Robby Klimaytis's Journal
Written Feb 18, 2014 12:05am by Judy McCullochWhy try to form into words what is on my heart when this Psalm has captured it?
I cried out to God for help;
I cried out to God to hear me.
When I was in distress, I sought the LORD;
At night I stretched out untiring hands
And my soul refused to be comforted.
I remember You, O God, and I groaned;
I mused, and my spirit grew faint.
You kept my eyes from closing;
I was too troubled to speak.
I thought about the former days,
The days of long ago;
I remembered my songs in the night.
My heart mused and my spirit inquired:
Will the LORD reject forever?
Will He never show His favor again?
Has His unfailing love vanished forever?
Has His promise failed for all time?
Has God forgotten to be merciful?
Has He in anger withheld His compassion?
Then I thought, “To this I will appeal:
The years of the right hand of the Most High.”
I will remember the deeds of the LORD;
Yes, I will remember Your miracles of long ago.
I will meditate on all Your work
and consider all Your ways.
Your ways, O God, are holy.
What god is so great as our God?
You are the God who performs miracles,
You display Your power among the peoples.
With Your mighty arm You redeemed Your people.
So tired, but you should know that Robby is doing well.
And Bob is having a pacemaker put in tomorrow if you could tuck in a prayer for him.
Never give up praying for the miracle!
Lots of love to you!
Judy (aka Mammy)
Written Feb 4, 2014 10:54am by Judy McCullochI am so happy to say that Robby is improving steadily from the RSV. His wonderful pediatrician came to check on him Friday, and though she said he's still not 100% recovered, there is significant improvement. We can tell that easily by the fact that he has not required oxygen and by how he sounds and looks, of course. (Yes, I did say that she came to check on him! I love his pediatrician - the best!)
The rest of us continue to recover, as well. The annoying and fairly exhausting cough continue to plague us, but, thank God, feeling much better overall with the wonder drugs :). Angela never got it - yay, but Greg who was the first to succumb celebrated his birthday yesterday still quite sick :(. We're praying for you, Greg! Patti ended up sick, too, and didn't make it up last Saturday. Robby misses you, Grandma!
Robby just got in from school as I was mid-sentence, so I'll be brief, because it's time for exercises!
I just wanted to share about the hot tub a bit. In addition to it being so beneficial to him physically - his breathing and movement and relaxation, it has become our private time together. Because of Bob's heart issues, he doesn't seem to want to go in lately. The idea of a hot tub sit didn't really appeal to me, but he loves baths, so it seemed a great fit for a while. Plus I got a ton done in the 20 minutes, it felt like.
Needless to say, what needs doing gets done, but Robby and I use the whole time to pray together. The lights are off, except the pool lights, the inspirational music is on (always!), and while we do range of motion so gently and easily in the water, it just lends itself to such a time. We can never use it without being thankful for all who made it possible and all who continually support us in word and deed. So we start full of thanksgiving and thank God for all of you. We pray for our family, neighbors, nurses, school friends and church family. We pray a lot of specific names and needs. We believe! No matter what, Robby's spirit remains intact, and I believe he has special times with Jesus and probably angels that we don't normally experience, if ever. We pray for his healing, of course, too and for his night. He just is so smiley afterwards that I know it's a powerful time. Anyway, it's worth every minute.
Lastly, this is what we read yesterday in Micah 4:6-7: "In that day," declares the LORD, "I will gather the lame, I will assemble the exiles and those I have brought to grief. I will make the lame a remnant, those driven away a strong nation. The LORD will rule over them in Mount Zion from that day and forever." It's about Israel, I get it. But the words jumped out of the page at me - it is living and active and sharper than a two-edged sword, after all!
The healing of the LORD is coming. He is coming soon! We rejoice!
