Philip is now almost 10 months off treatment and as Dr. W.
said, “I couldn’t be more pleased with how well Philip is doing!” Since getting
his port out in July, Philip has finger pokes each month to get his CBC check.
When he went to clinic in February they needed to get extra blood to check his
Vitamin D/Calcium so they drew blood from his arm. He was a little anxious and
asked a lot of questions before allowing the truly wonderful lab tech to draw
blood but he did AWESOME! So awesome that when he went to clinic two weeks ago
he requested his blood be taken from his arm! Philip says it doesn’t hurt at
all and it’s much better than all the finger squeezing that needs to be done
when getting blood from his finger. What a trooper…always has…always will!
Philip did wonderful in January when he transitioned from
First Grade back to Kindergarten. He loves his new teacher, he loves his new
friends, he’s in the right place academically and he’s happy! He’s so happy…he’s
even comfortable enough to act up at times resulting in getting his folder
signed…once, twice, maybe three times?!? ;) Even though this decision was such
a hard one…so far everyone believes it is the best one for Philip. He was so
proud to show off his classwork at Open House! He did a great job with all the
K classes singing “Five Green Speckled Frogs” for VIP day. Also, one of his
good friends, Gavin, a fellow cancer survivor recently joined him in his
Kindergarten class a few weeks ago so and that made Philip even more excited
about going to school each day!
Philip enjoys being a Cub Scout and he earned his Tiger Cub
Badge last month. His Pinewood Derby Car also won “Goofiest Paint Job”! He also
started swimming lessons in January. Philip has always had not a fear of water
but not a fan of the water all his life. He’s happy to just sit on the steps of
a pool. Since it’s the one physical activity he can participate in we really
wanted to get him off those steps! He has LOVED swimming lessons and has made
progress! It was such a joy to see him so happy! However, his last lesson for a
while will be this Tuesday…
At Philip’s orthopedist visit last week, the x-rays show his
femoral head is not showing any signs of improvement so he will be having his
legs casted this Wednesday. He will be put to sleep for this procedure – he’s
very excited to be getting “sleepy medicine” again…I think he’s been sedated
way too much that past four years to enjoy it so much! They will inject dye
into the hip area to get a good look for correct positioning and he may need to
have tendon cut as well. Both legs will be casted with a bar across holding
them in place. The casts will be in place for at least 6-8 weeks and maybe
longer. We hope this gives the femoral head a chance to begin growing again. We
had a wheel chair delivered to our house over the weekend and Philip loves it.
I know he fully does not understand how much this casting will alter his days…even
we are having a hard time with all the logistics!
I ask for your prayers that the surgery goes well on
Wednesday with no complications. Pray for Philip to accept the limitations he
will have to endure and for his heart to be protected from sadness. Pray for
Philip to let us know when he’s in pain, at the Dr. last week, he was maneuvering
his legs around and asked Philip, “does this hurt?” Philip said “No” but the
Dr. mentioned how his face told him that yes, he was in pain. I know Philip
puts up with a lot of pain that he doesn’t let on to and so I hope he will let
us know when he is hurting. Pray for Philip to continue to do well in school
despite being confined to a wheel chair. Pray for his bone to heal.
Wednesday also marks four years since Philip was diagnosed
My heart hurts that he continues to struggle with side
effects of treatment. Yet, my heart also fully believes that just as our Lord
held Philip in the palm of His Hand all through his treatment, He will continue
to hold Philip during this part of the journey. And that bring my heart peace.
Thank you all for following Philip’s journey over the years.
I’ve said it over and over that one of the greatest blessings has been
witnessing the hands and feet and heart of Jesus touch Philip and our family
the past four years…through acts of service, love and prayers.
We are blessed.
“Praise the Lord; praise God our savior! For each
day He carries us in His arms.” Psalm68:19