Our site was created to keep family and friends updated about Samuel and his journey for a cure from NEMO, a rare and severe immune deficiency.
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After years of trying to conceive, we were graciously blessed with the news of a pregnancy. Samuel Ernest Dunbar was born on October 30th, 2005, weighing in at only 3# 7oz. After 1 month in the NICU, we brought him home and watched in awe as he was gaining weight and growing so fast. At 5 months of age, Samuel was admitted to Presbyterian Hospital in Albuquerque with the diagnosis of pneumonia. After several days of antibiotics, Samuel's pneumonia was worsening. He was transferred to the PICU where a bronchoscope was performed; a rare pneumonia was found, so the doctors started a workup on Samuel's immune system. On May 1st, Samuel was flown to The Children's Hospital in Denver where a more intensive immune workup was done. The lab work for immune deficiencies has to be sent to different areas of the country, so it was weeks before we had any results. Finally, at the end of May we had a diagnosis. It is a severe immunodeficiency called NEMO and the diagnosis of NEMO is relatively new (within the last 5 years). We currently know of only 12 boys in the United States (70 in the world) diagnosed with this and the only cure is a bone marrow transplant. NEMO is the name of a gene that regulates functions of the immune system. NEMO is like a master switch that is found on the cell of the human body and regulates signals between the cell membrane and the cell nucleus. NEMO is expressed in almost all tissue cells. If NEMO is not present, life is not possible. NEMO stands for Nuclear Factor Kappa B Essential Modulator. Thank you for keeping Samuel in your prayers each day. "Therefore I tell you, whatever you ask for in prayer, believe that you have received and it will be yours." Mark 11:24