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Patrick’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Patrick.You can get caught up by reading the "my story" tab above and we will post more information as we get it.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

UPDATE: The official diagnosis was made on Oct 20, 2010 and it is high risk stage II Hepatoblastoma.

On Sunday night, Oct 10, 2010 Patrick told me his side hurt, and he pointed to the right side just below his ribs. Upon inspection I noticed a slight bulge under his skin there and when I touched it he winced.  There were no marks or scrapes or anything, just a bulge and some pain. So I called the advice nurse and she told me to take him to the ER. Once at the ER the doctors immediately thought it was appendicitis and asked me what I wanted to do. They said I could take him home and watch him or get him checked out...I called my husband and he said get him checked out...so we did. They started and IV and got blood work and then he went to ultrasound. They could not see the appendix on the ultrasound, so they put in for a CT scan...and that was about 2am...at about 4am the docs came in and sat down..."he has a mass on his liver" The doc was very concerned and wanted to get an MRI and a biopsy...but I didn't want womack cutting on him, so I asked to be referred to his Pediatrician and they got a second opinion on the scans for me. They verified the mass as well and referred me to UNC Chapel Hill, where he is currently seeing Dr. Gold (collin's oncologist). He underwent surgery on Oct 15th where they resected the tumor, the left lobe of the liver and a lymph node. After a few worry filled days we got the diagnosis, stage II Hepatoblastoma. Originally they believed it to be high risk, but later they said they believed one of the markers was only off because of the unusually early stage of diagnosis.  He had his port implanted on Nov 2 and began treatment on Nov 3. So far things have been very rough, he has been nauseated and vomitting for the last three weeks...some days more than others, but at least once a day he says he either feels like or actually does throw up. We are not really sure how long treatment is going to last, for now they are saying 4-6 months depending on his response to the chemo. We are praying that he does not have any of the long term side affects of the chemo (kidney damage or hearing loss) but for now we worry about the present! Prayers always welcome and please sign our guestbook and let us know about your visit! We thrive on the visits of those who care!

Latest Journal Update

This is a copy and paste of the journal entry in Collin's cb, if you've already read that then you read this...different pictures though

Hey all. So Collin leaves for camp Carefree tomorrow with his brother Patrick. They will be gone for a week. Should be fun for them! They are both really excited! Keep asking me "how many more days til camp?" Lol they get home on the 11th, then on the 29th we will be back at UNC for both of their checkups. Collin has blood work, ENT follow-up, physical therapy, and a visit with the oncologist. And Patrick has scans and blood work. My momma heart is starting to get strung out. It's like clockwork how my body reminds me that these check ups are due, even when I don't feel particularly stressed or anxious, I will have a little stutter in my breathing, a slight hyperventilation...nothing extensive maybe 2 times an hour. But it's there. By the day of my eye will be twitching...it happens every time. Without fail. The boys have been well, they were both selected to be on their all star teams for baseball, but they opted to go to camp Carefree instead, all stars start Monday, camp starts tomorrow, easy choice for them lol. Patrick was also selected by his coaches to go to the Cal Ripken baseball camp in Maryland for baseball in August, really exciting, he will be going to that baseball camp as well. Big sissy Lacey has been busy with travel softball, she starts nearly college on August 5th (that's a high school for freshman yr and then college courses for the rest of the high school yrs, should have an associates degree by the time she graduates) she is so smart, and just amazes me daily! Just FYI I'll be copying and pasting this to Patrick's page as well, no need to double read...but I will be adding different pics to his ;) lol I'm a picture taking momma
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2 Comentarios

Joyce Nosker
By Joyce Nosker
They are growing up so fast. I'm happy that they are going to camp, and sure they will have the time of their lives.
Praying for your understandable anxiety and that the check ups reveal two healthy boys.
Lacey's classes sound exciting and how wonderful to have an associate's degree by the time she if finished with high school.

Enjoy your summer
Sandy Daron
By Sandy Daron
HOW awesome!! I am thankful the boys are doing well. They will have a GREAT time at camp. I am sure they will do great at the their appts.

That is sooo cool for Lacey. I will my kids would have been able to do that!


Love ya,
C.O.L.E.s Foundation (Caring Openly, Loving Eternally)
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