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My Story

Chemo for round 28 starts on August 11, 2014

The full story begins almost nine years ago when I was diagnosed with Meylodysplastic Syndrom / Acute Meyloginous Leukemia in November 2005. I received two "rounds" of chemotherapy (one "7+3" and one high dose AraC) and then contracted parvovirus, which made me transfusion dependent for six months. This did, however, put it into remission which lasted about 2 1/2 years. In (2008) I was continuing to do well, and starting in about May, things started going downhill again. Through a series of blood and bone marrow tests it was determined that I had relapsed. Jennae and I went to the Mayo Clinic in Rochester where I received a total of five "rounds" of chemotherapy (two rounds of 7+3 and three rounds of high dose AraC). The leukemia is back in remission, but the Meylodysplastic Syndrome remains, and so we are starting a new chemo drug to attempt to control the MDS. In the background we are still in process of waiting for / preparing for a bone marrow transplant.

 

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Jeff Giles posted a new journal entry.

Isaiah 40:30-31 (NRSV) Even youths will faint and be weary, and the young will fall exhausted; but those who wait for the Lord shall renew their strength, they shall mount ... Read more

Jeff Giles posted a new journal entry, "Making Adjustments".

Making adjustments ... my apologies for not updating sooner, but we've been working at getting our heads wrapped around the discussion we had with my doctor last week. We ... Read more

Jeff Giles posted a new journal entry, "Sparks Fly".

Sparks fly … Last night we had the “best seats” in town, as the 4th of July fireworks went off just two blocks north of our house. They had moved the location this ... Read more

Jeff Giles posted a new journal entry, "The Fog".

Out of the fog and into the fog. Wait ... What? That's about the way of it here along the shores of Chequamegon Bay, about the same time that I came out of the drug ... Read more

Deb Mayer signed Jeff's Guestbook.

Reading your entry today is an inspiration.We have blessings all around us and sometimes we need to stop and "sniff" like Marty to truly notice all of them. May you both ... Read more

Jeff Giles posted a new journal entry.

A few walks…And he’s all worn out!I have tried on these cooler days to take Marty, and Jeff and his walker (chuck) on a neighborhood walk about! I figure there is no ... Read more

Jeff Giles posted a new journal entry.

Jennae Still writing!He’s up…but not really alert or moving much! But he is UP! YEAH!This is the time when it is hardest I think for me mentally, because I say, ... Read more

Jeff Giles posted a new journal entry, "Contrasts on the journey!".

Jennae Writing!Contrasts at the Clinic: Today is hump day. Jeff was very unstable as I tried to get him into the clinic so out came the walker and that seemed to give him ... Read more

Jeff Giles posted a new journal entry, "Chemo Starts Today June 2nd Round 27".

(JENNAE WRITING)Chemo Started today! That is a Good thing, a really good thing. It is always hard to start, because he gets so sick immediately as the drug is injected he ... Read more

Jeff Giles posted a new journal entry.

Jesus loves you and is with you every day of your life … believe in him always. A couple years ago I mentioned thinking about these words, well here I am thinking about ... Read more

Jeff Giles posted a new journal entry, "Fit-A-Bit".

Our journey continues with regular Monday, Thursday blood draws. We watch for anything out of the ordinary, so far nothing alarming, it's a very good thing. I love gadgets ... Read more

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