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Jeff’s Story

Chemo for round 30 starts on December 15, 2014

The full story begins nine years ago when I was diagnosed with Meylodysplastic Syndrom / Acute Meyloginous Leukemia in November 2005. I received two "rounds" of chemotherapy (one "7+3" and one high dose AraC) and then contracted parvovirus, which made me transfusion dependent for six months. This did, however, put it into remission which lasted about 2 1/2 years. In (2008) I was continuing to do well, and starting in about May, things started going downhill again. Through a series of blood and bone marrow tests it was determined that I had relapsed. Jennae and I went to the Mayo Clinic in Rochester where I received a total of five "rounds" of chemotherapy (two rounds of 7+3 and three rounds of high dose AraC). The leukemia is back in remission, but the Meylodysplastic Syndrome remains, and so we are using a new chemo drug that came on the market in 2009 in an attempt to control the MDS.

Latest Journal Update

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As Jesus passed along the Sea of Galilee, he saw Simon and his brother Andrew casting a net into the sea—for they were fishermen. And Jesus said to them, “Follow me and I will make you fish for people.” And immediately they left their nets and followed him. (Mark 1:16-18 NRSV)

Immediately! In the Gospel for this week there is a sense of urgency ... immediately they left there nets. If we think about it, there is always a sense of urgency in the gospels. There is an urgency to get the message out to the people. There is an urgency for Jesus to get to Galilee,and then an urgency for him to reach Jerusalem. There is an urgency for the people to accept his message of God’s love and grace. And there is an urgency for those who opposed Jesus to bring him to trial and put him to death. But then,Jesus rose from the grave, breaking the grip of death and offering the gift of life to all who believe.

In my life as a terminally ill person there is always a sense of urgency ... I have had to learn to balance these things ... the sense of urgency, the idea that everything has to get done immediately because who knows if there is a tomorrow … and the need to slow down, knowing that we are in God’s hands today AND tomorrow, even if there is no tomorrow. That is where the matter of faith comes into play … the peace of God passes all understanding, and that peace allows us to put the urgency in perspective.(Have any of you read Charles Hummel’s little booklet “Tyranny of the Urgent”?It’s good!) All of our lives can be consumed by urgent demands, yet if we take a step back, we realize that many, perhaps even most of those urgent demands aren’t all that important after all.

So, may the Lord bless you and keep you.

May the Lord smile upon you, and be gracious unto you.

May the Lord look upon you with favor, and grant you peace.

 

PS: blood counts continue to follow the trend of previous cycles we begin chemo again on Feb. 23,  if all continues to be stable.




Comments

3 Comments

Barb Kaldahl
By Barb Kaldahl
Thinking about both of you today. Praying the journey is holding true to your course and you are able to get out and about. Has been pretty nice in the area so I have been taking advantage of it and walking outdoors. Had a few snowball fights with the grandkids, built a snowman or 2 and enjoy their energy and company. Take care and prayers for smooth sailing.
Barb
Donna Eszlinger
By Donna and Delbert — last edited
have to totally agree with your lesson, We make demands on ourselves, have a time line to get things done,, and make plans, days in advance, and what happens if we are not here to full fill them,, Maybe those things are just not that important,, maybe a wake up call for us to heed... good to hear that things are on track for you with blood counts,, hang in there, and stay strong,, and well, We have much influenza A in the community, has I hit the N home hard, so everyone tries to not mix in large groups, anymore then necessary,, but at times cant be helped.. so we keep you in our thoughts and prayers for continued paths to follow, and healing until the next round of Chemo,, hugs to you and Jennea, as you wait it out, and give the body time to heal again..
Deborah  Conner
By Deborah Conner
What a great reminder! I pulled out my copy of Tyranny of the Urgent. It is too easy to get caught up in things that don't make a difference. Blessings on this Sabbath day, Deborah