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Saylor’s Story

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Hi, my name is Saylor Voris.   Two weeks after school started, 2013, my Sophomore year at San Clemente High School, I got some weird swore throat and cold that would not go away for over a week and I started to get real tired.    I also noticed I had this kind of bug bite on my leg that started to look really bad.  I showed my parents and they said, “If you still feel bad in the morning, we'll take you to the Doctor.”   That was Sunday, September 15th.  Well, by morning my leg was so hot and painful, I could barely walk on it.   Dad was already at work, so Mom rushed me right over to Saddleback Hospital here in San Clemente.   They did not like what they saw and said my Blood Pressure was very low.   By the time the ER Doctor got me stabilized, they were getting the Blood results, and they did not look good.   They were not exactly sure what was going on, but they needed me transferred right away to the next closest Hospital with a Hematologist on staff, so off in an ambulance to Mission Hospital in Mission Viejo I went.

While there, they ran some more Blood work and found the same results, my White and Red Blood cells were “alarmingly” LOW.   The hematologist did not want to say for without a Bone Marrow Test, but, what they were basically telling my parents was that I have Leukemia.   Leukemia I thought!!!   Isn’t that CANCER?  

Well, one more Critical Care Ambulance transport later to Children’s Hospital of Orange County in the City of Orange, and a “quick” bone marrow aspiration later, and they confirmed it…  I have CANCER.

They told me it is a very, very, rare case of Leukemia.   Only 5% of all Childhood Leukemia cases in the nation are like mine.   Its call Acute Myelogenous Leukemia (AML) with a sub type M-7.

Knowing that I was no longer going to be the Head Cheerleader for the JV squad, I just started crying, and then I asked, “Will I be out of here in time for Winter Formal.”

****DONATION NOTIFICATION*****

To avoid feeling mislead, I just want to make it clear, if you click on the image to the right of the purple present that reads "THE PERFECT GIFT" your donation will go to support Caring Bridge and not Saylor.

If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Some of you have made donations to the Caring Bridge foundation with a "tribute" to Saylor. While these donations are always appreciated by Caring Bridge, Saylor is not the beneficiary.  Again, If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Please go to Saylor's Soldiers Facebook page http://www.facebook.com/saylors.soldiers to get details on fundraising events and to post pictures for the Saylor's Soldiers Album.

The Voris family wants you to know that they appreciate your support and words of hope and encouragement during this time when it matters most. 

Latest Journal Update

City of Hope treatment update

Wow, it seems like yesterday that Saylor was lighting the Christmas Tree in Old Town Orange.... Stolen from her bed in the middle of Chemo by the OFD and returned to finish another evening infusion. Well, it's been a full year from that moment and she still is suffering. GVHD is still the problem and the Doctors are saying she is not responding as quick as they hoped.




"She is not our typical case" they said.




Konnie and I told them we figured she wasn't going to be "typical".... Saylor is anything but TYPICAL...


I believe Saylor's is just going to take longer for her cells to "chill out" using the photopheresis treatment plan. 12-14 treatments will be a more realistic number from the 6-10 they were thinking...




Today is treatment #9 !!! Keep the positive energy and prayers for my girl... We are close, and I'm thinking another attempt at a steroid reduction is coming soon.




Love to all who are praying and following Saylor's Journey!!!
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Comentarios

14 Comentarios

Lindsay Drake
By Lindsay ♡
I love you say:)
♡ may my prayers be with you and your family ♡
Beverly Olson
By Beverly Olson, Cuyahoga Falls, OH
Still praying...will not quit!
Kris Dillenbeck
By Kris Dillenbeck
Daily Thoughts and Prayers are with Saylor.
Terry Wells
By Terry Wells
Continued prayers for your sweet Saylor!
Love and Peace from Ohio!
Terry Wells
Christian Macey
By Christian Macey
Thank you for the update(s) so we can always pray with specifics. Much love to you all!
Leslie Tangeman
By
Yes indeed we are all praying for sweet Saylor~ Love to all~ XXOO
The Tangeman family
<3
Laurie Masotto
By
You are in our prayers - Saylor's strength and spirit is amazing. Masotto family
Stacy Gerken
By Stacy Gerken
Praying for you Saylor! Xoxo
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1 person hearted this
Jennifer Benson
By Jennifer Benson
Sorry this fight is taking longer--but keep fighting! It's a marathon not a sprint, so save your strength and stay strong. Thinking of all of you.
Lori Garrett
By Lori Garrett
Saylor is never far from my mind and is always in my prayers! Love your family! Keep fighting Saylor you got this!
Love, The Garrett's
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1 person hearted this