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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update


Hello Everyone,

Savannah had her hospital follow up and she will be continuing the IV antibiotics. :(
This will be over a month of IV's and almost 3 months of being on antibiotics.

Savannah is back attending her Japanese class.
She is working hard to get caught up in her studies.

My Mom is back home in her nursing home.
She is HAPPY to be home again.

Thanks for all the continued support.

Take Care,
Julie (Savannah's Mom)
5 people hearted this



Bonnie Ermilio
By Bonnie Ermilio
Oh, Julie, I'm so happy to hear that your mom was able to go back to her nursing home.

It seems as though Savannah can't get rid of these infections. I feel so bad for her. I hope the medication that she's on will help her.

I think it's so great that she likes her Japanese class. Maybe you can write the Japanese embassy about Savannah and ask for a list of names and ages of Japanese children that might want a pen pal. I did this with my classes when I taught. It was great to learn about other countries and the kids loved having pen pals.

I'm sending Savannah LOTS of hugs and positive prayers!!!

I can't seem to catch up with my e-mails. I'm up to 689 e-mails! It was because we were away for 15 days. I'm so overwhelmed with them. When you start answering them you have to go to FB and then you get a pop-up and have to answer that and then go back to the one you were answering.
Pamela Finch
By Mrs. Pam
hope you do well with your Japanese, Savannah, and I'm glad that your grandma is happy to be back home
Lucel-Melody Wings
By Lu
Glad your Mom is settled happily back into her special space in the Nursing Home! Whew!
Sorry to hear Savannah's antibiotics must continue. Praying new ones are in the process of being created, so she does NOT have to continue on them for such extended periods of time. (STILL praying for a cure!).
Glad attendance in class has resumed......hope playing catch up is manageable.
Prayerful support and loads of love all continuing to flow steadily.....
Lynn Worley
By Lynn Worley
Glad she's able to do something she loves!
We have the hope of Heaven because of all Christ did. Praying!
Isaiah 53:11-12 He shall see of the travail of his soul, and shall be satisfied: by his knowledge shall my righteous servant justify many; for he shall bear their iniquities. Therefore will I divide him a portion with the great, and he shall divide the spoil with the strong; because he hath poured out his soul unto death: and he was numbered with the transgressors; and he bare the sin of many, and made intercession for the transgressors.