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Rachel’s Story

Hi everyone, this is my website where my family and I can keep everyone updated about what's going on with me. Please take the time to read the journal and thank you to everyone for all your support and love. It means the world. 

So, my liver tumor follows my DVT (aka my blood clot in my leg) which was diagnosed after LOTS of leg pain and swelling at the end of January. I've been on blood thinners since then to break it down. That was enough in itself, but...

Then about two months later I began to have shoulder pain (Mon 3/29) that my doctor worried might point to another clot in my lungs. I went into the ER for a CT scan of my lungs (Wed 3/31). No clot was found, but a pretty big mass on my liver showed up. I went back the next day for a full abdominal CT so they could get a complete look at the tumor. Since it's so big, the signs are pointing to it being cancerous. Theres no way to tell just from a scan, but with a mass like that surgery is definitely needed to remove it.

My surgeon was going to be from the hospital at the U of M, and after talking with my doctor at SMDC, we decided we should go see him. After arriving at the hospital (Fri 4/2) and moving into my room in the pediatrics unit, we had a lot of waiting til he was done with surgery. Finally, him and the whole crew showed up. The plan was for me to have surgery and just get the whole thing out of there. Surgery came up quickly on Monday at 11am. it was only about four hours long.

Dr. Acton, my surgeon, called the tumor "angry" and says it looks to him to be cancerous. The pathology report came back on the tumor, and it is cancer. Its called hepato cellular carcinoma (hepatoma for short) and its a kind of liver cancer that adults get, so its weird that i have that kind. also, i happen to have the rare strain of it.. but that just means i have an otherwise healthy liver.