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My Story

Amy, Alex, Seth and I would like to thank everyone for the support they have shown us. It means a lot to us to have the support from you all and makes the pain of this experience that much less.

This site has been created to keep friends and family updated about Seth, I will update it as much as I possible can. Thank you for your love and support.

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When Seth was four months old his doctor noticed a little bump on his back. The bump was very small and that was actually the first time Amy and I noticed it. The doctors decided to wait a few months to see if it would go away or grow larger. At his six month checkup the bump had grown proportionate to Seth’s growth. Not sure what was going on Amy pushed to just have a specialist look at it. They did an ultrasound on the bump and still could not determine what it was. Things looked positive because it was not over his spine and was not connected to any muscle. The oncologist decided to have a surgeon look at Seth; all three doctors decided to just have the bump removed and then we would know exactly what it was. At this point we were thinking a calcium deposit or a fatty mass. Seth procedure was scheduled for January 26th, 2007; mom and dad took Seth in early on that morning to Marshfield Clinics Ambulatory Surgery. After going through all of the check-in and pre-op stuff it was time for us to hand him over, very difficult. Everything went smooth and in no time at all we were holding Seth again. By the next day Seth was completely acting like normal. Not knowing how things were going to go we arranged to keep Seth home the following week. My day to spend with Seth was Monday, January 29th, 2007. A day Amy and I will never forget. The day went great – play, eat, sleep, diaper, eat, play, sleep, diaper, and all over again. At the phone rang and it was Dr. McManus, he received the test results back from the bump. He began to explain things using words I have never heard before like Neuroblastoma and words I did not want to hear like tumor. Everything after that point was just a blur and we agreed to speak the following day. Amy arrived home an hour later and I tried to explain things to her. Amy working in the medical field had lots of questions that I wish I would have asked. The next day she spoke with the doctors and they confirmed that Seth had Neuroblastoma cancer. A parents worst nightmare! Neuroblastoma is a type of cancer that is found in young children and there are approximately only 650 new cases in the US annually. It occurs in the immature cells, called neuroblasts, of the sympathetic nervous system. We took Seth in that Tuesday and started all the test. First it was the chest x-ray, bad news, they found a tumor located in his chest. On Wednesday was the CT scan, more bad news, they determined Seth had tumors in his adrenal gland and small spots in his liver. These were very difficult days for everyone.

Amy and I are confident our doctor, Dr. Michael McManus and his staff, they have been outstanding. We are working with Children’s Oncology Group and CureSearch to make sure we have all the right answers. We are truly blessed to have family and friends to help us get thru this hard time. We thank-you from the bottom of our hearts for all the support and prayers you have given us. We wouldn’t be able to do this without family, friends and God. Thank-you!

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