Saylor Voris's Journal
Liver ultrasound today
Written Mar 2, 2014 2:57pmAll looked good after Saylor's ultrasound. She has had some high numbers of Bilirubin, which can be a sign of some possible liver damage, but her numbers are trending down again already.
New fun stuff coming in, and I'm sure you will here a lot more about from Saylor's Soldiers, but I have to say thanks to the New Owners of the Yogurtland in San Clemente. It is next to Starbucks in the Ralph's Shopping Center on Los Mares.... And one of the VP's of Yogurtland, Larry Sidoti, which is an old High School bud of mine and brother Tom's...
MARCH 15 they will be giving away free yogurt all day in honor of Saylor and their Grand Opening... Larry's son is Saylor's age and he wants to help. His office is supplying all the yogurt the store needs.... I don't think he knows how many friends Saylor has or how much San Clemente Loves yogurt. It will literally be FREE YOGURT for 8 hours!!!! (Or until it runs out) He is encouraging donations to Saylor's Life Long Medical Fund, and no money will go to Yogurtland.... But I would like to think this event is for all of the people who LOVE Saylor and want to be apart of something great. This is what San Clemente is all about... Friends-Families-and-Neighbors.
Myself or Konnie will be there with Saylor's Solders to say Hi and Thank you!!! We are also trying to give other kids a chance for a new life in Saylor's name with a Bone Marrow Be the Match screening table... I know already that Saylor has motivated close to 1000 people get on the registry already and I know in my heart that several people will be saved because of Saylor's journey... Thank You in advance...! John
16 days post Transplant
Written Mar 1, 2014 1:29pmHer Blood counts are going crazy now. ANC 1600 today!!! Her pain is much lower and the sores are starting to heal!
Still having trouble with Blood Pressures and keeping food down, but all considered, we are ahead of the game.
Now we are dealing with the engraftment phase... This is the Big Stuff. We are watching her Bilirubin totals in her liver. Her numbers here are starting to jump (not good), but really, it's only a one day trend... Which can mean nothing right now.
So, more to come... but just the vibes I get from most of the staff here is that Saylor is a Rock Star (super strong) and getting through this Great!!!
Big I miss you!! from Saylor
Written Feb 26, 2014 10:28amHey, its 13 days post BMT... Saylor is fighting the good fight. All kinds of infections and sores she's dealing with right now. She has been able to eat some, even with the pain from swallowing. She doesn't sleep much due to the pain and nausea from the pain meds. ( tough balance) We think her blood counts should be coming up in a day or two, then maybe a few days of the body really starting to fight these secondary things. Going to be a tough weekend for her and everyone around her. Pray on my friends, better days ARE coming.