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Jeff’s Story

Chemo for round 35 will start on November 30, 2015 The full story begins 10 years ago when I was diagnosed with Meylodysplastic Syndrom / Acute Meyloginous Leukemia in November 2005. I received two "rounds" of chemotherapy (one "7+3" and one high dose AraC) and then contracted parvovirus, which made me transfusion dependent for six months. This did, however, put it into remission which lasted about 2 1/2 years. In (2008) I was continuing to do well, and starting in about May, things started going downhill again. Through a series of blood and bone marrow tests it was determined that I had relapsed. Jennae and I went to the Mayo Clinic in Rochester where I received a total of five "rounds" of chemotherapy (two rounds of 7+3 and three rounds of high dose AraC). The leukemia is back in remission, but the Meylodysplastic Syndrome remains, and so we are using a new chemo drug that came on the market in 2009 in an attempt to control the MDS.

Latest Journal Update

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Blue Badge of Courage …

I have been doing cardiac rehab for 2 weeks now, and I have learned a lot … I take a wheelchair in and out of rehab ... no more walking the long hallway because then I am too tired to do my rehab. My other problem was that as I was going along on my machine, I found I was unconsciously trying to keep up with the 80 to 90 year olds who were my rehab companions. One lady turned to me and said,  “When you get that a blue badge of courage off your chest then you can try to keep up. Until then you need to take your time and slow down.” Have you ever been put in your place by someone older and wiser than you? I sure was …

So, I go at my own pace, and believe me I am not breaking any land speed records on the recumbent bike and stepper they have me working on. I have managed to slowly build up to 15 minutes a day, three days a week, and I wear a blue pouch that has a monitor connected to me ... hence the “blue badge of courage.” I am learning … we met with the cardiac nurse practitioner the other day, and everything seems to be going according to plan.  Slow and steady on the journey is the key to success. Jennae placed a turtle next to my chair to be a constant reminder for me … slow and steady!

 

I have learned a lot wearing my blue badge of courage. We will continue with rehab 3 days a week ‘till I start chemo again on February 8th … thank you so much for your continued prayers and support! Jeff and Jennae







Comments

5 Comments

Susan Nalle
By Sue Nalle
You are making progress and slow and steady sounds like good advice to me! It is wonderful just to think that you are able to do what you are doing. Thanks for the insights on cardiac rehab too. Blessings and prayers to you and Jennae!
Caroline and Cliff Green
By Caroline
Go, Jeff, go. That is the call to rehab. Glad it is working for you...at your speed! Let those "older" folks just rattle on. Continued prayers for you and Jennae.
Craig Nessan
By Craig Nessan
One day at a time, one moment at a time, one heartbeat.
Be patient with yourself, as God is patient and kind!
All prayers for this journey!
Donna Eszlinger
By Donna and Delbert
Slow but sure wins the race, and no one is there to beat you,, all in its own time, until you are where you need to be. Each day matters, and as you work on this, you know that you have a constant nurse watching over you, by reminding you to slow down,, keeping you in our thoughts and prayers, for continued progress.. love and hugs,,
Carol Wendel
By Carol Wendel
Jeff, Love the turtle idea. Guess life is not a race :) Glad to hear you are doing well and traveling at your own speed. Trust you will build up lots of strength before the 8th. Thoughts and prayers are with you and your family!!