CaringBridge Needs Your Help
Make a gift to CaringBridge in honor of Rusty and you’ll help even more people surround each other with love and support this holiday season. Donate Now
Latest Journal Update
Rusty’s light has remained bright despite what we were told four weeks ago. Just this past weekend things have started to dim. Saturday Rusty woke up feeling good. By 9 am he threw up. He was back in bed and asleep by 9:30 am. He didn’t wake up until 3:30 pm. He only threw up once so Adam and I pretended it didn’t really happen. He was laughing. He was dancing.
Sunday was a great day. Rusty woke up and felt awesome. We all went to church. He had a friend over to play. He hit baseballs in the afternoon. He even ate a granny smith apple.
Monday was a repeat of Saturday, but worse. He never left our bed. He threw up several times. He didn’t laugh. He didn’t dance.
I remember sitting in the ER on November 9 and a member of the neuro-oncology team explaining that if we went with option 2—the surgery to place the shunt—that eventually the shunt would be unable to do its job and the hydrocephalus would run its course. We would know by the headaches, nausea, vomiting,and impaired vision, ect. And once these symptoms presented, it would be time to prepare.
We prepared by having Christmas today! Both kiddos were slightly suspicious when we put them in their Christmas pj’s last night,especially since we had let them know that we may be having our Christmas early this year so that Rusty could enjoy the celebration. Rusty woke up with no headache. No nausea. No vomiting. He was able to open all of his presents and enjoy them all day long! I even took a picture of him playing with all of his guys this afternoon to share with you.
I can’t be angry. I can’t. The joy that comes from watching him play. The stuff he says. His imagination. I am grateful for Rusty. I am overflowing with pride at who he is and how fiercely he loves. I am thankful for how much he has taught me about life and love. He is my son.