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Journal Update
Total Entries: 1,410
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  • Jun 26, 2012 12:19pm

    Chad, thank you for your blog, Come Too Far. At the time I learned of your loss, my son was losing his battle with liver and kidney failure. The faith you and your family expressed with such grace helped to provide the support I needed when he made his transition on January 8, 2011. I think of my son, John, every day. And when I think of how powerful his faith was, I think of you. God bless you and your family 

    Lois Jones

  • Jan 19, 2011 7:50pm

    I do not know if I did this correctly, but, I was reading, and saw that there were no entries for today. I did not want to leave it that way.
    So, hopefully, this message will go through. You are all being thought about now, at this moment, and will be prayed for before I sleep. 

    theresa wax

  • Jan 3, 2011 10:47am

    Chad Just read your last blog my heart once again is stirred by your honesty I am sad you won't be writing but clearly understand your reasoning behind your decision!Ron and I pray for you and your whole family Many go through this life without ever experiencing the wonderful love and sense of family I know your experience has touched lives worldwide ours included I just want you to know it's an honor and privledge to pray for you We will be forever changed because of your sacrifice and pain You have honored Ryan's memory with great integrity and love Someday when we are all reunited I hope to worship our God standing by you young men The circle will be complete God be with you
    Ron and Karen Padgett

    Karen Padgett

  • Dec 17, 2010 4:07pm

    I am so sorry to hear of the passing of one of the men that this world needs more of, not less of.  I look at the pictures of his beautiful family and the young men who will be filled with a hundred questions as they journey through their life without their hero, and I feel anger.  Not toward anyone, but toward the cirtcumstances in general.  No one deserves to lose their father, husband, brother, son, friend.  I am sad for all of the Arnolds and the unexpected turn this whole story has taken.  May you find peace in the memory of Ryan, he seemed like a class act.

    Larry Mitchell

  • Dec 6, 2010 7:24pm

    Hang in there and we are all praying for you. I just read your story and found it incredible and it has really touched me and my family deeply, you see I too am a liver transplant recipient in Jan. of 2008 and I know it is hard but with the support you are receiving from your loved ones and all your friends it will get better. Stay STRONG and BELIEVE!!!!! The power of the LORD is a truly remarkable thing I am walking proof. God Bless you and you will be in my prayers

    David Risley

  • Nov 30, 2010 6:57pm

    Dear Chad,

    I saw your story yesterday on the Today show. It touched me on many levels. I am the mother of three children. My nine year old daughter, Grace, like you, has PSC.

    I felt a sense of urgency to write to you to share good news and hope with you.

    Dr. Kenneth Cox of Stanford's Lucile Packard Children's Hospital and Dr. Yinka Daives of Stanford and Sutter Medical in California have successfully saved the transplanted liver of a teenage girl who appeared to be rejecting it. She, along with my daughter and 28 other children, have successfully gone into "remission" for lack of a better word, in a Stanford trial being run by Dr.Cox and Dr.Davies.

    The children are being treated with an antibiotic known as Oral Vancomycin (not to be confused with IV Vancomycin).  They are in the process of joining forces with Adult GI doctors at Stanford to allow adult PSC patients the same opportunity/ treatment option. 

    Grace was so very ill. She suffered from daily fevers, erythema nodosum nodules on her legs, severe joint pain and extreme fatigue.
    Within seven days of starting the medication, she literally recovered in every way. That was three years ago. To this day, her liver enzyme levels remain normal, but more importantly to Grace, she has returned to a carefree, pain-free life. 

    Grace's stunning recovery, along with the other children, is evidence of the hope that exists for those suffering from PSC.  The news deserved to be shared with PSC Families. To help spread awareness of this treatment and to raise funds for research, with the help of Dr. Cox and Dr. Davies, we started The Children's PSC Foundation  You can find more information at www.childrenspsc.org. This hope is not only for children, it is for the adults who suffer as well.

    Dr. Cox and Dr.Davies have worked with other GI doctors in all parts of the US to get patients on the medication. 

     You and your family have been through so much.  I wanted you to know that the option of Oral Vancomycin exists and that there is hope for you. 

