Ryan Concannon's Journal
A long overdue update on Ryan!!!
Written Dec 14, 2013 12:21am by Patty Concannon
This past few months have seen lots of healing and development. On last update we talked about going back to see the specialist Dr Hong at the University of Utah. Ryan has been seeing him weekly and was prescribed a wake up medicine called Bromocritine.
Each week we evaluate Ryan's progress and each week the dose is increased. It is fun to see him improve! Every day Ryan seems to be doing more. The successes seem to breed more stamina and more drive. His attitude and smile say it all ~he is only happy when working very hard to recover! With that comes a shift that reminds me of how his brain worked as a small child - the staff reports that he has been quite a nuisance! Each day when I arrive I am greeted with reports of lots of activity! One morning the nurse called to tell me that when she arrived on her shift she found him on his knees beside the bed. This was the initiation we had hoped for! All measure of safety quickly installed while everyone congratulated him through out the day!
This week brought even more firsts! I wrote last update about him sitting un aided (by himself) for up to 16 seconds~ Today Ryan beat his record from last week of 1.5 minutes with a whooping 5 (Yes FIVE) minutes sitting by himself on the edge of the mat!!! But that is not all, he also went into the walking harness for the first time! This is something I have been telling him he would be able to do if he worked hard on his core muscles. Once he learned to work the sit down elliptical, the therapist said walking would be his next step! Unlike the standing frame, the harness offers some support but he is not tied in, all the effort has to come from him. I am told he did stellar today and that they are excited to get him in it again early next week!
So that should be a good day right? There is more!!! As we left the therapy room we saw his speech therapist who wanted to tell me how great he did in therapy. I thought she was talking about the standing harness or the sitting but I was wrong. She told me that he had the best speech session ever today, that he even slurped some food off a spoon!!!
I left a very tired man tonight in his room with a new Christmas Tree from his Aunt Kris and Uncle Jeff.
Please keep Ryan in your thoughts and prayers this holiday season!
Written Oct 28, 2013 12:40pm by Patty ConcannonRyan transitioned back to Country Life Care Center on Sept 20th to a very happy staff… It was a difficult time for Megan and I so close to the anniversary of his accident. We also worried that he was going back too soon. This was soon debunked!!!Ryan is still non verbal, however, seems to "touch" people that work with him in a very deep way. Everyone was so welcoming stating how they had thought of him often and how happy they were to see him again. He also had settled in to a better sleep routine at Promise Hospital that we encouraged the nursing staff to continue.Ryan seemed to progress quickly with better sleep and all worries of his lung illness were abated. His continuation of the cPAP machine at night seemed to help too! 2 weeks ago the therapy staff excitedly showed me videos of his progress with both the hand bike and foot pedaling. A few days later I was told that he was sitting by himself for 13, 15, and 16 seconds at a time on the edge of the mat. I know this seems small to anyone who can sit for hours but this was huge for us!Last week we visited a doctor at the University of Utah to assess the one last medication he is on (anti seizure). A HUGE gratitude to the owner of Country LIfe Care Center who arranged and accompanying Ryan in to see Dr Hong who heads the Rehab Unit at the University for the TBI group. He indicated to us that it is time to move to Rehab believes he can really help Ryan.Our next step is to see Dr Hong again this Wednesday for the final decision. Please keep Ryan in your thoughts and prayers and we move to this next step in his care.
Hospital Update - Healing!
Written Sep 18, 2013 11:28pm by Patty ConcannonFor those of you who are not on the Facebook 'Team Ryan' page where I have been doing quick updates. Ryan has been at LDS Promise Hospital for the last 3 weeks battling pneumonia. The treatment consisted of a chest tube for drainage and IV antibiotics. It is such a pleasure to add this photo taken today. Ryan is no longer confined to his room. The chest tube was removed late yesterday so today he spent time in the therapy room (standing frame).
Many thanks to all who walked for Ryan last Saturday. What a great day to send a wave of positive energy his way. The CT scan on Monday showed enough improvement to allow the doctors to remove the painful tube.
We are looking forward to and expecting more healing!!!
Infinite Love and Gratitude!