My email has changed. It is now chaneyteam@att.net.

My Story

Welcome to Faith's CaringBridge Site. This site was made to keep you updated on her condition. Be sure to read our journal, view the photo gallery, and drop us a line in the guestbook. Check out the links to help you better understand Aplastic Anemia, bone marrow and cord blood donation.

Weeping may endure for a night, but joy comes in the morning. Psalm 30:5b

Journal

Monday, June 29, 2009 3:13 PM, CDT


Day +348
Just wanted to update and let you all know that Faith is still doing good.  She has had a little bit of a rummy nose off and on for about a week, but nothing too bad.  Other than that, her bladder pain seems to be much better than it was.  Hopefully that means that the BK virus is going away! She has been full of energy and enjoying her summer immensely.  She LOVES water balloons and has doused all of us quite a few times. 
We are headed to Wisconsin this week.  We actually decided to make it a little vacation for us, since we haven't really had one in several years.  We will be going to the Creation Museum in Kentucky/Cincinnati (just miles from each other) on Thursday and maybe a few other fun stops.  Whatever we see that interests us.  The kids are really excited about it.  Her appointment in on Monday and we should be heading back home on Tuesday, which means we will get home next Wednesday.  We are really looking forward to the time together. 
Our house situation is slowly progressing.  We have closed on the new house and are just waiting for the sellers to move out.  We were actually supposed to get the keys today, but have not heard anything yet.  Ugg... We really wanted the keys before we left.  We hired some new contractors and are hoping to start making some progress on the old house soon.  I think they are planning to start the work when we get back next Wednesday.  We also bought new laminate floors for the new house, getting rid of the carpeting, for the same reasons we did it in our old house.  We wouldn't want any problems with allergies and things for Faith to crop up. 
One last thing, we have been allowing Faith to do more than she has done in quite a long time.  She went to church for the first time in two years.  WOW!  We are thankful that just about everybody understands the situation and did not come around her if they had any kind of cough or runny nose.  Faith actually got up and told the congregation thank you for their prayers.  Also, she went to a VBS that was donating some stuffed animals to Arkansas Children's Hospital and told the kids a little about ACH.  It floored me that she was not at all shy about going up and taking the microphone.  I didn't even know what she was planning to say, but she did a wonderful job.  I am so proud of her. 
David had a great time at science camp and has been helping Fred around outside quite a bit, mowing and such.  He is already planning his birthday party for the end of July, and very excited about turning 10.  He told me it is a "VERY  big deal, mom.  I am getting another digit in my age.  That won't happen again till I am 100, and then you won't be around to see it!"  FUNNY!  So we are going to have a big party for him. 
Overall, it has been a busy summer so far, and promises to be much more busy from here on out.  All I can say though is...THANK YOU GOD FOR AIR CONDITIONING!
The LORD will fulfill his purpose for me; your love, O LORD, endures forever— do not abandon the works of your hands.  pSALM 138:8

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E-MAIL AUTHOR

chaneyteam@att.net

HOSPITAL INFORMATION

Arkansas Children's Hospital
Little Rock, AR
United States