Robby's blood work came back good today his white count was back to15 it was 27.8 on Fri. high than he first got dx

My Story

Robby Chandler was dx. with Pre B ALL on April 26, 2005 at 2 yrs old I finish chemo July 1, 2008 and then relapsed Jan 9, 2009 1 day before my 6th birthday. I had a bone marrow transplant on April 1 of 2009 now we wait  Thank you for checking on me and be sure to sign my guest book

 

Journal

Monday, June 29, 2009 10:29 PM, CDT


Robby's white count was much much better hopefully it was the massive steroids he has been on they took them back down to 30 he did have to go back to 50 a few weeks ago.
Yesterday I was out in back (Robby's wasn't over) this little girl come up to the fence she said Hi do you know who I am Robby's my best friend ever I saw she was the little girl that used to live next door when she moved, she moved into Robby's school district they new each other since being 3 and is in kindergarten together. She asked if he was here that she hadn't seen him in a long time. I told her no and when I saw him I would tell him I saw her. She was the cutest little thing. Then she wanted to talk. She said he will be disappointed if he doesn't see her when he was at school on recess he would run up to her and yell her name and run away. Then she would say "I sure miss him that makes me sad he has cancer. We talk about him at school all the time well I talk about him all the time" One day at school we had a big picture that all the kids wrote on for Robby tell him I signed it 2 times so he would know I missed him" I told her how sweet that was and that Robby had the big picture and we hung it on his wall she said but this one was really big I assured her that he has it . She told me how to spell her name an where she put it on the right near the bottom because they had it up a little bigger than her. Then I sure miss him that makes me sad he has cancer. She told me she was 6 now and going to 1 grade she wanted to know if Robby was in 1 grade if he could ride a bike yet she just learned how to ride one I told her no he can't ride a bike yet Then I sure miss him that makes me sad he has cancer I chuckled because she was the cutest thing ever. Then she said  I remember when I first went to school I was so happy to see him there but he only came about a week or so he wasn't there alot of days I looked for him all the time my teacher said he was sick again is he sick like last time. I said yes the kinda of sick that he doesn't have hair I said yes but he has his hair back now and next time you come to your Aunt's you can knock on my door to see if he is here Then I sure miss him that makes me said he has cancer well this time a chuckle didn't come out tears welted up in my eyes she was just so darn cute and alot of the things he can't do is coming to mind She wanted to know if it was alright to tell her Aunt that I said she could knock on my door I said Yes  that really seem to make her happy and she ran off an said bye you know that was the best conversation I have had in a while. Thanks for checking in on us and sending us prayers

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E-MAIL AUTHOR

bkulmer@charter.net

HOSPITAL INFORMATION

Childrens Hospital St. Louis
St. Louis, MO
United States