Peter Brady's Journal
Written Feb 12, 2014 7:50am
Pete is now the proud owner of an FES Bike. (Functional Electrical Stimulation).
While cycling, he can exercise leg muscles and get a good cardio workout. The link below is to an article about Pete’s fraternity brothers who raised money for him to get the bike. http://www.phideltatheta.org/2014/02/pennsylvania-iota-pittsburgh-phis-raise-10000-assist-brother-paralysis-rehabilitation/
His nose picking skills continue to improve.
Jim is pretty tired most of the day. He continues on a regime of chemotherapy that is 5 days of oral Temodar, with 23 days off. No radiation in the foreseeable future. The last MRI on 12/30 looked good with no new cancer growth evident and the ventricle swelling slowly going down. With this good news, it is puzzling why he does not feel better. Everyone reacts to the treatment, medication and disease in their own way. Finding words continues to be a challenge. He is sleeping alot, and the hope is that this will help him get stronger.
The road ahead is unclear. I keep saying we are off the grid right now, and I guess I mean all notions of what I imagined this time in our life would be like are stuff of dreams. Pete, my nephew Michael and Jim, have certainly shown me how our love for each other can help us get through times of penetrating darkness.
We continue to be grateful for your prayers. We are also richly blessed by those close to us : our lifelong friends, our amazing neighbors and the family that we have depended on for so long.
Doctorow said this about writing, but I have been thinking about how it is true for the path we are on right now. We can't see too far ahead.
'Writing a novel is like driving a car at night. You can see only as far as your headlights, but you can make the whole trip that way.'
Many thanks, Jane
Written Dec 10, 2013 3:46pmHello its Pete!
Lots to talk about. As you know I'm getting stronger which has enabled me to start picking my nose again. iIs beautiful. Sometimes I have a little trouble getting up there and scooping the detritus out. I end up pushing it farther up there. Luckily, I haven't lost hope. Its a two picks forward, one pick back situation. Now to the real problems. When I finally get the previously mentioned litter out of there, I'm stuck with a booger on my finger. As you know, an average American would just give it a flick. I cannot. Its one of the devastating ailments I have to endure. This leaves me with 2 options: 1-Wipe it on my chair. 2-Put it on a stationary piece of furniture. Well I don't want boogers on my chair, obviously. Wiping them on my surroundings will be too undisguised. Every booger on the furniture at waist height will clearly be mine. Its as if I'm leaving calling card. As you can see, our troubles continue. Please, dont leave suggestions, Its something a man has to learn to fix with his own will power and tears. In the meantime i close my eyes and take a walk. http://www.youtube.com/watch?v=dZX6Q-Bj_xg **** **** I don't want to see this band in concert
Written Dec 3, 2013 7:34pmHappy Holidays folks! As some of you may have heard, Jim went to the hospital late Wednesday night because of a small 'focal seizure'. Essentially, he was having tremors in his right hand and right eye but was still totally alert. So he was in the hospital from Wednesday night to yesterday afternoon. The doctors adjusted Jim's seizure meds and it would seem as though we have found a good balance. He's been seizure free for two days!
A seizure is one of the expected side effects of the tumor and treatments, and Jim was lucky to have been without them for as long as he was. Apart from this slightly distressing symptom, the big tumor (fat man) himself and the little tumor (little boy) have experienced no new growth. The fluid retention in the ventricle that was happening before continues to lessen and the doctors are still recommending no surgery.
They don't know the exact cause of the focal seizure. Their best guesses are 1) swelling from the treatments, 2) the fluid retention in the ventricle, or 3) calcification around the tumor area (caused by dying tumor tissue).
So two steps forward, one step back as usual but overall things are good. Jim is tired quickly but doing well, and super bummed about being in the hospital for black friday! The man does love to shop.
Some of the things we are thankful for this Thanksgiving:
- The folks at Windom Elementary for sending us a turkey and organizing a service to plow our driveway for the winter!
- The girl's orchard park field hockey team for raking all of our leaves!
- The fact that Pete was able to eat at the table with us and feed himself.
- Being together with family from near and far on Thanksgiving and all they do to help us and show their love.
- The amazing family who brought over an entire dinner on Thanksgiving day!
- Our phenomenal neighbors who bring us delicious meals every week, such a great help!
- The nursing staff and doctors who worked so hard to help Jim on thanksgiving.
- The stand-up guy who shoveled our driveway after the first big storm in lieu of shoveling his own.
- Avoiding Jane's cooking!
- Everyone else on team Brady who is there for us all year round!