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My Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Patrick.You can get caught up by reading the "my story" tab above and we will post more information as we get it.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

UPDATE: The official diagnosis was made on Oct 20, 2010 and it is high risk stage II Hepatoblastoma.

On Sunday night, Oct 10, 2010 Patrick told me his side hurt, and he pointed to the right side just below his ribs. Upon inspection I noticed a slight bulge under his skin there and when I touched it he winced.  There were no marks or scrapes or anything, just a bulge and some pain. So I called the advice nurse and she told me to take him to the ER. Once at the ER the doctors immediately thought it was appendicitis and asked me what I wanted to do. They said I could take him home and watch him or get him checked out...I called my husband and he said get him checked out...so we did. They started and IV and got blood work and then he went to ultrasound. They could not see the appendix on the ultrasound, so they put in for a CT scan...and that was about 2am...at about 4am the docs came in and sat down..."he has a mass on his liver" The doc was very concerned and wanted to get an MRI and a biopsy...but I didn't want womack cutting on him, so I asked to be referred to his Pediatrician and they got a second opinion on the scans for me. They verified the mass as well and referred me to UNC Chapel Hill, where he is currently seeing Dr. Gold (collin's oncologist). He underwent surgery on Oct 15th where they resected the tumor, the left lobe of the liver and a lymph node. After a few worry filled days we got the diagnosis, stage II Hepatoblastoma. Originally they believed it to be high risk, but later they said they believed one of the markers was only off because of the unusually early stage of diagnosis.  He had his port implanted on Nov 2 and began treatment on Nov 3. So far things have been very rough, he has been nauseated and vomitting for the last three weeks...some days more than others, but at least once a day he says he either feels like or actually does throw up. We are not really sure how long treatment is going to last, for now they are saying 4-6 months depending on his response to the chemo. We are praying that he does not have any of the long term side affects of the chemo (kidney damage or hearing loss) but for now we worry about the present! Prayers always welcome and please sign our guestbook and let us know about your visit! We thrive on the visits of those who care!

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Kathleen Henry posted a new journal entry, "back to school".

Hey all! So fair warning, this one is a bit of a downer. Nothing significant has changed in the last month regarding diagnosis, etc. I am however struggling with some of ... Read more

Robert Murphy >Jacob's Dad< signed Patrick's Guestbook.

Praying for ALL of you.  Praying God continues to provide peace, comfort, healing, and lives full of sweet times of joy even during the raging storms of life. Hold fast ... Read more

Sandy Daron signed Patrick's Guestbook.

WOOOOHOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!! PTL!!! Love ya, C.O.L.E.s Foundation (Caring Openly, Loving ... Read more

Kathleen Henry posted a new journal entry, "All clear!".

I'm sorry for not posting I wanted to wait and hear about Patrick's scans and do it all at once and if I'm being honest I was too strung out worrying about the results to ... Read more

Kathleen Henry added a new photo.

Robert Murphy >Jacob's Dad< signed Patrick's Guestbook.

.Our prayer for you, your family, and HomeGrant them peace, most precious gift of all Keep the worried world far away and small When they return, may quiet fill their ... Read more

Kathleen Henry added a new photo.

Kathleen Henry added a new photo.

Kathleen Henry posted a new journal entry, "OT checkups".

Hey everyone, I am going to make this kinda short, I have some nasty vertigo from an ear infection so it's causing typing and sitting upright pretty complicated. Anyway, ... Read more

Robert Murphy >Jacob's Dad< signed Patrick's Guestbook.

Just a note of encouragement to take to heart the knowledge that God's love for you is never ending and His purpose for you is bigger than any problems we could ever ... Read more

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