Sarah Grace Handy
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Sarah has a very rare genetic disorder called GA-1. Read more about Sarah and her disorder below.

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  THURSDAY, MAY 01, 2008 02:40 PM, CDT
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April Update:

Sarah had an okay April. She battled an ear infection, but did not have to go to the hospital. Praise the Lord! . As of May 1 she is now under the REM (Rare and Expensive Medical) insurance program, so hopefully by the end of the year she will have the medical equipment she so badly needs. She continues to amaze us everyday. She has been showing interest in potty training:) She also sorted objects with her therapists the other day. It doesn't seem like a big deal until you think about the fact that she can't grab things or let go of them once she gets them. So she uses facial expressions and eye gazing.

She has her monthly Johns Hopkins check up next week. We are hoping to see some growth. Her last visit showed very little growth in height and weight loss. So they increased her formula quite a bit. When I see her with children her own age, I realize how small she really is. I think it is a blessing, though, since I have to carry her quite a bit.

We are still looking for a house. If we find something we like, there is usually one thing we can't live with. Usually it is a bathroom that is too small with nowhere for it to grow to accomodate a wheelchair. I hope we can find a house before next school year.

I hope everyone is enjoying the spring. I know Sarah Grace and her sisters are glad to be spending more time outside. Summer will be here before we know it. God bless you all and thank you for the continued prayers.

:)Dena

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HOSPITAL INFORMATION
John Hopkins
600 North Wolfe Street
Baltimore, MD 21287
United States
(800) 455-6467