Riley Simmons's Journal
Riley's Make-a-Wish Celebration
Written Mar 4, 2014 5:29pm by Mary Keeney
So many wonderful things have been happening lately in the life of Riley! Here is a link for you to read an outstanding article published in the Manteca Bulletin. It is the best story I've read so far and gives a good account of the latest news about Riley's recovery:
You can also see the YouTube video that Make-a-Wish created about Riley and showed at the Sacramento Gala Celebration on Saturday when her wish was revealed. Go to YouTube and search for Wish Child Riley's story
(Make-A-Wish Northeastern California and Northern Nevada).
You might want to grab a box of kleenex first :)
Long overdue update
Written Jan 31, 2014 7:44pm by Mary KeeneyIt's time to celebrate, Everyone. After 15 months of treatments, Riley has finished her chemotherapy! Yippee! Thanks to all of you for your continued support and prayers. A week ago Wednesday, Riley got to "ring the bell" at UCSF, signalling her final hospitalization for chemo. I wish I could post the video of her doing that with all the nurses and doctors, as well as family, cheering her on. You can catch it on Facebook, or send me a request and I can email it to you. It's precious. The staff said they had never had a child ring the bell so fervently! After the bell ringing, Riley went door to door on the oncology unit, skillfully pushing her IV stand, offering amazing organic cupcakes to her fellow young patients and the staff. What a poignant time.
This doesn't mean it's time to let down on the prayers, though. This week Riley's blood counts have dropped significantly. Today she had to go back to UCSF for a transfusion of platelets. There is a possibility that she will have to return next week for a blood transfusion. Until her numbers go back up, she is on "house arrest," meaning that she is too vulnerable to infection to be around other people. It also means she cannot return to school as soon as she had hoped. Let's all visualize those blood cell counts rising back to within normal ranges asap! And a special thanks to all the people who donated blood.
Update from UCSF
Written Jun 27, 2013 8:31pm by Rick SimmonsI think we should quit promising more frequent updates since it doesn't seem to be working. I guess we will just do the best we can. Things have been going very well since the last post. The "B" cycle was very hard on Riley's blood counts (her WBC's actually dropped to 0). She had to be put on house arrest for awhile as she had no immune system but other than that she tolerated it very well. Her counts have since rebounded and she had no problem staying on schedule for her next round.
We reported back to UCSF on Monday for round 4 which started off with her first full scan in months. We are so happy to report that the scan was negative which is positive! That sounds confusing but the bottom line is her doctors were very happy with the results. There is no sign of any bad stuff going on in her head or spine!! I cant tell you how relieved and happy we were to get that news.
Last weekend we celebrated Allie's 19th and Haley's 15th birthday. It is hard to even type this numbers but I'm glad we were able to be home as a family for their birthdays.
Riley reached another milestone in her recovery recently when she participated in her first soccer practice since her diagnosis! She was all smiles out on the field with her friends and although she needed frequent breaks she did great! To give you some idea of what soccer means to Riley, we would like to share the story that was written for the "Kick for a cure" game. Since it tells a little bit about her journey it can be found in "My story" here on Caring Bridge.
We would like to express our sincere gratitude to our family and friends for your continued love and support. It has meant so much to us all!!
Love, The Simmons' Family