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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

http://fightcf.cff.org/site/TR/GreatStrides/113_Sooner_Tulsa?team_id=38506&pg=team&fr_id=3502


Latest Journal Update

Great Strides Walk....

Hello Everyone,

Though Savannah will NOT be attending our local Great Strides Walk this year I still wanted everyone
to have a chance to donate if you wanted to.
Here is the link: http://fightcf.cff.org/site/TR/GreatStrides/113_Sooner_Tulsa?team_id=38506&pg=team&fr_id=3502
I will also post it on "My Story" as well.

Things are going okay for Savannah.

Danny's Mom has now been moved to A Rehab hospital.
Still not sure about her heart just yet. She will continue on 3 IV antibiotics for a while yet.

Thanks for all the continued prayers.

Take Care,
Julie (Savannah's Mom)

Comments

4 Comments

Margaret Kyles
By
Best wishes for Savannah and for Danny's Mom also. Give me a call when you can Julie. I would love to chat with you sometime soon. God bless you. (((HUGS))) for you and Savannah.
Lynn Worley
By Lynn Worley
What a powerful passage! This is my prayer for you!
Psalms 107:28-31 Then they cry unto the LORD in their trouble, and he bringeth them out of their distresses. He maketh the storm a calm, so that the waves thereof are still. Then are they glad because they be quiet; so he bringeth them unto their desired haven. Oh that men would praise the LORD for his goodness, and for his wonderful works to the children of men!
Bonnie Ermilio
By Bonnie Ermilio
Hi, Julie. I'm happy to hear that Savannah is doing okay. She's so precious.
I'm sending prayers to Savannah and Danny's mom!!!!
Lucel-Melody Wings
By Lu
Thanks for the update. Prayers continuing to flow.