My Story

Reese Kimberly Behnken

Metachromatic Leukodystrophy (MLD)

Diagnosed: September 1, 2006.

http://www.myspace.com/reesebehnken

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An Informational Video I Made About Reese's MLD Journey So Far......
http://www.youtube.com/watch?v=NTP3f3pQT2c

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Saturday, July 4, 2009 6:48 AM, EDT


Happy 4th of July!!!!!!

We brought the kids to see fireworks last night.  I do not care what anyone says.....  Reese can still see a little, because her eyes were fixated on the fireworks the whole time :)

This is my favorite holiday.... and I always made it a point to bring the kids to see fireworks each year...  Just like Riley and Ryan...  Reese would get sooo excited... sit on my lap and point out to the "boom booms"....  I really miss those days!

Reese has been doing well.  We have been getting beach time in too...  She LOVES the beach.  Every time we get there, she has this look of peace and does a big sigh.  That's my girl!

Hope everyone has a safe and relaxing 4th :)

Thanks for checking in on Reese today,

~ Kim

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HOSPITAL INFORMATION

Meridian - Jersey Shore University Medical Center
1945 Rte 33
Neptune, NJ 07753
United States