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Saylor’s Story

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Hi, my name is Saylor Voris.   Two weeks after school started, 2013, my Sophomore year at San Clemente High School, I got some weird swore throat and cold that would not go away for over a week and I started to get real tired.    I also noticed I had this kind of bug bite on my leg that started to look really bad.  I showed my parents and they said, “If you still feel bad in the morning, we'll take you to the Doctor.”   That was Sunday, September 15th.  Well, by morning my leg was so hot and painful, I could barely walk on it.   Dad was already at work, so Mom rushed me right over to Saddleback Hospital here in San Clemente.   They did not like what they saw and said my Blood Pressure was very low.   By the time the ER Doctor got me stabilized, they were getting the Blood results, and they did not look good.   They were not exactly sure what was going on, but they needed me transferred right away to the next closest Hospital with a Hematologist on staff, so off in an ambulance to Mission Hospital in Mission Viejo I went.

While there, they ran some more Blood work and found the same results, my White and Red Blood cells were “alarmingly” LOW.   The hematologist did not want to say for without a Bone Marrow Test, but, what they were basically telling my parents was that I have Leukemia.   Leukemia I thought!!!   Isn’t that CANCER?  

Well, one more Critical Care Ambulance transport later to Children’s Hospital of Orange County in the City of Orange, and a “quick” bone marrow aspiration later, and they confirmed it…  I have CANCER.

They told me it is a very, very, rare case of Leukemia.   Only 5% of all Childhood Leukemia cases in the nation are like mine.   Its call Acute Myelogenous Leukemia (AML) with a sub type M-7.

Knowing that I was no longer going to be the Head Cheerleader for the JV squad, I just started crying, and then I asked, “Will I be out of here in time for Winter Formal.”

****DONATION NOTIFICATION*****

To avoid feeling mislead, I just want to make it clear, if you click on the image to the right of the purple present that reads "THE PERFECT GIFT" your donation will go to support Caring Bridge and not Saylor.

If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Some of you have made donations to the Caring Bridge foundation with a "tribute" to Saylor. While these donations are always appreciated by Caring Bridge, Saylor is not the beneficiary.  Again, If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Please go to Saylor's Soldiers Facebook page http://www.facebook.com/saylors.soldiers to get details on fundraising events and to post pictures for the Saylor's Soldiers Album.

The Voris family wants you to know that they appreciate your support and words of hope and encouragement during this time when it matters most. 

Latest Journal Update

Steroids have taken there toll

It's official...! These Dam steroids have finally beat Saylor. I know. I should be grateful right. According to the research... (Which is minimal for childhood cancers) Prednisone is the main treatment for Graft vs. Hoist Disease... But really... Keep giving it until the bones crumble!!! Really....


Saylors latest MRI and X-rays show the right hip collapsed with fractures and the left just bone on bone.... She will under go a complete HIP REPLACEMENT on both sides as soon as they think her immune system can handle it. We - she is so upset about it. We were really hoping that rehab after steroids was going to save them but that isn't in the cards anymore.


Just think back, Saylor starting back in school.... Walking up the stairs when the school elevator was out... Standing, trying to do whatever cheer she could at the Triton games... And standing up greeting all her friends at her Superhero Party...all the while in Crazy pain that would have knocked most of us to our knees... I mean really...the top of her femur is cracked in several places and rubbing against her pelvis... And there she is again, trying to get up for the fiftieth time from the photo both she just had to have for her party, with yet another friend calling her.."take a picture with me Saylor".... Saylor smiling for her friend but in real physical pain.


Saylors outer body and now her inner have been seriously beaten up by the Cancer and the steroids, but one thing is for sure... Her Soul is flourishing and becoming the strongest and most beautiful thing I have ever witnessed.... She is truly my SuperHero!!
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Comentarios

12 Comentarios

Tina Boyer
By Tina Boyer
She is a remarkable girl! Sending love and prayers. xoxo
Tiffany Baggs
By Tiffany Baggs
She has been a beautiful girl inside and out since I have known her….
Saylor is tough as nails…
Here is the poem I sent you that sums up Saylor!

"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss and have found their way out of the depths. These persons have an appreciation, a sensitivity and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do NOT just happen. - Elizabeth Kubler Ross

Saylor is this kind of beautiful!!!!
Tammy Ross
By Tammy Ross
We continue to pray for Saylor and her family. Stay positive and know that everyone is rooting for this precious young life to get back to what life is really about, especially in your teens, having fun, being with your friends and family and doing what you love. xoxo The Ross Family
holly grant
By holly grant
Saying prayers for Saylor!!
Saylor Is In His Grip!!

Holly Grant
C.O.L.E.’s Prayer Team
www.colesfoundation.org
Michelle Crecelius
By Michelle Crecelius
Oh my gosh...I'm so sorry to read this :(. I hope the hip replacement gives her some relief from the pain.
Deanna W and Alexander Hays
By Deanna W and Alexander Hays
I'm so Sooo sorry that it has come to this. The steroids do rip up the body and it's hard some times to tell if it's a good thing or bad. I've known other young women (or at least one other young woman) also at CHO that had to have her hips replaced and a shoulder too... It's criminal that to live, our children have drugs that necessitate them to have these procedures while still in their teens and early 20s! My son is younger 7.5yrs - non verbal so he can't tell me but he still is not a fan of walking long distances and I wonder often if his legs hurt him because of all the steroids! It's crazy! Just take it one day at a time, Saylor! You're too young, but in the 70's there was a TV show the 6million dollar man.... and the Bionic Woman too. So maybe you can get a little smile out of being the new Bionic Woman... It sure isn't fair, but I hope and pray it goes well for you. Hang in there, kid.. the pics of your party look Amazing! Hugs form Irvine. -d
donna schielack
By donna schielack
Bless her sweet heart...I hear ya on steroids, they hit every part of your body. I fir yrs have has osteo/rhemo, then came cancer, when I stop chemo in July after 30 txx with steroids and being stable 25 months...I stopped due to stopped due to toxity of kidneys.Took about a month and wow I can move fingers much less more without at least a very small dose of prednisone like 3 mgs. I know the larger doses yrs ago for yrs caused osteo..The steroids are great and they are horrid at the same time. I have been off tx for 6 months, first trying for a trials 2 x's not enough tissue as they kept getting dead tissue. /so now after a month I will do a mock run Monday then proceed with sbrs (radiation on the only 3 tumors left) I am very scared and I can only image Saylor...there are days I cry myself silky and every night about while begging prayers for a longer life(I have made almost 36 months)and feel well, I simply cannot imagine being a teenager having a double hip replacement. Please know she remains in our prayers and on our hearts. Much love always
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1 person hearted this
Sandy Barker
By Sandy Barker
Yes, Saylor has so many battle wounds from her treatment, but her soul and character has blossomed into a caring, loving, determined hero!
We love you!!
Sandy
Richard Corder
By Rich Corder
I continue to pray for all of you. Saylor is a True Warrior and an Inspiration to all.
Kris Dillenbeck
By Kris Dillenbeck
Hi From Pennsylvania,
I am so sorry to hear of these side effects. My continued daily thoughts and prayers remain to be with Saylor and all of you.
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1 person hearted this