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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update

We Have a Plan........

Hello Everyone,

We finally have a plan to hopefully get Savannah feeling better.
She has been on two oral antibiotics for a month now.
She wasn't feeling any better and we kept in touch with her doctors.
She saw Dr. C on Friday evening and he wanted to admit her.
Savannah advocated for herself and said since we have waited this long
I want to wait until after my midterms.
Dr. C explained what waiting could mean but Savannah wouldn't budge.
So he finally agreed and changed her antibiotic and told her after her last exam to head to the hospital.
So admit day is March 12th after her Japanese exam.
I just pray she feels well enough to do well.

This winter has not been kind to our family.
Miranda (older sister) was fighting off both the flu and RSV.
Then Danny (Dad) had Mono.
I ended up with a Migraine that lasted for a couple of days trying to be a nurse to everyone.

I know I'm leaving things out but honestly I'm just to beat to worry about it. :)

Thanks for the continued support/love and prayers.

Take Care,
Julie (Savannah's Mom)
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Comments

9 Comments

Pamela Finch
By Mrs. Pam
Savannah
you are such a trooper!
I know you'll do well on your exam.
praying for you to feel better, too.
Elaine Mattingly
By Elaine Mattingly
It's amazing the way people with almost insurmountable , real life facts state so simply what is going on in a calm manner. It's as if Christ surrounds them with an ability to make even the most trying times pleasant, beautiful and a good memory. A raging storm all around and they accept the way things are and trust that God will maybe not change things but give them the strength to go through in a dignified manner. Creed said," You are in the middle of the thorn bush. If you go back you still have to face it and try again or keep going through to the other side and consider it a victory." Savannah does that and we will celebrate her high score.
Jennifer Green
By Jennifer Green
Praying Savannah feels well enough to do well on her midterms, and that the whole family begins feeling better ASAP.
Jennifer Green
c.o.l.e's prayer team
www.colesfoundation.org/
Margaret Kyles
By Margaret Kyles
I love ya Sis and sure hope Savannah does feel better soon! And hope the rest of the family there all are well soon. Take care.
Ginger Nethercot
By Ginger
Sending prayers to all
Linda Resinger
By Linda Resinger
Keeping the prayers going for Savannah. She deserves to feel good! Let's make that happen with our prayers! Blessings.......

Love, hugs and ladybugs
Bonnie Ermilio
By Bonnie Ermilio
Hi, Julie! It was one thing after another for your family. I hope everyone is almost better!
I'm so excited the doctor came up with a new plan for Savannah since the other wasn't working. I'm praying this one will get rid of her problems.
I wish Savannah good luck on her midterms! She really likes Japanese.
I don't know how you managed with a migraine. I'm on a daily medication for migraines and if I get one, I'm in bed, dark room, no sounds and the pillow feels like a rock. I take deep breaths and try to go to sleep no matter what time it is. You're amazing!
Savannah is always on my mind and I adore her so. I'm sending LOTS of hugs, prayers and love to all of you!
Love,
Bonnie
Beth Mize
By Beth Mize
Praying for Svannah
Rebekah.
Beth
Lucel-Melody Wings
By Lucel-Melody Wings
Golly, what a rough time your entire family has had! Whew! Bless you.
Hoping Savannah's feeling up to her Japanese exam. If so, then I'm confident she'll ACE it. You continue to be in my thoughts and prayers.....
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