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Shelby’s Story

Shelby was born on March 20th, 2007 at 11:39am. A little over 24hrs she turned blue in the face and I paged a nurse. Thank God we hadn't left the hospital yet. She was taken to the NICU at New Hanover Regional Medical Center and flown to UNC Chapel Hill that same day. We were told that she was diagnosed with Hypoplastic Left Heart Syndrome.

While in the NICU she was placed on a venilator. She was taken off it on Sunday March 24th and I got to hold her for the very first time since March 21st. On Friday March 30th, Dr. Mills, Pediatric Cardiologist, preformed her first open heart surgery call the Norwood Procedure. He was so impressed with how her body handled the surgery, he went ahead and closed her chest. Later that night Shelby's heart began to swell, her blood preassure dropped, and her heart raced so he was called back in to re-open her chest.The angels watched over her that night. On Monday April 9th, she was moved out of the Pediatric ICU to the Childrens Intermediate Cardiac Care Unit. On Friday March 13th, we noticed that Shelby was turning yellow. It took 2 days of me complaing for them to test her billy rubin (sp?). On Tuesday the 17th, she was diagnosed with another rare condition called a choleductal cyst. It is a cyst between her liver and gallbladder. She also had an obstruction inthe bile duct right before it emptied into her intestines. A drainage tube was placed to drain the bile out of her body. She will have surgery to remove her gallbladder and the cyst on June 21st, 2007. The doctors didn't want to chance another surgery so close to her last heart surgery. On Wednesday March 25th, I got to feed Shelby for the first time ever with a bottle. Finally, on Wednesday March 2nd Shelby was discharged and got to come home for her very first time ever.

Latest Journal Update

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This year has been a hard one on this family, but this day before Thanksgiving all I can think of are the things that I am thankful for. I am thankful that our family is still whole and each and every one of us is healthy. Shelby is doing awesome and Brianna and Katie are too. I love my family so much and feel so blessed to have them. Ben and I have had our struggles in life but have always clung to eachother. I love him more everyday!

Shelby is going to be featured in the local magazine Focus on the Coast for the January/February issue. I thank God that he gave me the gift of gab and that I may touch the lives of others who are just starting out on their journey as a heart family. The more I do to promote CHD awareness the more I feel I am living up to my purpose in life.

I just want to say Happy Thanksgiving to you all and thank you for always being there for us. We love you all!