    God bless you,

    Traci Peterson
    mom to Grace, 9yrs old w/ PSC and UC
    Executive Director
    Children's PSC Foundation
    916-984-3787
     

    traci peterson

  • Nov 26, 2010 9:01am

    Your story ran in my newspaper this morning and has greatly touched my heart.  I just wanted to say that yall's story is such an inspiration, you and your family are in my prayers.

    Haley Dwight
    Amarillo, Texas

    Haley Dwight

  • Nov 24, 2010 12:51pm

    My thoughts and prayers are with you all, as I too have a son, now 24, that suffers from PSC and had a liver transplant 2 years ago.  He was only 15 when he was diagnosed - a young man enjoying tennis, soccer, skiing in the Alps, and life.  We were living in Germany at the time and he was enjoying life to the fullest.  We soon came to know how the medical system worked in a foreign hospital, land; and Doctor's who spoke little English.  Talk about an instant immersion program!  lol  But they kept him alive and were wonderful in their treatment.  We then transferred to Washington, DC to Walter Reed, partnering with Georgetown Univ Hospital.  I have never spent so much time in and out of hospitals, but I'm an old hand at it now and he can rattle off his symptoms, meds, etc., like a school educated doc himself.  I too, was tested to be a live liver doner, but my liver was too small to support us both, so he had a cadaver liver.  He had his transplant 5 Nov 2008.  Yes, he too has rejection going on, but with meds, it's manageable.  He also had his left kidney removed when he was a senior in HS.  I call him my "walking miracle baby".  It's been a long road, 7 years, waiting for his miracle liver, and then you think they will be "fixed".  Not hardly, the visits to see doctors, trying to fix an issue brought on from a med by-product, blood work and keeping/adjusting meds keep your "umbilical cord" attached to a hospital for the rest of his life...some days we thought we'd never stretch that cord far enough.  Yep, he does have a cool scar - looks like the Mercedes Emblem.  But without our faith, we would have never made it.  Sitting alone in a waiting room until 3 a.m. waiting for a "successful" word was a test of my faith, but God answered my prayers, and it's a joy to know and see that you have a deep faith too.  I too, am a fellow South Dakotan (Mitchell) and when this story caught my eye, I thought, Great Scott, here's a homeboy going throught the same thing.  It's a nasty disease and it makes you wonder how? why? do these things happen??  Stay in the faith and know that prayers are being said in support of you all across the nation / world!  

    v/r
    Heather Kaye
    Mitchell Native
    Temporarily transplanted to Wash, DC   

    Heather Kaye

  • Nov 22, 2010 1:45pm

    To Chad and the entire Arnold Family-

    As I read your story in our Daily Herald these past two Mondays, I was moved to tears.  My father died of PSC eight years ago before he was able to be the recipient of a new liver.  God's plans are perfect, though, and while we don't always understand His ways or have answers to our many questions, we take comfort knowing that He will only do what is best for His people.  Thank you for your bold Christian testimony even in the face of much grief.  Stand firm.  Let nothing move you.  Always give yourself fully to the work of the Lord, knowing that your work is NOT in vain in the Lord.  Your life was spared so that your faith can be an encouragement to a watching world.  My prayers are with you...

    Kim Rapp

    Kimberly Rapp

  • Nov 22, 2010 11:39am

    I tried to post a comment on your blog site, but had trouble.  I couldn't, however, let the day pass without posting about your mother's blog entry. It was life changing (for Me)...
    I know the last line of your post will remain with me forever.  It was surely not what I was expecting when I went to read Chad's blog today. I now know why God helped me "find" your family's story.  Thank you so much for putting things in perspective for me.  You words are definitely what I need to find my way again:)
    Chad-I see where you get your strength from.  Please hold on to your family and to Ryan's memory. Thank you for your truth:)

    Robynne Walka

  • Nov 20, 2010 10:56pm

    My heart goes out for you and all your loved ones.  I will be praying for all of you.  God bless!

    Laura Bahena-Garcia
    laurafloreslj@hotmail.com

  • Nov 20, 2010 5:36pm

    Chad,

    I can not begin to tell you how much yours and Ryan's story today, on the MSN headlines, has touch our lives.  We pray that you will be healed. 

