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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update

AVN Journey....

Hello Everyone,

Savannah is hating the loss of most of her independence,
Our house is NOT wheelchair friendly and the wheelchair Savannah has been using
isn't allowing her much independence.
She had an appointment to get measured for a chair more suited for her
but this is a lengthy process. It can take up to 9 weeks before her chair is ready.
I'll try to post pictures after she gets it. It will be bubble gum pink. :)

Savannah has picked up a nasty viral infection.
She had a flu/strep test ran this afternoon and both came back negative.
She is feeling miserable tonight.

Thanks for the extra prayers and support as we go through this AVN journey.

Take Care,
Julie (Savannah's Mom) .

6 people hearted this



Jennifer Green
By Jennifer Green
Praying Savannah's viral infection clears up quickly, and that the new wheelchair takes much less time to get here than nine weeks.
Jennifer Green
c.o.l.e.'s prayer team
Pamela Finch
By Mrs. Pam
hope you can find a better fitting wheelchair to use while waiting for your special order.
praying for you, sweetie
Lynn Worley
By Lynn Worley
Can't even imagine being stuck in a wheelchair all the time! Hope she can get a different one sooner than 9 weeks!
Look to the Lord no matter what you're going through! Praying!!!!!!!!!!!!!
Psalms 116:1-4 I love the LORD, because he hath heard my voice and my supplications. Because he hath inclined his ear unto me, therefore will I call upon him as long as I live. The sorrows of death compassed me, and the pains of hell gat hold upon me: I found trouble and sorrow. Then called I upon the name of the LORD; O LORD, I beseech thee, deliver my soul.
Linda Resinger
By Linda Resinger
Sorry to hear Sacannah about the wheelchair. Praying Savannah feels better and quickly. Blessings......

Love, hugs and ladybugs...
Marnie Peck
By Marnie
So sorry Savannah is feeling crummy. Hopefully all the stars will align and she will get her bubble gum pink chariot faster than 9 weeks! Pink is her signature color. :) Sending love and prayers..
1 person hearted this
Lucel-Melody Wings
By Lu
There are all sorts of things you can add to your w.chair, to make it more user-friendly. I'll brainstorm ideas with you, once I see what you have.
Sorry you're feeling miserable tonight, and a multitude of fronts. Hope you're able to knock that nasty viral infection out of the park BEFORE it takes a solid hold.
Luv Ya Gal, keep hanging in there!
1 person hearted this
Bonnie Ermilio
By Bonnie Ermilio
Hi, Julie! I'm so sorry to hear about the wheelchair not fitting through doorways and you have to wait many weeks to get the new one in pink. Ending up in a wheelchair and losing your independence is very depressing. I feel so bad for Savannah. Now she has a viral infection too. I hope she feels better. I'm sending her LOTS of hugs, love, and prayers!!!
1 person hearted this