Sorry its been so long since an update, especially since the last update was so grim on our family life....
We have all been through so much, and we all grieve differently and hold our own regrets and have our own "moments". Mike and I were on separate pages, and falling further apart quickly, but in the middle of a horrible time of hate and sorrow and all the feelings we had separately and not able to understand or share with each other....we found each other again. We have talked and worked out things, and we have shared all the feelings and fears and regrets that we each have for Seth and the last 2-3 years....we are on the same page again, and it has been so long...it didn't fall apart in a day, it happened slowly over the last 2 years. But we are happy again, the kids are happy again, home life is good, and we are all trying to move forward in a good direction together, openly and honestly, and it feels good.
We are getting back to the Hearts of hope bus, and are looking forward to doing good things with it.
We will always fight for Children with Cancer, and always share our story of Seth and his journey, and all the kids we met and loved along the way. We will always at any opportunity raise awareness,say a prayer,give a toy, donate blood, or donate time. This IS part of our life, and always will be.....it is the part that brought us not only so much pain, but also so much love and joy. It is the part where our baby boy, so sweet and so special and so full of love and laughter showed us what is really important in this life....he showed us that there may not be a lot of time, but it can be full of love and happy memories, and that even when things are so bad, in the end you will treasure every moment. He taught us to be brave and strong and kind and loving. I don't think we can ever be as brave and strong as he was, but we can try. Seth has changed our lives in a way that I can not  even put into words....and we got lost for a while, but we have found our way back. We miss him so much, our life will never be the same.