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My Story

Our site was created to keep family and friends updated about Samuel and his journey for a cure from NEMO, a rare and severe immune deficiency.

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After years of trying to conceive, we were graciously blessed with the news of a pregnancy. Samuel Ernest Dunbar was born on October 30th, 2005, weighing in at only 3# 7oz. After 1 month in the NICU, we brought him home and watched in awe as he was gaining weight and growing so fast. At 5 months of age, Samuel was admitted to Presbyterian Hospital in Albuquerque with the diagnosis of pneumonia. After several days of antibiotics, Samuel's pneumonia was worsening. He was transferred to the PICU where a bronchoscope was performed; a rare pneumonia was found, so the doctors started a workup on Samuel's immune system. On May 1st, Samuel was flown to The Children's Hospital in Denver where a more intensive immune workup was done. The lab work for immune deficiencies has to be sent to different areas of the country, so it was weeks before we had any results. Finally, at the end of May we had a diagnosis. It is a severe immunodeficiency called NEMO and the diagnosis of NEMO is relatively new (within the last 5 years). We currently know of only 12 boys in the United States (70 in the world) diagnosed with this and the only cure is a bone marrow transplant. NEMO is the name of a gene that regulates functions of the immune system. NEMO is like a master switch that is found on the cell of the human body and regulates signals between the cell membrane and the cell nucleus. NEMO is expressed in almost all tissue cells. If NEMO is not present, life is not possible. NEMO stands for Nuclear Factor Kappa B Essential Modulator. Thank you for keeping Samuel in your prayers each day. "Therefore I tell you, whatever you ask for in prayer, believe that you have received and it will be yours." Mark 11:24

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Will and Kelly Dunbar posted a new journal entry.

Hello family and friends,Sam, Madeline, grandma Cheryl and I traveled to Denver last Sunday through Tuesday.  Sam had his 6 month checkup with Dr. Ralph, and had some ... Read more

Will and Kelly Dunbar posted a new journal entry.

Hello family and friends,Sam, Madeline, grandma Cheryl and I traveled to Denver last Sunday through Tuesday.  Sam had his 6 month checkup with Dr. Ralph, and had some ... Read more

Will and Kelly Dunbar posted a new journal entry.

7 years ago today, we received a phone call that changed our lives forever--Will and I would be bringing home a beautiful baby girl who weighed in at just over 6 pounds. ... Read more

Will and Kelly Dunbar posted a new journal entry.

January is flying by!  We have been busy celebrating Will's birthday, grandpa Bill's birthday, our brother-in-law's birthday and grandpa Ev's birthday.  It seems like ... Read more

Will and Kelly Dunbar posted a new journal entry.

As we look back on the year 2009, we realize, indeed, our family has been blessed.-In February, Sam's Broviac was removed, permanently.  It was the central line that had ... Read more

Will and Kelly Dunbar posted a new journal entry.

Merry Christmas family and friends!Casey, Sam and I just returned from a quick and wonderful trip to Denver.  We traveled with great friends, toured downtown in a ... Read more

Will and Kelly Dunbar posted a new journal entry.

Today Will and I are celebrating our 10th wedding anniversary!  We have had some stressors during these years that most couples are fortunate to have escaped, but we ... Read more

Will and Kelly Dunbar posted a new journal entry.

It was two years ago today that Sam received a chance for a new healthy life!  We are so thankful that a selfless family in Spain made that decision to donate their cord ... Read more

Will and Kelly Dunbar posted a new journal entry.

We want to wish everyone a Happy Thanksgiving!  May you all have a blessed day with your family and friends.  We will be enjoying tomorrow with our loving family, and ... Read more

Will and Kelly Dunbar posted a new journal entry.

Today is a wonderful day!  It's National Adoption Day, and we are celebrating our beautiful girls, Casey and Madeline.  We are so blessed to have them in our family and ... Read more

Will and Kelly Dunbar posted a new journal entry.

Every day I feel so fortunate and know that I am blessed to be a mom.  Holidays, especially Thanksgiving and Christmas, tend to bring that feeling out even more--I love ... Read more

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