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Jeff’s Story

Chemo for round 32 started on May 4, 2015

The full story begins 9 1/2 years ago when I was diagnosed with Meylodysplastic Syndrom / Acute Meyloginous Leukemia in November 2005. I received two "rounds" of chemotherapy (one "7+3" and one high dose AraC) and then contracted parvovirus, which made me transfusion dependent for six months. This did, however, put it into remission which lasted about 2 1/2 years. In (2008) I was continuing to do well, and starting in about May, things started going downhill again. Through a series of blood and bone marrow tests it was determined that I had relapsed. Jennae and I went to the Mayo Clinic in Rochester where I received a total of five "rounds" of chemotherapy (two rounds of 7+3 and three rounds of high dose AraC). The leukemia is back in remission, but the Meylodysplastic Syndrome remains, and so we are using a new chemo drug that came on the market in 2009 in an attempt to control the MDS.

Latest Journal Update

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Jennae still writing!

Forecast for this week SUNSHINE! Jeff ‘s forecast, slightly foggy when he gets overtired, and the anticipation of him losing his immune system soon.

It is wonderful to have him back with me, even if it is just for a few hours in the day and then he goes off to watch a movie or read. He does not remember chemo land at all, wondered vaguely what all the fuss was about with his heart, which is still from time to time going into the pre-beats. So we will continue to follow that.  He takes many breaks between whatever he does,but that doesn’t matter as long as he tries to do a few things. He is enjoying seeing the garden come alive and even took a walk out to see what I was doing this weekend. Of course he got scolded a little because he is still unsteady,but I am trying to put chairs around the yard for easy access for him. We definitely have learned how to live differently through this journey, not afraid to use devices that aid and assist and how to use what energy he has for what he really wants to do instead of using it up in other ways.

Thanks for all of your continued Prayers. We appreciate them so much and know that we cannot even imagine this journey without them!Hopefully Jeff will be writing soon!




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Comments

3 Comments

Donna Eszlinger
By Donna and Delbert
thoughts and prayers to you both, as the sun shines once again , and hope warmer temps will follow.
Enjoy each day you can before the immune system gives up. We too had a nice, cool but
Sunshiny day, sure put a smile on everyone's face. keeping you in our prayers as you continue on this journey. hugs,
Craig Nessan
By Craig Nessan
Prayers for you both on this road that is both familiar and rocky! Christ is walking with you toward the light.
John Grebner
By
Thanks for the update. You continue in our prayers. Many days I wish I had the wisdom of how to use what energy I have for what I really want to do instead of using it up in other ways. Your sharing helps me to remember this wisdom. May Jeff's forecast be more sunny. God bless you both.