Welcome to our CaringBridge site. It has been created to keep friends and family that really care about Ryland, updated on how he is.
Ryland was Dia. at 4 months with semi-lobar Holoprosencephaly. If you want more info you can check out his other Caringbridge page at www.caringbridge.com/sd/ryland or http://rylandjesse.tripod.com
I'm making the switch to the new caringbridge but will still update the older one from time to time. It does have the beginning of our journy with HPE.
I had a great pregnancy with Ryland and he arrived Nov. 19th 2003 a healthy baby boy. Little did we know our life would change at his 4 month checkup. I can still remember that day, well that week. The doctor wanted to do a CT scan the next day after his checkup and when we received a call that same day we knew something wasn’t right, so the next day after the scan we went in and were told that there was something wrong with his brain but would have to see a neurologist to find out what it was. So two weeks later we got in and found out, I had already been searching the internet but didn’t want to believe that he had something that was terminal and there was no way to fix it. I still remember that day like it was yesterday, Nick had to go back to work after we found out so we went to my moms and I remember crying for hours and hours and till I finally fell asleep. I remember thinking what are we going to tell Nathan and Mitchell who were so excited to have a little brother to play with, someone they could teach how to play football, baseball and video games to and now would they every get to.
Now over 5 years later and after many doctor visits, therapy appts, hospitals stays and ER visits, I really don’t remember many of them but I still remember those first doctors appts. When we were told our son, if he lived would never do much because of he brain malformation. All I can say is boy he’s proven many doctors wrong, things have not been easy but looking back I never thought Ryland would be this far. Walking in a walker, rolling over and moving around the floor to get to places, loving- books, racing, cartoons, toys, sports and just get attention, using a power chair in PT, using switch toys and communication devices, now learning number, letters and shapes. He doesn’t say words but he can talk and talk and tell you what he wants. I never thought I would have to worry about him getting into things like the Christmas tree but I do, once it goes up he spends everyday we have it up trying to get to it and also getting into the presents and yes trying to open them.
I can’t wait to see what happen in the next 6 years.