My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Robert Willis's summer of 2008 as he undergoes a BMT(bone marrow transplant).

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Journal

Thursday, July 2, 2009 8:49 AM, EDT


Rob is feeling better this morning.  I got  my Duke Parent's Manual out last night and he did have a reaction - may not have been allergic.
Side effects for IVIG can be chills, fever and nausea.  The allergic reaction can cause difficult breathing, hives, so I think he was feeling side effects, not allergice reaction although it was still unpleasant.
When I got to the hospital his face was very red and that subsided by the time we left.  
He came home and rested until about 9 pm and wanted to drive out for ice cream.  I talked him into staying home and he was up early this morning getting his jeep battery jumped and ran out to get some breakfast.
I had a strong instinct that I should have gone with him for that appointment.   Next time I will follow those feelings.
As usual, Rob still has a great attitude.  Not sure how many more IVIG treatments he will require.  We will find out when we go to Duke soon.
Dr. C asked me yesterday if it seemed like the past year went quickly, slowly, or both.   I told him both- sometimes it seems like just last week we arrived for his transplant - and then other times I realize how much he went thru and it seems like a very long year.
However long it takes,   we will press forward!
God Bless.

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HOSPITAL INFORMATION

Duke Pediatric Bone Marrow Transplant Program
2400 Pratt St.
Suite 1400
Durham, NC 27710
United States