Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update


Hello Everyone,

Sorry, I didn't get a chance to update yesterday.

Savannah FINALLY received her port.
Even though there was still some communication issues with the surgery team Savannah has done well.
She is almost back to her normal self now that she has been able to shower. :)

This has pushed her discharge date back and we will know more by this weekend.

I can NOT that everyone enough for all the prayers.

Take Care,
Julie (Savannah's Mom)
3 people hearted this



Lynn Worley
The only true hope comes from the Lord! Praying in Seattle!
Romans 15:4, 13 For whatsoever things were written aforetime were written for our learning, that we through patience and comfort of the scriptures might have hope. (13) Now the God of hope fill you with all joy and peace in believing, that ye may abound in hope, through the power of the Holy Ghost.
Jennifer Green
By Jennifer Green
So glad that Savannah has received her new port.
Jennifer Green
C.O.L.E.’s Prayer Team
Elaine Mattingly
By Elaine Mattingly
I'm sorry I posted such harse words the other day. I see Savanna did get help and am thankfull she has a calm family to depend on.
Pamela Finch
By Mrs. Pam
good new, for sure!
Lynn Worley
True peace comes only from the Lord. Lifting up prayer!
Romans 5:1-4 Therefore being justified by faith, we have peace with God through our Lord Jesus Christ: By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God. And not only so, but we glory in tribulations also: knowing that tribulation worketh patience; And patience, experience; and experience, hope.
1 person hearted this
Rhonda Lawes
Hey Julie and Savannah,
I'm so glad to hear that things are continuing to improve! This sure has been a wild ride this time.
I'm ready to bring some food by - start thinking about what sounds the best to you.

1 person hearted this
Marnie Peck
By Marnie
Yay!! So glad things are looking up! :)
1 person hearted this
Lucel-Melody Wings
By Lu
Sorry communication's still stinkful, but thrilled to hear your port is in! NOW may the healing begin! Prayer-songs continuing to flow!
Sandy Daron
YEA!!! Great news!!! I pray she will begin to feel better!!

Love ya,
C.O.L.E.s Foundation
(Caring Openly, Loving Eternally)
Sandy Daron