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My Story

Savannah has Cystic Fibrosis, Mild Cerebral Palsy, Secondary Carnitine Deficiency and IgA Deficiency, Hashimoto's,and a Pituitary Microadenoma.  She takes multiple medications daily and continues to have multiple hospitalizations yearly.

GREAT STRIDES



 

Feed

Julie Remington posted a new journal entry, "Moved.....".

Hello Everyone,Savannah is officially now in room #753. When transport came up to move her three guys showed up. So, instead of "Two Guys and a Truck" we had Three Guys ... Read more

Julie Remington posted a new journal entry, "New Floor??".

Hello Everyone,Dr. C has put in a request for Savannah to be moved to 7W tomorrow.We pray they have a room for her.Savannah seems to be feeling better.I'll update more ... Read more

Julie Remington posted a new journal entry, "Nightmare on 12 E.....".

Hello Everyone,Praying for a stress free night. Last night was a nightmare:( First, we realized S was allergic to one of her IV antibiotics. 2) We were awaken by an Aide ... Read more

Terry Wilson signed Savannah's Guestbook.

Lots has been going on in the Remington family. Julie -- I'm so sorry for the loss if your sister. I am sending hugs and prayers to all of you. I hope this visit to St. ... Read more

Julie Remington posted a new journal entry, "Here We Go Again....".

Hello Everyone,Savannah has been admitted to St. John's Medical Center tonight.Due to high census count she has been placed on a new floor. This has been hard for her.Our ... Read more

Julie Remington posted a new journal entry, "Long Overdue Update....".

Hello Everyone,Sorry for getting behind on the updates.Savannah had a GREAT 21st. Birthday.I have started this more than once and kept getting interrupted.Savannah saw Dr. ... Read more

Lynn Worley signed Savannah's Guestbook.

Know that you're in my thoughts and prayers!Romans 5:6-9 For when we were yet without strength, in due time Christ died for the ungodly. For scarcely for a righteous man ... Read more

Lynn Worley signed Savannah's Guestbook.

Know that you're always, always in my thoughts and prayers!Psalms 27:7-9 Hear, O LORD, when I cry with my voice: have mercy also upon me, and answer me. When thou saidst, ... Read more

Lynn Worley signed Savannah's Guestbook.

Know that I'm here praying!Psalms 40:16-17 Let all those that seek thee rejoice and be glad in thee: let such as love thy salvation say continually, The LORD be magnified. ... Read more

Lynn Worley signed Savannah's Guestbook.

Know that you're in my thoughts and prayers!Revelation 7:16-17 They shall hunger no more, neither thirst any more; neither shall the sun light on them, nor any heat. For ... Read more

Lynn Worley signed Savannah's Guestbook.

Praying!Revelation 21:1-4 And I saw a new heaven and a new earth: for the first heaven and the first earth were passed away; and there was no more sea. And I John saw the ... Read more

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