Hello all of my dearest friends and prayer warriors! I write to you tonight with a prayer request (Connor is fine...nothing HUGE...we just need a little help and know that God is the only one with the ability to do BIG things).
Connor is a hurricane on two legs! It is so funny! He is running, jumping, throwing and destroying anything within his path. Or...it seems to get the best of him...black eyes, bruises, and "booboos" seem to be the norm. :)
My prayer request is this....we cannot seem to get Connor well. Everything that is the norm for others is so much harder with Connor. As I learn to understand it more , one of the things he deals with is having "tubing" that is incredibly small. Imagine any "tubing" you have in your body and it has become an issue with Connor. He has been fighting an ear infection for the past three-four months (his ear canals are TINY). We were scheduled to replace his tubes (for the third time in less than a year) this Thursday....but, he came down with croup (another virus that he seems to get constantly). He was doing okay with the croup, but started running high fever again today and tugging at his ears. He is coughing alot and can't get much sleep and we hold him to keep his drainage from making him cough more. I know it sounds like normal kid cough stuff, it is just harder on Connor. We are trying to get an appt with Dr. Atkinson again to test his immune system again, but have been unable to get in to see him. Also, his pediatricians seem to be in limbo and they never know or understand what is going on with him. It is frustrating because it seems like none of the doctors know or understand and we just keep going in circles while Connor continues to not get any better.
We also went to see the GI again and were a little unhappy with the news. He was unhappy with Connors weight and eating habits and mentioned thinking about a tube in the future. I cant see myself ever agreeing to this. I cant wrap my brain around why you would give a child a tube who has the ability to eat for himself. He eats well....if he eats. He eats like a bird and refuses to eat or drink as a normal toddler would. He weighs a wopping 22 pounds and looks like a starving Ethiopian child when he is running around baby naked. We laugh at him and I know that lots of kids are tiny, but I want him to get the nutrition he needs (especially since he runs 24/7).
Please send up some prayers for my sweet Connor man. Pray that we can find a pediatrician that understands him and will handle each issue that we face aggressively. Pray that we can figure out how to fix his ears. Pray that we can get him well and learn how to keep him that way. Pray that we can get in to see Dr. Atkinson. Pray that he doesn't have to struggle with something all the time....he is always happy and playful and loving...but he struggles at the same time. He is so tough and is not phased by all of the things that would bring you and I to tears. We even have a hard time spanking him because he looks at us like, "is that all youve got?" :) Pray that we can find doctors who can heal him and that we can end this cycle of "stuff" that is hard on my little man. Pray that he can gain weight and that he gets the nutrition he needs. Pray that his mother can find patience with the doctors and not be frustrated over watching her child suffer. Pray that I can let God be in control and not try to demand it to be fixed the way that I want.
I thank God every day for the miracle that is my precious Connor! Thank you for praying for him. Thank you for praying for me.
I love you all,
God Bless,
Connors Mom
