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Sarah’s Story

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Latest Journal Update

Sorry so long to update!

I am so sorry that it has been so long to update... We needed to get through the school year, multiple doctor visits, etc etc..
I will try to wrap it all up in a quick nutshell...
We took Timmy to the doctor and it has been confirmed that he has Chiari as well.. However, his is just 3mm and the doctor does not feel concern about him right now... We are to bring him back in a year to have a follow up MRI.
Sarah has continued to have headaches here and there and will still get sick if she over does it.. 
We took her to a gastronologist and had a eposcopy and biopsy done.. thankfully nothing weird was found, he is trying an acid reducer for now and we go back August 1st. 
The neurologist gave her a prescription for a type of allergy med that he hopes helps the headaches... so far it doesn't seem to work.. We go back to him in a few weeks...
The acid reducer seems to somewhat work, but again,she will still have bad days and get sick... 
We know there is no cure for Chiari .. we know this is her life... and we are now in the process of teaching her to self monitor so that she doesn't push herself or to take meds before the pain gets out of control.
I will try to keep updated more often!