Love and peace to you all...Judy
Respiratory Sincytial Virus (RSV)
Written Jan 23, 2014 11:27pm by Judy McCulloch
We have gotten quite an education on RSV these past couple of whirlwind weeks.It's nasty! And, yet, we are so thankful it did not develop more seriously inRobby. We empathize with those in PICUs, particularly with infants fightingthis disease. I can sure understand why it’s so dangerous to them (as well asthe elderly!) While we might feel wehave a bad cold with it, (no one here was sick, however), it islife-threatening to those with compromised systems (like Robby), infants and theover-70 crew – those not strong enough to cough it out forcefully enough is myguess. We might be familiar with bronchitis, which is an inflammation of the “branches”in the lungs, RSV heads to the smallest branches of the lungs. They become inflamed, hence, the difficultybreathing.
As it starts to clear up, even more damage begins. It sloughs off the tissue that lines thosesmall branches, leaving them open and vulnerable for a slight cold to become amajor catastrophe for a year out. Robbyhad been diagnosed with RSV when he was initially in the hospital after theaccident. It being very contagious, he most likely contracted it there. Perhaps he wasn’t healed enough to fight itthis time, or it just revisited him. Itis not something that you can only get once.
I say all that to give you a picture of this illness so many ofus never before heard of, and, if we did, we don’t necessarily know why it isserious. It’s a great reminder to takeevery precaution during the cold and flu season to wash hands a lot, to keepsanitized all we touch as much as possible (phones, remotes, door knobs), aswell as coughing into our elbow (not our hands), particularly when around avulnerable population.
So, therefore, Robby has missed school for two weeks, includinghis birthday last week (6!!!). We wereso tickled and touched to receive a packet in the mail of handmade cards by allhis classmates. How thoughtful! I know he enjoys being there so and glad wehave the okay to return next week. We read and reread those cards toRobby. You can imagine how wonderful itwas to receive them. The nurse thataccompanies him to school said that the children miss him and were so excitedto send these to him. It just blesses mysoul beyond words.
We got new equipment this week to help his breathingimprove. The RSV creates thicksecretions that can be very difficult to expel. Despite all the respiratorytherapy we knew to do and diligently did (chest taps, nebulizer treatment ofalbuterol followed by sodium chloride every four hours, even dusting off thecough assist, steam from the hot tub, vaporizer, stander – even in the middleof the night – frequent repositioning and suctioning galore, you name it, westill ended up in the ER last week, as you know. The follow-up appointment withhis absolutely wonderful pediatrician was very productive. It is she that gave us the explanation ofRSV, and she also ordered new equipment that has proven very helpful. She told us that he would not feel 100% betterfor four weeks. (Thank God we are halfway through already!)
Because we were running out of oxygen and deliveries had to comein the middle of the night with a faulty tank, etc., she ordered an oxygen compressor. It is very easy to use, and we won’t run outof oxygen in an emergency. It came twodays after our visit (along with training)! The other item came the dayfollowing our appointment, with training from a respiratory therapist. It is a respiratory vest (his is in camouflage!).We call it the jiggler machine. Twohoses connect to the vest on either side, and when the machine is turned on,the vest inflates then vibrates and compresses. It’s enough to get him to expel the mucous. Amazing! He likes it plenty. We run the nebulizer while it’s on him and pauseit to use the cough assist. And, of course, we suction during, if necessary,and following. It’s really clearing him up.
With three 20-minute sessions of the jiggler vest, 3-4 exercisesessions, including the hot tub, food and meds and changing, stimulation triesand so forth, the days are packed. But it’s worth it!
We miss Robby #1. We hateto see the suffering of Robby #2. Wehave an underlying sorrow all the time, even in joy. And so I was refreshed intoday’s reading, Philippians 4:4
Rejoice it the LORDalways. I will say it again: Rejoice! Let your gentleness beevident to all. The LORD is near. Do not be anxious about anything, but ineverything, by prayer and petition, with thanksgiving, present your requests toGod. And the peace of God, whichtranscends all understanding, will guard your hearts and your minds in ChristJesus.
I am most thankful to know the King of kings and the LORD oflords. Blessings to you all…God’s verybest!
I have a new email address: email@example.com.
Dee Z, if you read this, will you please send me a test note tothe above address? I cannot find yours. J
Mammy (aka Judy)