways shelly is doing wonderful her immune is still low because she is still on some immune suppressants for her cgvhd but other than that she is good her legs are very stiff and she can only use her thumb and her first finger on her hands but her speech is improving and she is going to school 3 days a week half a day and she loves it cause she is in a special room with five other kids with disabbilites like hers and she loves having friends. She is still always smiling and happy unless she doesnt get her way which isnt too often cause she is so irressitable i cant tell her no unless its gonna hurt her I feel so lucky to have her she is the greatest gift in my life she brings so much joy and happiness to my life its simply unbelievable I wish all the other families going through all these awful things with this disease and any other disease the very best cause ive learned u take it one day at a time and enjoy every moment you have with your children cause they trully are a gift from god.

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E-MAIL AUTHOR

peaches31978@yahoo.com

HOSPITAL INFORMATION

Childrens Medical Center, Cincinnati Oh
Cincinnati, Ohio 453, OH

(513) 636-4200