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Savannah’s Story

Savannah is diagnosed with Selective IgA Deficiency, Cystic Fibrosis, Asthma, Perennial Nonallergic Rhinitis, Chronic Lymphocytic Thyroiditis (Hashimoto's), Pituitary Adenoma, Esophageal Reflux (GERD), Gastroparesis, Arthritis, Carnitine Deficiency, Cerebral Palsy (mild incoordination abnormalities), Atopic Dermatitis, Restrictive Lung Disease, Recurrent Infections, Anxiety and Depression.

Savannah takes multiple medications daily and has multiple hospitalizations during the year.

Latest Journal Update


Hello Everyone,

Yesterday evening Savannah was moved to an adult floor.
They needed her room on the Pediatric floor for a baby that caught the flu.
We are now in room 1410.

Savannah is doing well with the change.

Still no talk about being discharged.

Shayne, the wreath arrived. Thank you!!!

Take Care,
Julie (Savannah's Mom)
3 people hearted this



Lynn Worley
Glad the move didn't throw her for a loop!
Continuing to pray!
Jeremiah 29:11-13 For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end. Then shall ye call upon me, and ye shall go and pray unto me, and I will hearken unto you. And ye shall seek me, and find me, when ye shall search for me with all your heart.
1 person hearted this
Shayne Frankel
By Shayne
Hope she's able to have the wreath without it causing breathing/allergy issues. Merry Merry
1 person hearted this
Lucel-Melody Wings
Sorry you had to move floors. VERY impressed that you've been able to take it in stride. Here's hoping ALL the staff "get it right" so where you are can be a good thing.
Loving you and lifting you up in Prayer-Songs, as always.
1 person hearted this