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Jeff’s Story

Chemo for round 31 started on February 23, 2015

The full story begins nine years ago when I was diagnosed with Meylodysplastic Syndrom / Acute Meyloginous Leukemia in November 2005. I received two "rounds" of chemotherapy (one "7+3" and one high dose AraC) and then contracted parvovirus, which made me transfusion dependent for six months. This did, however, put it into remission which lasted about 2 1/2 years. In (2008) I was continuing to do well, and starting in about May, things started going downhill again. Through a series of blood and bone marrow tests it was determined that I had relapsed. Jennae and I went to the Mayo Clinic in Rochester where I received a total of five "rounds" of chemotherapy (two rounds of 7+3 and three rounds of high dose AraC). The leukemia is back in remission, but the Meylodysplastic Syndrome remains, and so we are using a new chemo drug that came on the market in 2009 in an attempt to control the MDS.

Latest Journal Update

Untitled

Jennae still writing

Chemo Cocoon

I have tried to think of how I can describe these days. I decided the best words were chemo cocoon. Jeff gets all his shots through the week so we need to go to the clinic and he needs to walk the short distance to the car or wheel chair. We needed the wheel chair many times this week he was just too unsteady. But then when he comes home he cocoons into his bed and I have to deliberately go in and get in his face and say, water is here, you need to drink, here are your pills, here is some peanut butter toast. If I don’t do those things he is happy to just cocoon in his little nest of blankets and listen to a book on his ipad or watch a movie with his eyes close, “yes I am watching.”  Sleeping most of the time. So I decided we are in the chemo cocoon, and I wait for some recognition in his eyes and some independent thought. I was woken up today with, “what day is it?” I said Sunday,he said, “I’ll get church on the computer”. So he did and we worshiped again together through the wonders of the internet!

So hopefully there will be more recognition as the week moves forward and less cocooning as he will start moving off the heavy medications. Monday we get fluids again so that will help his system, and in the mean time I will be waking him up with more…time to drink!






Comments

6 Comments

Barb Kleven
By
God bless you as you journey through this cocoon stage. God bless you, too Jennae, as you faithfully minister to your hubby as he slumbers through the day. You are such a wonderful gift to him, and such an amazing witness of love and care! God bless you two! Barb Kleven
Roberta Southam
By Roberta Southam
tried to find something to write..nothing worthwhile is coming..so please understand we think about you both..often..pray for both of you..often...may the angels continue to attend you
Jack
Susan Nalle
By Susan Nalle
Glad to hear that things seem to be going well this time around. Thanks for keeping us posted. Every day is a blessing even wen one is "cocooning". Continued prayers and good thoughts are lifted up on your behalf.
Carol Wendel
By Carol Wendel
Cocoons are awesome for some of life's transitions, but how great it must be to emerge and re-enter the world. Glad he's "coming around" and hope you'll soon have him back!
Donna Eszlinger
By Donna and Delbert
thanks for keeping us updated on your days after chemo. keeping you both in our thoughts and prayers for a better week ahead, as you watch and wait for this fog to pass .
Deborah  Conner
By Deborah Conner
Great description especially during these cold days of winter.
Blessings and prayers,
Deborah