Shea Bristow
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What we thought were simply childhood dislocations, growth spurts, and hormonal migraines turned out to be so much more.
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  TUESDAY, DECEMBER 30, 2008 11:42 PM, CST
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Tomorrow Is New Year Eve. I hope everyone has had a great 2008. It has been a rough year for me. I have had 12 surgerys and 6 New Diagnoses to go along with the ones I already have. I have made some new Friends over the computer. I am Thankful for all my Friends But I am really Glad God put Kolleen, Gwen, Melissa, and Holly

I Found out today that I do NOT have Hepatitis C. My body was in some kind of shock from some kind of virus that My body was fighting off. Im glad I dont have it but We are back to square one. Im on 3 different Nausea Medicine. I still have been waking up throwing up. I have drained my tummy, had my meds and still get sick. I havent been able to sleep very well. I get my best sleep from 8am - noon - 4pm. When Im sick I go lay down with my heated mattress pad and a heating pad. I am still very warn down. My PCP Has ordered a bunch of new blood work to see if anything shows up. I also have been running a fiver from 99.0 - 101.4 for the past month. I also have rash's

We went to my Pain Dr today and When he gets back from his Vacation Im gonna go back and have Day surgery. Its called Racz and He goes in and puts a catheter in my back between the Dura and spine. He will slowly injects a solution into my back around my scar tissue (From back surgery) In hopes of breaking it up. He could hit the Dura witch is very thin in people with EDS. If he hits that I would leak out spinal Fulid. He would then have to do something about that and I would prob. have to be put in the hospital. I would get a really bad Spinal Headache.

I have found out that I LOVE THE BOOKS that are FOR 'dummies' My mom got me a 'ipod & iTunes for Dummies' and its great. I also got one for Hepatitis C. They are really helpfuly books.

Kolleen Thank you for my Christmas Gift.

Does anyone want a Picture Of Cindy & I from our Cruise? If so let me know and what size. I also need yourr addresses You can send that too me on E-mail so its more private. If you have a cell with texting on it, Can I have your number also. YOu can also send that by E-mail. JohnDeere8906@aim.com is my e-mail and My cell number is 817-313-8168

Thank you so much for all of your prayers and Encouragement It has helped more then you know. At times im not able to read all of your messages. Especial the long ones.. Im Sorry.

I have 2 pair of Glasses. One for seeing Par and one for Reading and computer. Well my Normal glasses where getting harder and harder for me too see out of it. So I started wearing my reading glasses and the Other day the whole long ear piece broke off right up by my glasses frame so i cant screw it back on. So I taped it but it isnt sitting right on my face and all of that.. Im gonna have to get it fixed.

Also I got my neck jurked pretty good last week and ever since then I have had really bad chiari headache and My neck has been killing me. Typing just this much My neck is killing me from it. Its all making me lighted headed, dizzy, Neck killin me a LOT I really do feel like a bobble head. Some days I cant hold it up..

My stitches that helped hold in my J-Tube, Broke last week. Im having to watch It with my tape and everything so it wont get pulled out...

Well I think thats about it sorry it was long.

I got to take cindy to the vet for shots next month. I really think cindy is having sympathy pains. Shes been farting and sick to her tummy.. I feel bad for her. The past few nights she comes and lays right by me so i can hold her Or she lays on me.

Cindys groomers Quit what they where doing on the weekends because they both work during the week, Had the groomers on weekends and They show there Stander Poodles. They had no them time. So they are quitting and another lady is gonna take over. I really liked them and they are keeping just a few handpul of people at there house. Cindy and I are one of the few who they are gonna keep on Grooming at there house for us at the discount price. They dont live too far away so that is soooooooooo awesome. God works in Funny ways..

Thanks again
Love ya'll
Happy NEW YEAR EVE.
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Thanks,

Shea and Cindy

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EMAIL AUTHOR
johndeere8906@aim.com

HOSPITAL INFORMATION
The Chiari Institute
865 Northern Blvd
Great Neck, NY 11021
United States
516-570-4400