    We had two sons and they were very close. Our oldest son was killed in a car accident 7 1/2 years ago and still today it is hard to go on.

    Thanks for sharing and being an inspiration to so many others.

    God Bless you and all your family,
    Galen & Arlene Doll
    Healy, Kansas

    Arlene & Galen Doll
    doll@st-tel.net

  • Nov 20, 2010 1:40pm

    To know a love as great as that is the blessing.  I am saddened by your loss for you and your family.  Thank you for this site. 

    Darcy Chaney

  • Nov 20, 2010 12:34pm

    Hi Chad/Mrs. Arnold/Mrs. Ryan Arnold/Arnold Family & Friends,
    First, I am so very sorry for your loss.

    Chad, I happen to come across your article this morning while trying to get to another website.  At this point, I can't even recall what site I was going to visit. I came across your article on msnbc.com and was filled with mixed emotions and was blessed tremendously.  Upon reading about Ryan's death I was sadened just said why God? Why?  I simply could not understand but then I started thinking that perhaps it's not for me to understand, who am I?  So I had to just STOP...and focus on God's greatness. His mercy, His LOVE and how we are blessed by grace - unmerited favor.  I just started praising God for who He IS and that's an awesome God.  

    When I went through a hard period in my life....I prayed through my circumstances but when all was said and done, I simply stopped praying. I had given up because I allowed my mind to go places where I had control to keep it from going.  I seem to not be able to get rid of my negative thoughts.  My pastor once said to the congregation that our minds are our biggest battle. When I was going through my hardship, I had received a prophesy where I was told that God said for me to pray for others....I thought wait....what?  How??? This prophesy can't be for me....How could I pray for others when I simply can't even get prayers answerd for myself.  Now how self-centered was that!!!  In case your wondering, yes, I FINALLY am doing what God instructed me to do.  I won't even think about how slow I was at doing it, how many people I could have been a blessing too had I followed God's word immediately.  There's no time for me to look back now.... just forward. 

    Anyway, I just want to say continue on, live your life to the fullest. Chad, you are strong, you and Ryan are an inspiration to others, you and Ryan are doing God's work even in the midst of your hardship.   You're a living testimony to God's word - don't take that lightly. Ryan is a testimony to God's word as well. We are to share our testimony. God draws others to Him through/by our testimony.  Isn't that what God untimately wants?  To draw others to Him? You are someone else's hope.  I'm reading "Unmerited Favor" by Joseph Prince and in his introduction of the book he asks the reader - "Do you believe that Jesus is interested in your success? Then he asks the reader to take a moment to reflect on that.  He goes on the say that Jesus is infinitely interested in our total well-being.  Our family, career, fulfilment in life, marriage, ministry, etc. the list goes on and on and on.  I believe God is interested in YOU, He is interested in Ryan, your family, his family all of you, EVERYONE!!!  I don't know why this happened but God is in control.  He isl in the midst.  And the times that we don't feel Him are the times we should be seeking Him even harder.  I still learning in this area.

    So I thank you and Ryan for sharing your story.  Thank you for hope, inspiration, a greater faith in God, determination, feeling renewed,  belief, trust, and thank you for your honesty.  Thank you for your love.  You have everything to live for and nothing to lose by living only lots to gain.  Lots to share with others.  Keep being a living testimony to others. 

    This is about Ryan, this is about you too Chad but ultimately this is about GOD!!!!  Just think of the many people who are being drawn to God by your testimony. WOW!!!!

    Dana

    Dana Chaffin

  • Nov 20, 2010 10:46am

    Thanksgiving week...Chad, I am so thankful that I saw part one of your story earlier this week and that I could read the 2nd part of it this morning and find your blog.  Tears of joy & sadness moistened my cheeks for you, your family and Ryan's family.  I will keep you all lifted up in prayer and follow your bittersweet journey through your blog & CaringBridge. May our awesome God continue to bless & heal you and allow yours & Ryan's story be a testimony to many others! 

    Micaela Reves

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