My Story

Sami and Nick have Ehlers-Danlos, cranial-spinal instability, cranial settling on brainstem & cerebellum, dysautonomia, orthostatic tachycardia- POTS.

Isaiah 40:28-31"...They shall run and not be weary, They shall walk and not faint."

"I know whom I have believed and am persuaded that He is able to keep that which I have committed to Him until that day." 2 Tim.1:12

Journal

Thursday, June 18, 2009 8:36 PM, CDT


The Kids Wish California trip was amazing! The area was far more beautiful than we expected. The bungalow at the Montage where we stayed was fancy beyond our imagination. Everything there was so accessible and the help with everything was more than plentiful. We didn't have to lift a finger for anything. We actually lived for three days without a thought about disability (almost : )  Now that is a feat!

 

We went on a boat excursion to see dolphins. Hundreds of them surrounded the boat. They were beautiful. The kids also got to hold a falcon and a hawk that were visiting at the Montage. Nick loved this!
We dined at two spectacular restaurants - one is the most famous for seeing the California sunset from its rooftop. There on the rooftop they set a special table for us and treated us like royalty! A photographer came for a photo shoot of Sami. She wasn't sure about this, but she ended up having a fun time and we got some great pictures of her!

 

I've uploaded a bunch of pictures so everyone can take a short trip to California right now :)

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E-MAIL AUTHOR

samnapier@aol.com

HOSPITAL INFORMATION

North Shore University Hospital - The Chiari Institute
300 Community Dr.
Manhasset, NY 11030