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Rosemary’s Story

My name is Rosie and I am now 11 years old. I was born on December 12, 2003 at Tarzana Med. Ctr. in CA. I am my mommys "Flower Child"

On December 21, 2010 I was diagnosed with Pylomyxoid Astrocytoma


On Friday December 17, 2010 I had gone to the nurses office complaining of a horrible headache. During my short stay in the Nurses office paramedics were called and I was rushed to St. Josephs Hospital in Burbank by paramedics. I was given a CT Scan and the Doctors saw I had a ruptured vessel in the brain. I was then immediately transfered to Childrens Hospital, Los Angeles, PICU dept. It was there the doctors rushed to relieve swelling in my brain and ordered a STAT MRI. This was the time, my parents found out I had a mass in the brain. However, it was uncertain whether or not this mass was a blood clot or a tumor. After extensive testing and a long 5 days of waiting my parents receieved the news that this mass was indeed a tumor and my diagnosis was made.

My tumor was a very slow progressing tumor, which is why it was not detected until now. I was a healthy child and did not show any significant symptoms prior to this event. The good news is my tumor is a grade two tumor, and my Neuro-Oncologist Dr. Finlay, is sure with the right treatment and therapy this tumor will not return. 

Latest Journal Update

Chemo Update

Just wanted to give a quick update: Rosie has been tolerating her chemo well. She has lost a lot of hair but she has not had any other major side effects from the medication. We are happy to see her getting ready for her 5th grade culmination! She is so excited but with that also comes many sad emotions. She is preparing to move on to middle school and say good bye to many great friends. Unfortunately, we have recently received some concerning news with her current health which have been caused by her tumor and we have made the decision to place her at a school where we feel her environment will be a much safer, so we hope. It's just too bad her friends will be at a different school. Lucky for her meeting people is easy, we just hope the social experience does not impact her in a negative form. She expresses to us and cries to us every afternoon and night her fears/dislikes of leaving her friends and teachers.

Prayers for her anxiety levels to calm are greatly appreciated, as well as, for her tumor to shrink before it causes more harm. The event of not knowing what her condition in the future holds is far more worrisome than knowing what comes next. So for now we shall take it step by step and day by day.

~Jackie ❤
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Comments

1 Comment

peggy nairn
By peggy nairn
My prayers & thoughts are always with your entire family. May God wrap his arms around you all. Congratulations on graduation. May Rosemarys & your strength and faith continue.
Xoxo
Peggy
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