My Story

Welcome to our CaringBridge site. It has been created to keep friends and family that really care about Ryland, updated on how he is.

Ryland was Dia. at 4 months with semi-lobar Holoprosencephaly. If you want more info you can check out his other Caringbridge page at www.caringbridge.com/sd/ryland or http://rylandjesse.tripod.com

 



I'm making the switch to the new caringbridge but will still update the older one from time to time.  It does have the beginning of our journy with HPE.

Oct 2009
I had a great pregnancy with Ryland and he arrived Nov. 19th 2003 a healthy baby boy. Little did we know our life would change at his 4 month checkup. I can still remember that day, well that week. The doctor wanted to do a CT scan the next day after his checkup and when we received a call that same day we knew something wasn’t right, so the next day after the scan we went in and were told that there was something wrong with his brain but would have to see a neurologist to find out what it was. So two weeks later we got in and found out, I had already been searching the internet but didn’t want to believe that he had something that was terminal and there was no way to fix it. I still remember that day like it was yesterday, Nick had to go back to work after we found out so we went to my moms and I remember crying for hours and hours and till I finally fell asleep. I remember thinking what are we going to tell Nathan and Mitchell who were so excited to have a little brother to play with, someone they could teach how to play football, baseball and video games to and now would they every get to.

Now over 5 years later and after many doctor visits, therapy appts, hospitals stays and ER visits, I really don’t remember many of them but I still remember those first doctors appts. When we were told our son, if he lived would never do much because of he brain malformation. All I can say is boy he’s proven many doctors wrong, things have not been easy but looking back I never thought Ryland would be this far. Walking in a walker, rolling over and moving around the floor to get to places, loving- books, racing, cartoons, toys, sports and just get attention, using a power chair in PT, using switch toys and communication devices, now learning number, letters and shapes. He doesn’t say words but he can talk and talk and tell you what he wants. I never thought I would have to worry about him getting into things like the Christmas tree but I do, once it goes up he spends everyday we have it up trying to get to it and also getting into the presents and yes trying to open them.

 

I can’t wait to see what happen in the next 6 years.

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Summer Jesse posted a new journal entry, "Been to long".

Sorry it's been so long. Things have gone good over the winter and even though Ryland was sick off and on about 4 times we were able to keep him out of the hospital but ... Read more

Sandy Daron signed Ryland's Guestbook.

I am sooo glad Ryland is doing well!! What a blessing!! ♥♥ Love ya!! ♥♥ C.O.L.E.'s Foundation (Caring Openly, Loving ... Read more

Summer Jesse posted a new journal entry, "Been to long".

Sorry it's been so long. Things have gone good over the winter and even though Ryland was sick off and on about 4 times we were able to keep him out of the hospital but ... Read more

Sandy Daron signed Ryland's Guestbook.

HAPPY, HAPPY BIRTHDAY, Ryland!! I hope your day is GREAT!!! Happy Thanksgiving!! Please take a moment and re-register Ryland for our new database. It only takes a few ... Read more

Sandi Wiarda signed Ryland's Guestbook.

I am so glad you are doing well Ryland! You seemed to enjoy your birthday party even if it was cold outside. Thats great that you love school!            Love ... Read more

Summer Jesse posted a new journal entry.

It's crazy how time seems to fly by. Ryland is doing really good, it took awhile after his surgery to get him back but over the summer he got better and better. The summer ... Read more

Kayla Edgington signed Ryland's Guestbook.

Ryland, so glad to hear you are better. You are such an inspiration with all that you are over coming and how well you are doing with the walker and the eye gaze system, ... Read more

Summer Jesse posted a new journal entry.

Sorry for not updating. Ryland got out of the hosptial on April 20th right in time for Nathan's 16th Bday. It was hard for him for a couple weeks. Little sleep and ... Read more

Summer Jesse posted a new journal entry.

Ryland got admitted into the hospital yesterday, he was running a fever since we left the hosptial and nothing was helping. He didn't sleep much Sat and Sun nights and was ... Read more

Kayla Edgington signed Ryland's Guestbook.

Sending prayers and well wishes your way. We are pulling for our buddy Ryland. Feel better and a speedy recovery, from Mikey Ray and Family Read more

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