My Story

RYAN WAS DIAGNOSED WITH STAGE 4 NEUROBLASTOMA ON 1/5/2005. HE HAS SHOWN NO EVIDENCE OF DISEASE SINCE 7/19/2005. RYAN HAS COMPLETED 10 ROUNDS OF 3F8 ANTIBODIES ON 2/23/07 AND IS NOW HAMA POSITIVE. WE WILL RETURN TO NEW YORK EVERY 3 MONTHS FOR SCANS. PLEASE CONTINUE TO PRAY THAT RYAN REMAINS NED FOREVER!

WE BELIEVE IN MIRACLES!!!!

Journal

Thursday, April 30, 2009 7:36 PM, CDT


I just took this picture tonight.  I found this shirt a couple of month's ago.  He is definantly "Mommy's little hero".

I got a call from Dr. Sklar's office yesterday (late effects doctor).  They said Ryan's vitamin D level was a little low.  They want me to start him on 800mg of vitamin D daily.  The nurse said the norm was 30.  Ryan's was 20.  I sure hope he is able to swallow the pills or I will have to figure something else out.  The nurse also said that his echocardiogram came back normal. 

Ryan lost his first tooth last week.  He was soo excited to show me, it happened while he was in school.  He held onto it the whole time until we got to my parents.  Then he lost it.  He was so upset.  So I ended up taking a picture of him with the little gap in his mouth and then texting it to the tooth fairy :)  He seemed to be happy with that idea.

On our way home from school today, Ryan was telling me how 3 girls in his class were all his friends.  When I got home and was going through his school bag , I found a note from one of the little girls.  It said "I love you Ryan Regan"  I was a litte surprised , so I asked Ryan about it.  He just smiled and said "she loves me".  Then, while he was brushing his teeth tonight, he said he has to keep them nice and clean for the girls can see.  Wow!  I have to keep my eye on this little boy of mine.

Well, I better go get the boys lunches packed.  Thank you for checking in on us.   Please keep Mason in your prayers.  He is in the hospital right now with 0 counts fighting relapse.  Also remember Nick Franca  and Ryan Reardon who have just started new treatments for relapse.  We are happy to say our friend Ethan Smith who relapsed in November is almost clear again!  There is alway hope and I will always hold onto that!

Love,
Cathy and Ryan

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HOSPITAL INFORMATION

Memorial Sloan Kettering
NY