Princess Riley Bear
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Welcome to Princess Riley Bear's CaringBridge website! We have created this site for you, our family and friends, to keep you updated on Riley and her battle with Sandhoff, a terminal and very rare neurological disease. Please keep Riley in your prayers as she continues to fight this disease. And remember, live each day to its fullest as we are not always guaranteed tomorrow!

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  FRIDAY, JULY 11, 2008 02:35 PM, EDT
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It’s back to the GOLF theme as a reminder that the Riley Luce Benefit Golf Outing is quickly approaching…only 3 weeks away…Saturday, August 2nd. As I mentioned in a previous update, golf is at FULL capacity. Since it’s for such a GREAT cause, turning people away has been a very hard thing to do, but unfortunately with golf you only have so many holes, so many carts and only so much time. But, I am BEGGING those who will not have the opportunity to participate as a golfer to still come out and enjoy dinner, spend your money at the color wheel and auction, buy a Princess Riley t-shirt, cup or a raffle ticket or two and then enjoy listening to your favorite classic rock ‘n roll, oldies and a bit of country music by Krazee Katz later in the evening. You will definitely not want to miss out! I know Brooke would be more than happy to put you on a cancellation list just in case someone drops out last minute if you would like. You can email her at rileygolfbenefit@yahoo.com.

We are very happy to report that many local businesses have shown their support by sponsoring a hole. Given that the economy is not the greatest at the present time, it’s nice to know that so many people care and are willing to help us FIND A CURE! Our community is wonderful! We are still working diligently to obtain more auction items. Lots of items have been promised but just have not been received quite yet. I am certain they will be flowing in here soon. In the meantime, here are a few that we presently do have in-hand: autographed 8x10’s from Derek Jeter, Trevor Immelman, Luke Donald, Arnold Palmer and Bill Engvall. Autographed books from Kirk Cameron, Paula Deen and Patricia Polacco; autographed t-shirt from Larry the Cable Guy; autographed poster and new CD from Miley Cyrus; Tim McGraw’s new book, “My Little Girl”; Binder Park Zoo passes; Fun Spot Amusement Park passes; Cedar Point tickets, a TiVo; Screaming Eagle pipes; motorcycle tote; K&W tote; Coca Cola cooler; laser level; lantern; and lots of gift certificates. Keep checking back in the next couple of weeks because I hope to share some more really great items for you sports fans out there.

On a personal note, Riley is about halfway through her monthly course of antibiotics. She seems to be responding well. I hope it continues that way as we have a very busy next few weeks.

We had a good 4th of July weekend camping with lots of friends right here close to home. Who says you have to travel far to have an enjoyable vacation? The weather was absolutely beautiful which made it all the better. Riley was pampered having her fingernails and toenails painted and her hair French braided every day. Thank you, Luann! I got to share a story from the weekend that really touched my heart. Emilee, very good friends of ours’ daughter, is a year older than Riley. She rode her bike to the campground store and came back with two bracelets – one that said BEST and one that said FRIENDS. She immediately opened it up and put one on her wrist and one on Riley’s. I know in a 7 year olds world the meaning of “Best Friends” is much different than what I know it as an adult. As a little girl, you have lots of “best friends” so Emilee could have given that bracelet to any one that day. But just the thought of her giving that to Riley was extra special. Emilee will never know it, but she gave Riley more than just a bracelet that day, she gave Riley’s Mommy a memory she’ll treasure forever.
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EMAIL AUTHOR
luce@cbpu.com

HOSPITAL INFORMATION
University of Michigan
Ann Arbor, MI 48109
United States