Owen Campbell
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Hunter's syndrome is a rare genetic disorder where the enzyme, iduronate-2-sulfatase, I2S, which normally breaks down mucopolysaccharides is absent or deficient. Without treatment, the mucopolysaccharides build up in all the body tissues and cause eventual death.

Owen is strong and healthy and will beat this. His little body is capable of so much. Owen will beat all odds.

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  TUESDAY, JUNE 19, 2007 01:29 AM, CDT
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Hello everyone who ir reading, and not.....This is Matt, aka Matt, atleast I think that is how I am known in Amy's world. Losing Amy was, and is, the biggest shock I think I could have gone through, maybe aside from losing a child, but really, who's judging? We are ok, the boys are resilient, you can all ask how I'm doing sometime down the road, because frankly, I'm in shock, and still coming to terms with the reality of the situation. Amy was my rock, and my greatest influence, losing her leaves a huge whole in my heart and in our boy's hearts, forever.

But obviously we must go on, so go on we are. We are going to see parts of the world, be happy, and look for signs of Amy. I am touched with profound deepness, joy and sadness over the amount of support and love my family has received since Amy's physical passing. I will be greatful forever.

Owen is doing wonderful and thrives each day. This site started by Amy for Owen, so I will update as I can. I have a swarm of emails, phone calls, and messages to reply, so excuse my slowness. Aparently Amy was the hugest influence in a lot of people's live. This here below is what I wrote and read as her eulogy, please accept my prayers and blessing:

Those of you who were lucky enough to Know Amy can appreciate the complexity, difficulty, and deep deep honor in having to write Her eulogy. She is Greater-Than-Life, yet all too human. Amy’s life will always be a Mission and a Statement. She means business. Her heart is Huge and she’s absolutely with us tonight.
How many dreams, or thoughts, or meditations, or events have happened since her body failed? She’s funny like that, just ask my dad. A bird pooped on his head two days ago, so we know she is up there orchestrating things as we sit here and grieve and celebrate. If you Know Her she effects your life. She’s absolutely beautiful. Amy is the heart of our little family of four and she is with us still. They called for lightning today, and she called it off.
In the last 3 days I have heard her been called Poweful, Amazing, Influential, Funny, Nice, the biggest influence of some people’s lives, an Enigma, a Spitfire, Determined, Strong-Willed, Stubborn, Absolutely-All-Encompassing, and Alive.
She stood for things and didn’t have a bad bone in her body. She had Some funny ideas, and she had the greatest ideas. She’s an idealist, and all of her ideas, funny and great, had good intentions. She was often, by those who Knew her, warm to be around, and the energy of the Universe. Amy was Sexy.
Amy was my Venus, my Aphrodite, she is the Mother of my children, my Angel, my great physical and spiritual passion. Through all my failures she was my Goddess. Her Life will always be the greatest poem ever written. She was a Volcano. The greatest truth about Amy is we will be enriched by her life for years to come. She was of the greatest of Mothers. Mothering was her passion. I have been in awe of her life for some time now.
My beautiful, My Pretty, My Angel, My Bubby, just some of the names I called you. I will pray to you for guidance, you are my light, and always the mother of my children. I owe you the world for the gifts you gave to this family. Your devotion was baffling and awe-inspiring. As a mother you dedicated every ounce of your being to your children. Everything you did you did with passion, but the way you mothered outshined the sun. My life will be an unending search for any sign of your face, your love, and your wisdom. And I am fortunate to have your hand to guide with fiery Aidan and blessed Owen, your great great gifts to this family and this world. The world gives thanks for the things you have done.
Amy was the best, she was the best of all of us. I could go on and on with this and about how many lives she touched, I am flooded with emails, phone calls, visitors: All people who want to tell me how much Amy meant to them. I have much thanks to give for all the support my family has received since Amy's physical passing. And I know she is thankful her children have been so warmly loved and will continue to be loved by all of you. So please, except my most gracious and humble thank you for being her for my children, for me, and especially for Amy.
And if I can close with a few words about a lot of things: Often on this Earth there are fights within families, and grudges and hatreds, whether minor and stupid, or serious and sad. Amy died for love. And for all of Gods mercy she would love, even to this day, to see all bad-things dissolve. So I say with Amy’s death: all bad things dissolve. And in all love and honor I want every one in this room to know from here until the end of all this stuff on earth, my family’s Heart and Door are open to you. We wish you All Joy and a life of less suffering, and Peace and Good-Blessings..
And please know that Amy truly suffered at the end of her life, but like all else Amy accomplished none of it was in vein. She showed us how to fight for love.
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Reading your entries uplifts all of us--we benefit from it so much. I plan to print them out and put them in a book as Owen grows so he can see just how many people he had behind him. Much love to all of you --- Amy

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EMAIL AUTHOR
kiwicaleb4@yahoo.com

HOSPITAL INFORMATION
Dartmouth Hitchcock Medical Center
1 Medical Center Drive
Lebanon, NH 03756
United States
(603) 650-5000