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Patrick’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Patrick.You can get caught up by reading the "my story" tab above and we will post more information as we get it.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

UPDATE: The official diagnosis was made on Oct 20, 2010 and it is high risk stage II Hepatoblastoma.

On Sunday night, Oct 10, 2010 Patrick told me his side hurt, and he pointed to the right side just below his ribs. Upon inspection I noticed a slight bulge under his skin there and when I touched it he winced.  There were no marks or scrapes or anything, just a bulge and some pain. So I called the advice nurse and she told me to take him to the ER. Once at the ER the doctors immediately thought it was appendicitis and asked me what I wanted to do. They said I could take him home and watch him or get him checked out...I called my husband and he said get him checked out...so we did. They started and IV and got blood work and then he went to ultrasound. They could not see the appendix on the ultrasound, so they put in for a CT scan...and that was about 2am...at about 4am the docs came in and sat down..."he has a mass on his liver" The doc was very concerned and wanted to get an MRI and a biopsy...but I didn't want womack cutting on him, so I asked to be referred to his Pediatrician and they got a second opinion on the scans for me. They verified the mass as well and referred me to UNC Chapel Hill, where he is currently seeing Dr. Gold (collin's oncologist). He underwent surgery on Oct 15th where they resected the tumor, the left lobe of the liver and a lymph node. After a few worry filled days we got the diagnosis, stage II Hepatoblastoma. Originally they believed it to be high risk, but later they said they believed one of the markers was only off because of the unusually early stage of diagnosis.  He had his port implanted on Nov 2 and began treatment on Nov 3. So far things have been very rough, he has been nauseated and vomitting for the last three weeks...some days more than others, but at least once a day he says he either feels like or actually does throw up. We are not really sure how long treatment is going to last, for now they are saying 4-6 months depending on his response to the chemo. We are praying that he does not have any of the long term side affects of the chemo (kidney damage or hearing loss) but for now we worry about the present! Prayers always welcome and please sign our guestbook and let us know about your visit! We thrive on the visits of those who care!

Latest Journal Update

4 yrs

I suppose that it is a good thing that I forgot to update at the 4 yr scans. Maybe that is a sign of what is to come? Idk. All is well with my middle son, his scans looked beautiful, as did his blood work. Appetite is still pretty wimpy, but I am hopeful that a growth spurt will have me dreaming of days that he didn't eat like three grown men. In the mean time we homeschool, play lots of baseball, and enjoy every day that we have been gifted. Even if it means screaming like a lunatic for everyone to get their shoes on! Lol
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Comentarios

3 Comentarios

Joyce Nosker
By Joyce Nosker
Sorry this has taken so long, but so happy and thankful that Patrick is HEALTHY!

He will eat very soon. My 12 year old slender step-grandson is beginning the pre-adolescent appetite now. The last dinner we had to together he ate 4 helping!

It will begin, and from there on.....
Sandy Daron
By Sandy Daron
Praise the Lord for the GREAT news!!! YEA, Patrick!!!

I love the pic of the boys!!|

Happy St. Paddy's Day!

Love ya,
C.O.L.E.s Foundation
(Caring Openly, Loving Eternally)
www.colesfoundation.org
www.kidsunitetofight.com
www.colespages.org
Email: sandy@colesfoundation.com
Franklin Floyd
By Franklin Floyd
Fantastic news! :)