Journal entry by amy crum —
Dear Friends,
I’m writing with an update on Paul’s health.
For the last 4 months in hospice. Paul has enjoyed his life, coaching artists, daily calls from Brice, Lucas and the grandkids, and frequent visits from Megan. It's been a beautiful summer in our Chicago river oasis.
Back in April, Paul had 4 or 5 small tumors in his brain that seemed not to be causing significant problems for his thinking or comfort. But, over the last 4 months, Paul began to experience more and more fatigue and pain – especially headaches.
Last week, Paul went off hospice and back on Medicare so that he could receive medical treatment beyond standard hospice care. On Tuesday of this week, Paul had a brain scan during which the doctor discovered 11 tumors in his brain including some that had previously been treated with radiosurgery, but have increased in size.
Paul then had to decide amongst three treatment options that the doctor presented to him: do nothing; do a targeted treatment focused on one worrisome tumor or get radiation of the his entire brain.
Paul opted for radiation of his entire brain. He had his first radiation appointment today and will have 4 more treatments over the next 4 workdays.
We expect that Paul will lose his hair and be more tired for a while, but ultimately be in less pain.
Going back to the hospital has it's perks; a trip down Lake Shore Drive, Shake Shack burgers and fries. Paul hadn't been in a car since April, so seeing the lakefront again was pretty special.
Paul and I are so thankful for your love and care. Thank you to our amazing kids. Thank you to all our wonderful neighbors and cherished friends who have checked on us, delivered delicious food, and kept us laughing.
Thank you to all of you who shower love on Paul via Facebook and your texts and emails.
Love,
Amy + Paul
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