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Rosemary’s Story

My name is Rosie and I am 9 years old. I was born on December 12, 2003 at Tarzana Med. Ctr. in CA. I am my mommys "Flower Child"

On December 21, 2010 I was diagnosed with Pylomyxoid Astrocytoma

On Friday December 17, 2010 I had gone to the nurses office complaining of a horrible headache. During my short stay in the Nurses office paramedics were called and I was rushed to St. Josephs Hospital in Burbank by paramedics. I was given a CT Scan and the Doctors saw I had a ruptured vessel in the brain. I was then immediately transfered to Childrens Hospital, Los Angeles, PICU dept. It was there the doctors rushed to relieve swelling in my brain and ordered a STAT MRI. This was the time, my parents found out I had a mass in the brain. However, it was uncertain whether or not this mass was a blood clot or a tumor. After extensive testing and a long 5 days of waiting my parents receieved the news that this mass was indeed a tumor and my diagnosis was made.

My tumor was a very slow progressing tumor, which is why it was not detected until now. I was a healthy child and did not show any significant symptoms prior to this event. The good news is my tumor is a grade two tumor, and my Neuro-Oncologist Dr. Finlay, is sure with the right treatment and therapy this tumor will not return. 

Latest Journal Update

Quick Update...

Good Morning All! Just providing a quick update... Rosie has been doing well since being home. She missed her friends for her Valentines Day party, making cards for classmates and not being able to deliver them personally was hard for her but she got thru it. This President Day/Valentine Day weekend started off well, unfortunately she started having pain yesterday so she isn't at her best at the moment. The pain comes and goes and she is developing a strong cough which isn't helping the situation. Her spirits are still high and she still does as much as she can to keep herself busy or entertained =)

Thank you all for the great support and prayers you have sent her way.