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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update

Hospital Follow Up Appointment.....

Hello Everyone,

Savannah saw Dr. C on Tuesday evening.
Most of her lab work came back fine except her white blood count is still up and her potassium was still
a bit low, Still don't know what her Vit. D levels are.
The good news is that her tumor on her pituitary is being managed by medication.

Savannah will continue on an oral antibiotic.

Savannah's PFT's have dropped again. This is both her FEV1 and lung volume.
Hopefully this trend will stop. Not sure what her new baseline is right now.
She will have fer FEV1 checked again next month.

Thanks for all the continued support and prayers.

Take Care,
Julie (Savannah's Mom)
5 people hearted this



Bonnie Ermilio
By Bonnie Ermilio
I'm so happy to hear that Savannah's tumor on her pituitary is being helped by the medication she's taking. I'm sending LOTS and LOTS of hugs, kisses and prayers to Savannah. I hope the doctors can resolve all that's happening to Savannah. I so adore her!!!
Lynn Worley
By Lynn Worley
Lifting up prayers right now!
Psalms 28:8-9 The LORD is their strength, and he is the saving strength of his anointed. Save thy people, and bless thine inheritance: feed them also, and lift them up for ever.
Nichole Clemens
By Nichole Clemens
Know that you are in our hearts and prayers beautiful young lady. Continuing to stand on God's word with you. Love you dearly!
Billie & Nichole
Pamela Finch
By Mrs. Pam
You are a real trooper, Savannah!
Beth Mize
By Beth Mize
Continuing to pray for Sweet Savannah.
I hope she feels better soon.
Praying for you too Julie and your family.
Beth PICU RN Georgia
1 person hearted this
Lucel-Melody Wings
By Lu
Yes, prayers most definitely continuing to flow strong and steady.
As always, thank you for keeping us updated.
Much Love & Warm Support
1 person hearted this