Allen Parkes's Journal
A Word From The Better, I mean Other Half
Written Mar 13, 2013 1:29am by Allen ParkesI know, I know you were hoping to see an update from Allen, that should be coming soon. But I thought it was time for me to express thoughts on behalf of our family to all of the amazing people, YOU, who have been supporting our difficult and uncertain journey called cancer. There aren't enough words in this world to say or show the gratitude, appreciation, and love we have for all of you. We are truly a blessed family.
There are so many people who ask me how I stay so strong during these difficult times. Most of the time I just say "I don't know that I am. I just go into battle mode, that's what I do". I know I can't/don't always keep up with everything the way I use to and I hope you all understand. Overwhelming is an understatement at times. But knowing how many people have their arms wrapped around our family makes it that much easier. It has a way of bringing a much needed smile at the end of a rough day; a moment of solace when you think it can't get any worse.
So a BIG THANKS to all of YOU for being there!
Written Jan 13, 2013 10:23pm by Allen ParkesDid a little light reading to remind myself of the statistical reality of the position I am in. Here is a sample: The median survival of glioblastoma patients is ∼12 months. However, 3–5% of the patients survives for more than 3 years and are referred to as long-term survivors.I constantly remind myself that these are median numbers and are not necessarily applicable to all patients individually. Everyone has a unique reaction to surgery, radiation and chemotherapy. Not to mention the multitude of clinical trials for experimental drugs of which I have tried each and every available one to date. Unfortunately the numbers are not very encouraging. On the other hand I don't feel that 3 years constitutes "long-term, how about you??With that, I will get to the point. I just reviewed my latest MRI results which showed positive results for the first time since this crap began. There was no tumor growth and less inflammation. In this game, no growth is a win. I am sticking with my current regimen and will hope for an even better result next time.I feel like I am ahead of the median numbers and I'm pulling away since this latest result. A little stress has been lifted, but I am always looking for new additions to my current regimen. I have gone to the holistic side!There is certainly lots of room for improvement here, I think being open minded about all options will best improve my odds.Well, there you have it. Despite a scary looking MRI, the tumor has not advanced as it previously once did. For that I am grateful and remain hopeful. I am 20 Months and counting.Oh, I forgot to mention that my son asked for Santa to make me better on his Santa wish-list! Can you believe that? Maybe Saint Nick is just delivering his gift???
Surprise Surprise Surprise
Written Nov 26, 2012 4:53pm by Allen Parkes
I hope that Thanksgiving was a happy time for all. I give thanks for our family, who welcomed us with their open arms, love and great food of course. Thank you all for such a warm welcome in Paso. I also give thanks for many more years of celebration together.
We had fun, but there really is no place like home, so the 7 hour drive commenced. As we pulled in the driveway we noticed a banner saying :"Continue The Climb" hanging on the front of our house welcoming us home (This is a saying that began with my family and friends in my home town a while ago). We were completely surprised and got the warm fuzzy feeling that we were back home in the El Cerrito Hood. Sure enough, as we walked toward our front door there were signatures all over the banner in support of our recent family struggles. It was a tearful experience for us to read all of the personal, positive messages of support people had taken time to write over their holiday. Thank you to everyone involved with the banner. Surprise(#1).
The next day I'm admiring the banner when I hear a familiar voice say: "Hello Mr. Parkes welcome home". He was pulling a wagon containing three awesome kids and a few random Christmas decorations. Then it started. Friend after friend, neighbor after neighbor began to walk up holding Christmas decorations. Crazy and unexpected once again. Out of the blue there appeared a crew of friends ready to help decorate our house for Christmas. Surprise (#2). Actually they were preventing me from falling off my roof like a dumbass. Thank you!! All! After a full day of work, the house looks wonderful!
Then we gathered inside comparing our exciting Thanksgiving stories when suddenly a Christmas tree walked through our front door. Surprise (#3). Our good friend who we like to call chef carried in a perfect tree. Thank you! All! What a chunk of holiday cheer to kick-start the season. My family and I couldn't appreciate it more. Thank you, Thank you, Thank you!