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Saylor’s Story

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Hi, my name is Saylor Voris.   Two weeks after school started, 2013, my Sophomore year at San Clemente High School, I got some weird swore throat and cold that would not go away for over a week and I started to get real tired.    I also noticed I had this kind of bug bite on my leg that started to look really bad.  I showed my parents and they said, “If you still feel bad in the morning, we'll take you to the Doctor.”   That was Sunday, September 15th.  Well, by morning my leg was so hot and painful, I could barely walk on it.   Dad was already at work, so Mom rushed me right over to Saddleback Hospital here in San Clemente.   They did not like what they saw and said my Blood Pressure was very low.   By the time the ER Doctor got me stabilized, they were getting the Blood results, and they did not look good.   They were not exactly sure what was going on, but they needed me transferred right away to the next closest Hospital with a Hematologist on staff, so off in an ambulance to Mission Hospital in Mission Viejo I went.

While there, they ran some more Blood work and found the same results, my White and Red Blood cells were “alarmingly” LOW.   The hematologist did not want to say for without a Bone Marrow Test, but, what they were basically telling my parents was that I have Leukemia.   Leukemia I thought!!!   Isn’t that CANCER?  

Well, one more Critical Care Ambulance transport later to Children’s Hospital of Orange County in the City of Orange, and a “quick” bone marrow aspiration later, and they confirmed it…  I have CANCER.

They told me it is a very, very, rare case of Leukemia.   Only 5% of all Childhood Leukemia cases in the nation are like mine.   Its call Acute Myelogenous Leukemia (AML) with a sub type M-7.

Knowing that I was no longer going to be the Head Cheerleader for the JV squad, I just started crying, and then I asked, “Will I be out of here in time for Winter Formal.”

****DONATION NOTIFICATION*****

To avoid feeling mislead, I just want to make it clear, if you click on the image to the right of the purple present that reads "THE PERFECT GIFT" your donation will go to support Caring Bridge and not Saylor.

If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Some of you have made donations to the Caring Bridge foundation with a "tribute" to Saylor. While these donations are always appreciated by Caring Bridge, Saylor is not the beneficiary.  Again, If you would like to DONATE DIRECTLY TO SAYLOR go to: http://www.gofundme.com/Saylor-Voris 

Please go to Saylor's Soldiers Facebook page http://www.facebook.com/saylors.soldiers to get details on fundraising events and to post pictures for the Saylor's Soldiers Album.

The Voris family wants you to know that they appreciate your support and words of hope and encouragement during this time when it matters most. 

Latest Journal Update

Saylor's Fight Continues

Hi everyone - I know it's been a while since we last posted, but I think it's important to keep our family and friends updated on what is happening with Saylor.  But first, we want to thank everyone for your continued support of our girl.  It's been a pretty stressful and emotional 17 months, something we would not wish on our worst enemy.  This ordeal is far from over so we appreciate all the prayers and good wishes.

On February 14th, we celebrated the one year anniversary of Saylor's bone marrow transplant.  While this is definitely a GOOD thing, we are still dealing with the complications from the transplant, namely the GVHD.  Her doctors have tried various treatment plans but none seem to be working.  The steroids she is on have definitely taken a toll on her poor body.  As of today, her right hip is completely broken and we expect the left hip and one of her knees to follow suit.  She continues to have a rash over most of her body, which keeps her uncomfortable 24/7.  She has had about 22 treatments of Photophoresis to combat GVHD.  And if all that wasn't enough, she's also gone through eight rounds of chemo in the last couple of months.  What she wouldn't give for one night, or even one day, of no pain. 

We are still up at City of Hope at least once a week.  Those are extremely long days, but we gladly do it to help our girl.  We so appreciate her new team of doctors continuing to search for treatment options for her. 

This battle has also affected our boy, Sam.  No, he's not the one afflicted with cancer, but he is struggling as well.  The whole family is very emotional these days, so words that aren't meant to be harsh are sometimes taken that way.  Every day is a struggle for Saylor and us as a family. Cancer patients go through so much every day and so do their caretakers. We appreciate all the positive thoughts and comments...those are the words we have to hold on to.  

We will be facing some major decisions in the coming weeks.  Please keep our family in your thoughts so that we make the right choices for Saylor, Sam and the rest of our family.  As always, your prayers and support mean the world to us.  "Good things come to those who believe.  Better things come to those who are patient.  And the best things come to those who don't give up."  We can't give up, not today, not ever.  So....I guess the best is yet to come.  We love you all - Konnie
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Comments

14 Comments

Susan Goggins
By Susan Goggins
Dear Voris Family - thinking of you and sending prayers today, and every day.
Terri Valentine
By Terri Valentine
Hello dear Voris'

I want you to know I am thinking if you all and will ask my bible study ladies to pray for you all. For peace, calm, strength and the good health Saylor has been working so hard for. My love to you all and please let me know if I can ever be if assistance.
dana riddle
By dana riddle
dearest voris clan, there are no words that can be said of what you all have endured for 17 long months. You need peace and the normal crazy every day just running kids around having a coffee going for a walk and making a fun dinner. sam needs to be with buds, maybe even saying a bad word, breaking a vase with a baseball bat from a ball through the window. Saylor needs to drive and go to the beach maybe even kissing a cute boy sorry John. I know this sounds outlandish but these things will come. This damn curveball you keep have happening will end up in a homerun and you will win this crazy game and mercy cancer. Prayer is key and try as hard as you possibly can to be patient. Way easier said then done. You are in my thoughts daily. love you all so much dana
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1 person hearted this
Steve and Dana Petersen
By Dana Petersen
❤️
Julie Mincenberg
By julie mincenberg
hello,

always expect the unexpected. when something goes wrong, do not expect something else to go wrong. expect things to go right. God can turn any situation around. i am sorry that you're going through these trials. everything is a test and a trial of our faith, our patience, and our endurance. i continue to pray for you, Saylor and your family. keep the faith. God bless you during these difficult times.
Kris Dillenbeck
By Kris Dillenbeck
Not a day goes by that Saylor and the entire family isn't in my thoughts and prayers and I will continue to pray for you.
Danielle Nelson
By danielle nelson
I think of Saylor regularly and wish and pray for your courageous daughter to keep her spirits high, which I know is ridiculous to ask given what she has gone through. No person, especially a child, or family should have to endure this much. Your son is also in my thoughts. I can't imagine how he is feeling, but let him know he isn't forgotten. ..even someone he's never met thinks about him and feels for what he is going through.
Kristen Nelson
By
Thanks for the post - i know it is hard to write. We will pray - think of you - be here for you. You are not alone and our hearts are heavy right now with your familys' struggle. Praying for peace in your decision making, wisdom, and strength. We love you. The Nelsons
Beverly Olson
By Beverly Olson, Cuyahoga Falls, OH
Thanks for the update Konnie. You all are surely going through some deep valleys. I hope it helps (just a little) to know that many, many people are praying for sweet, brave Saylor and for the Voris family.

Still praying...won't quit!
Terry Wells
By Terry Wells
God bless you and your sweet family. You will be in my thoughts and prayers.
Love and Peace,
Terry Wells