Olivia St. Germain
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Joshua 1:9

"This is my command, Be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go."

On September 7th 2005 ,after a biopsy of the tumor in the base of the skull, Olivia Grace was officially diagnosed with Histiocytosis, also known as LCH. One in 200,000 children are diagnosed with this disease.

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  MONDAY, JANUARY 05, 2009 09:30 PM, CST
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Before I begin about tomorrow, I want to let everyone know about the Shirt Olivia is wearing in the picture above. It is Hand made by Miss SYDNEY MARTIN and she sells these to help funding for Lch. She was also diagnosed and has finished treatment. She has a ton of money for this cause and the best part is SHE IS ONLY 10!!!! She also makes these really cool necklaces made of rocks she goes and gets herself from the ocean! THis kid is amazing and we so appreciate her thinking of Olivia and sending her this shirt. IF anyone is interested in getting one, please visit her site. www.caringbridge.org/visit/sydneymartin She has all the info there or you can go to www.histio.org She is just the greatest kid. THank you so much Sydney, we really appreciate the shirt and Olivia loves to wear it with what she calls her "SKINNY JEANS" (they are actually leggings but with older sisters Olivia thinks she is grown and has even asked me for a shirt from "Hoffister" (Hollister) We are in so much trouble!!!

Tomorrow are her scans and she is really nervous! She started on Sunday asking when Tuesday comes...I didnt realize she knows the days of the week and in order so I couldnt fib about it. SHe is worried about the size needle they will use, if they will have to give her sleepy juice... she hates it when they tape her head to keep it still...She is really anxious so we just keep reassuring her, it is no big deal and now that she is bigger, she doesnt need sleepy juice and no MRI only Ct and xrays... shes not buying it, but still trying to reassure us that she is okay and very brave, when we know she is scared to death. I really hate days like today, the anticipation is running in everyone... So we told Olivia that after her scans, we will go to target and try to find more things for her batcave. We still are on the look out for a special imaginext gift set that only Target carries. ( a Target exclusive) we have been to everyone, so if anyone sees it please tell me and I will go and get it!! :) I really think we have the Tomboy in Olivia, her favorite things are superheros, all imaginext things, race tracks and sometimes if her sisters are lucky she will play barbie. She plays all day long with Her batcave that her nana and papa got her. She also has a pirate ship and jungle/ She has everything set up just right and dont dare move it!! It is really cute and when I get a chance I will post pictures of it.

SO after Tomorrow, I plan on getting a copy of the scans and xrays, I will look at them and see if we see anything new and compare the ones from last time to this time.. not like we even know what we are seeing in the ct, but in the xrays, we know so we can look at the spots that were there before and compare..OR i could wait until Thursday at her DRs appointment, buuutttt I dont think that is likely, if you know me at all!!! I have to work right after so I will update when I get home. Please pray for Olivia not to be so anxious.. I know how I feel as an adult and it sucks, so I can only imagine it for her. Until tomorrow,

Love

Tammy and the clan

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Thank you so much to all who send there prayers and best wishes to Olivia and Our Family. Please keep them coming. We all love to read them and I will be including every single one in her Histio Journey Scrapbook!

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EMAIL AUTHOR
tlstg@msn.com

HOSPITAL INFORMATION
Hope Childrens Hospital
Oak Lawn, IL
United States