On Tuesday, March 25th, she was on the way to an appointment with Cindy when she began to have a seizure. Cindy pulled over the car, called 911, and Parisa was taken to the ER at Upstate.
Parisa had at least two more seizures after the initial one. In the ER, they did an MRI of her brain which showed swelling and fluid present. It was believed at that point that she perhaps had some type of brain infection. That possibility has still not been ruled out.
She has undergone a barrage of testing over the past several days. They have been keeping her in an induced state of unconsciousness to keep her calm and comfortable. However, she has been brought out of it a few times to determine whether her brain is responding to various stimuli. So far, this has been positive.
Although she is sedated, her family talks to her during the brief visits in her room. Your messages have been repeated to Parisa, and that will continue. As Cindy was speaking to her the other day, she began to mention that Kiyoshi was in the room, and Parisa opened her eyes when she heard his name.
Today, an extensive MRI was performed to scan her head and spine. Comparisons will be made to the initial MRI in the ER, but also the doctors should be able to glean more information than previously. The many lab tests that have been done take a while to process, and not many results have come in yet. One form of encephalitis had been ruled out. They believe that this is some type of viral brain infection, but we cannot really report that as fact until more information comes in.
The doctors treating Parisa are excellent. The staff has been caring, diligent, attentive and very professional. Cindy and Peyman are pleased with the care she is receiving.
As you can imagine, this is a real strain on everyone, especially her immediate family. Parisa's parents have been at the hospital from the onset, taking turns to go out for various necessities. The most important of those is spending some time with their other two children, Kiyoshi and Sasha. They have been graciously attended to and provided for by dear friends and family; this is IMMENSELY appreciated. They need all the support they can get!
Both Peyman and Cindy have been spending their nights sleeping in the waiting room of the Peds ICU.
I will add updates to this site as they become available, as quickly as I am able. Please feel free to contact me if you like. And DO leave your comments and/or messages here. This is a great way to stay informed.
Parisa has a Facebook page, on which I have left messages, and I am leaving info on my Facebook page as well. But if you do not have access to that application, this is the place to be!
I'm sorry that we do not have much to tell you. It is very difficult for Parisa's family to wait things out. Please keep them in your prayers. We are hoping that a diagnosis will be made soon, and that appropriate treatment will begin promptly.
Update in a nutshell: Parisa has been home receiving chemo there and going to the hospital for radiation therapy. She has a rare form of brain cancer. She is weak yet, and her energy level is low, but that's normal after all her body went through.
Home-bound schooling is in place though she does go to classes when she is up to it, for short periods. She is able to spend time with friends, mostly at home. We are all so thankful for the multitudes of you who have shown your love and concern, and offered help and support. WE APPRECIATE YOU!