My Story

Savannah has Cystic Fibrosis, Mild Cerebral Palsy, Secondary Carnitine Deficiency and IgA Deficiency, Hashimoto's,and a Pituitary Microadenoma.  She takes multiple medications daily and continues to have multiple hospitalizations yearly.

GREAT STRIDES



 

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Julie Remington posted a new journal entry, "Never Ending!!!".

Hello Everyone, Savannah didn't even make it to her hospital follow up before needing to go to the ER. She was having trouble breathing and coughing non stop.I took her ... Read more

Lynn Worley signed Savannah's Guestbook.

Am Continuing to lift up prayers!2 Corinthians 1:3-5 Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; Who ... Read more

Lynn Worley signed Savannah's Guestbook.

The Lord is on your side! Know that I'm here praying!Psalms 118:4-6 Let them now that fear the LORD say, that his mercy endureth for ever. I called upon the LORD in ... Read more

Lynn Worley signed Savannah's Guestbook.

We're in the Lord's Hands. Praying!Psalms 139:7-10 Whither shall I go from thy spirit? or whither shall I flee from thy presence? If I ascend up into heaven, thou art ... Read more

Lynn Worley signed Savannah's Guestbook.

Keep your eyes on the Lord! Always lifting up prayers!2 Samuel 22:2-3, 7 And he said, The LORD is my rock, and my fortress, and my deliverer; The God of my rock; in him ... Read more

Julie Remington posted a new journal entry, "Home!!!".

Hello Everyone,I would have posted sooner but after we got home my husband told me our internet was down. :(Savannah was discharged this afternoon w/o IV's. I did get to ... Read more

Julie Remington posted a new journal entry, "Insurance Issues...".

Hello Everyone,Savannah is scheduled to be discharged on Tuesday afternoon/evening.At this time she will NOT be going home on home IV's.Her insurance won't cover them. I ... Read more

Lynn Worley signed Savannah's Guestbook.

Praying hard right now.Jeremiah 29:11-13 For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end. ... Read more

Julie Remington posted a new journal entry, "Moved.....".

Hello Everyone,Savannah is officially now in room #753. When transport came up to move her three guys showed up. So, instead of "Two Guys and a Truck" we had Three Guys ... Read more

Julie Remington posted a new journal entry, "New Floor??".

Hello Everyone,Dr. C has put in a request for Savannah to be moved to 7W tomorrow.We pray they have a room for her.Savannah seems to be feeling better.I'll update more ... Read more

Julie Remington posted a new journal entry, "Nightmare on 12 E.....".

Hello Everyone,Praying for a stress free night. Last night was a nightmare:( First, we realized S was allergic to one of her IV antibiotics. 2) We were awaken by an Aide ... Read more

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