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  • Cancer or not cancer...

    Written May 17, 2012 1:10pm

    Cancer or not cancer...that is the question. Monday Rosemarie had a needle biopsy of her left tibia (where she has cancer) to get a better idea of what's going on in there. But lets start at the beginning.

    Earlier this year, we had a crazy discussion with Rosemarie's oncologist. We talked about the idea of taking a break from treatment. He had some information that theorized blah, blah, blah. Basically he thought Rosemarie may remain stable even without any treatment. His ideas made sense. Ryan and I decided it was worth a try. We planned on scanning in May, biopsying some cancer, and if everything looked ok/everyone was in agreement we would stop treatment. To date Rosemarie has had over two dozen rounds of chemo, seven surgeries (including a twelve hour long resection surgery), two and a half weeks of radiation, stem cell transplant, MIBG therapy, over a dozen cycles of a phase I study, and thirteen cycles of a phase II study. BUT she has never had a day off of treatment since she was diagnosed in August of 2007. This week was scan week. CT and MIBG report everything is still stable. Bone marrow's are negative (no cancer). That still leaves the biggest, most scary result the leg biopsy. Are you sitting down? I never imagined hearing/reading what I heard/read this afternoon with the doctor. Make sure you're sitting. I'll wait..................... The results of the biopsy show matured ganglion nerve cells. Meaning not immature cancer cell that reproduce and spread, but neuroblastoma that has been treated and less likely to grow spread. This is AMAZING news.

    *happy dance time*

    Treatment is stopped. For the first time. Ever. I know, I know, it is awesome. We are ecstatic. It feels a little unreal.

    The plan is to scan in six weeks and re-access.

    Join us Saturday at our house to celebrate if you can.
  • Written Dec 9, 2011 10:08pm

    Just wanted to quickly share with everyone...
                     Rosemarie is still on her treatment where she takes six pills a night for a week, then is off for a couple weeks, then back on again.  So far she is still stable, and our next round of scans is coming up the week after Christmas.
                    An awsome company by the name of BLAMO has also created a fundraising design that they have put on a t-shirt, long sleeve t-shirt, and a canvas bag.  If you go to blamoart.com/shop and click on fundraiser you should be able to see (and order, if you want..:) ) all the different options.  The design name is "Hope Warrior".
    Thank you for all the prayers everyone has sent us.  We are looking forward to the Christmas holiday here.
    P.s.  Could you guys also send some love to our buddy Shelly ( caringbridge.org/visit/shellythornton) They got some news today that no family should get EVER!  (And if I'm not mistaken this is the second time they've gotten news like this)
  • Kindergarten

    Written Aug 26, 2011 10:43am

    After Rosemarie was diagnosed I stopped thinking/planning the future. I didn't know what to expect. I am still that way. I will take every moment I have with her. BUT I didn't expect, after reading and learning more about neuroblastoma, to get to see her in kindergarten or any other milestone after. Every holiday and birthday I am anxiously and excitedly wondering. It's just something I've learned to deal with...I'd do almost anything for her to have a good quality of life for as long as possible. Today I am sitting in on Rosemarie's second day of kindergarten, a day I never imagined seeing. I can't help but smile (and I'll admit, cry too).

    Sent from CaringBridge Android app

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Healthcare Facility

Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039
United States