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Mi historia

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Patrick.You can get caught up by reading the "my story" tab above and we will post more information as we get it.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

UPDATE: The official diagnosis was made on Oct 20, 2010 and it is high risk stage II Hepatoblastoma.

On Sunday night, Oct 10, 2010 Patrick told me his side hurt, and he pointed to the right side just below his ribs. Upon inspection I noticed a slight bulge under his skin there and when I touched it he winced.  There were no marks or scrapes or anything, just a bulge and some pain. So I called the advice nurse and she told me to take him to the ER. Once at the ER the doctors immediately thought it was appendicitis and asked me what I wanted to do. They said I could take him home and watch him or get him checked out...I called my husband and he said get him checked out...so we did. They started and IV and got blood work and then he went to ultrasound. They could not see the appendix on the ultrasound, so they put in for a CT scan...and that was about 2am...at about 4am the docs came in and sat down..."he has a mass on his liver" The doc was very concerned and wanted to get an MRI and a biopsy...but I didn't want womack cutting on him, so I asked to be referred to his Pediatrician and they got a second opinion on the scans for me. They verified the mass as well and referred me to UNC Chapel Hill, where he is currently seeing Dr. Gold (collin's oncologist). He underwent surgery on Oct 15th where they resected the tumor, the left lobe of the liver and a lymph node. After a few worry filled days we got the diagnosis, stage II Hepatoblastoma. Originally they believed it to be high risk, but later they said they believed one of the markers was only off because of the unusually early stage of diagnosis.  He had his port implanted on Nov 2 and began treatment on Nov 3. So far things have been very rough, he has been nauseated and vomitting for the last three weeks...some days more than others, but at least once a day he says he either feels like or actually does throw up. We are not really sure how long treatment is going to last, for now they are saying 4-6 months depending on his response to the chemo. We are praying that he does not have any of the long term side affects of the chemo (kidney damage or hearing loss) but for now we worry about the present! Prayers always welcome and please sign our guestbook and let us know about your visit! We thrive on the visits of those who care!

Fuente

Kathleen Henry posted a new journal entry, "scans".

Hey everyone, Scan continue to be perfect for ol Pattywhack, we are looking further into his continued issues with the symptoms he has been having but thankful to say that ... Lea más

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Patrick's Guestbook.

I have journeyed. Through the long, dark night.  Out on the open seaBy faith alone,  Sight unknown And yet His eyes were watching meThe anchor holds.  Though the ship ... Lea más

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Patrick's Guestbook.

I have been praying for you and your family each day and somehow just got the feeling that today I should write to tell you so.  May God continue to surround you in ... Lea más

Jes Zelasko signed Patrick's Guestbook.

Patrick: So happy to hear that you have clear scans!! Love you! zelticsunset@yahoo.com C.O.L.E Prayer Team/ Team Member C.O.L.E.'s Foundation (Caring Openly, Loving ... Lea más

Veronica Slagel signed Patrick's Guestbook.

What wonderful news!  We'll continue to pray that the other health issues will be taken care of soon and pray thankful prayers for no cancer! Lea más

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Patrick's Guestbook.

Joining in Praises for God's answering prayers in ways that filled the desires of your heart for your dear son. Praying for identifying his other causes of symptoms so ... Lea más

Sharon Hobbs signed Patrick's Guestbook.

Great news Patrick!!! I am so happy for you.www.caringbridge.org/visit/raistlinhobbs Lea más

Caterina Grove signed Patrick's Guestbook.

Happy Groundhog's DayThe Second of FebruaryThere's only the day the whole long year,That I hope and pray the sun won't appear.The second of February, you all know,The ... Lea más

Sandy Daron signed Patrick's Guestbook.

WOOHOOOO!! PTL!! God is soo good!Love ya!! C.O.L.E.'s Foundation (Caring Openly, Loving Eternally)www.colesfoundation.orghttp://www.colespages.orgEmail: ... Lea más

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