Patrick has been released from the hospital (MDACC in Texas) and is going to remain in Texas so that the scans scheduled on June 16th will be done this coming Friday.
So far he is doing well with the feeding tube and now that the nausea is finally under control after so many differant drugs tried he has gained 4lbs! YEAH! He is also eating a few things on his own, that is by mouth because he has an appitite.
Although he never was well enough to start the chemo Rapamyacin that was to follow the radiation/chemo treatments, he did receive 4 interferon shots, the last shot was two weeks ago. I have to believe that the ability to gain weight, in addition to the much improved blood work is a good sign. He is no longer lymphopenia so his energy level is increasing, well is even in existance too His father is currently in Texas with him and will remain with him until I am able to get there. I had dental work that had been re-scheduled about 10 times finally done and plan to return to Texas this coming weekend if necessary.
I am terrified, as anytime scans are done for what will come next. The absolutely best scenario will be that there are NO tumors. Please pray that Patrick gets a break from the past three years of treatments. He so badly needs and deserves a break from all the invasive and horrific treatments that no one could be prepared for. I get angry sometimes that he's not fighting hard enough, but he's truly my hero. I have to remember that he's gone thru so much more than any other cancer patient I know of has even thought of enduring.
Patrick is our child, yet a young man who would like to be able to enjoy a life like that of his friends who finished college, and moved away from home independant from his parents.
He has been invaded to the utmost degree, and for so long that I can't think about any of it without sobbing.
When Patrick was finally diagnosed that horrible day in 2006 we were never told, nor would we have believed that our entire family of 5 would suffer cancer side effects. Patrick has to go through all the horrible treatments, and spend so much time being sick however our family of 5 is suffering from cancer. There is no way for you to understand this unless you in fact have lived it. God knows I pray you never will.
Following the scans on Friday, if the tumors are still there or new tumors have developed then another trial treatment will be discussed. Please pray nothing is there. Please pray for my baby. Please pray for all three of my babies.
God bless, and thank you to all the loyal friends and family members who have gone the full course with us. I will pray for those who couldn't.
Gina
